I have had almost the same problems....j pouch, constant bladder problems (even before j pouch), vulvodynia, and a meningioma (that has not had to be removed--yet) Also had a bad motorcycle wreck and had to have multiple leg surgeries--it seems the more surgery I have, the worse it gets....I became addicted to oxycodone, and, they would not admit me to hospital because I am on Medicaid....now I have high blood pressure, high cholesterol, etc and I think it is the surgeries....I wish I knew what to tel you, but I advise NO ONE to get a j pouch...it messes up your perianal muscles....and they do not recover, even if you remove the j pouch...the surgery should be outlawed....wish I could help more....