Myofascial pain. Help!!

Im trying to find patients. & their families patient no longer w/us. I can tell u about me. But i know most of us. Went to same hell. Maybe we can help each other. Each of us can contribute into something. To get our permanent cure & not to be ignore.

Thank u. I tried to stay away in the forums. Sorry to say. I dont mean to offend anyone. But whinning about my pain hurts me more. Even praying. It will make me remember everything that happens to me. It will get me more depress & stress out. & i sometimes feel my own muscle is in contracture. Or pull my spine. I tried my best to be in positive. Diverting my thinking into something else. Pretending these are not happening. But i just couldnt escape how cruel these illness have done to me. Done a lot of research. Found devin starlanyl. Helps me a lot. Im always taking pain meds to get by. Seen a lot of dr. Hoping to get my permanent cure. But a lot of them disregard my pain. I got worse. Just because i can move. Most of them think is nothing. I tried a lot of treatments. Some of them screw up me more. Or not permanent cure. Im not sure. But i think what we have is not in the medical book yet. Thats why im trying to find all of us. Maybe then they all listen. & give us the help w/ truly need. Maybe they could research our illness more. Than to judge us. I used to ask god why these happens to me. That i wish i rather have cancer. I feel like im gonna get crazy. If it wasnt for my partner. I would diffinetly give up along time ago. But maybe god puts me here. Put us here. They all should know what we have. Ego tripping dr's must be stop. & really start to dp their duty w/ patients. To help. & not to do harm. Were not a syndrome. Their just hard headed

Thank u to all of u. Im very sure i got cmp. But i got confused a lot. & thats very frustrating for me. Specially im dealing w/ people trying to confused me more. Its very horrifying to be in this place. I always believe in the system. I always believe in dr's. Now thats all change. Im trying my best not to think. & remember any of it. It hurts me more. Feels like i throwing up. Its like i have to keep on reliving that event. I really want to come out in open. Make other people see what happens to me. & not only me. I did a lot of research for what happening to other people like us. Sadly some of them is no longer w/ us. From complications & suicides. Yet still a lot of us. Have to go through. The same thing they've been through. Thats why im here. Trying to find their families. & patients like me. 1 of the saddest part. These hurts like hell. Im not sure. But somebody told me. Cmp is not in the medical code yet. Just dont know how true. Maybe we can change that. Maybe we can all help each other to be heard. I cant do it alone. I tried. A lot of them dont listen.

Equestrianne12,

The term is confusing as it looks like something other than what it means.
"myofascial" has to do with "myo" - "fascia", a layer of tissue that surrounds muscles.

I'm sorry about your trigeminal neuralgia, I understand that it can be extremely painful.

Sorry to hear about your pain...

Are you seeing a good Board Certified Rheumatologist? I'm not sure what you mean by "stop people hurting patients like us"? Maybe you can explain more..

We also have a Fibromyalgia board that you can visit as well as MPS is very similar in nature and treatment plans.

Have you been officially diagnosed with MPS and/or Fibromyalgia?

May I ask what all they have done to treat you? Have you gotten trigger point injections, physical therapy, acupuncture, massage, heat therapy, ultrasound therapy?

Are you any type of muscle relaxer? How about nerve pain medication?

Again, having a good BC Rheumatologist and/or Pain Management Dr. (once someone is properly diagnosed) makes all the difference to find the best comprehensive program to help.

Too many people end up in bed/on the couch all day and not staying mobile which can lead to even more pain, stiffness, and muscle spasms. Making sure you don't drink alcohol or smoke, and maintaining a healthy weight with a good diet is also crucial.

So having a Dr. figure out the best plan medicinal and non medicinal using as many modalities as possible is the way to go.

I hope that you can share a bit more and feel free to pop over to the Fibro board as well.

Hi Help&Faith
I'm sorry you are suffering so much. I know it is not easy to get thru a day of pain let alone months and years. Myself I have suffered with severe headaches for more than twelve years. And i did spend countless days in bed and crying my heart out.
Is your pain all in your face? do you have headaches? can you tell us what kind of doctors you have seen, meds taken or treatments that you have tried? How long have you had your pain? do you work? do you have any hobbies that can take your mind off of your pain.

I really do sympathize with you. Keep posting with us if you can and we will support you thru this difficult time you are having.

Suzane

Hi Help&Faith, I am sorry I am having a hard time understanding you. My guess is that english is not your first language. It is difficult to follow your train of thought but i am trying to help you. You haven't really given us a clear picture of your illness what you have done so far in regards to doctors, meds or treatments.
We do care and will help you as much as we can.

Take care
Suzane