Constantly sick and doctors can not figure out what is wrong.... please help

I am desperate for help... my doctors can not figure out what is wrong...I have a few symptoms: I never know when I will wake up feeling "good". Every day is a toss up.... I either wake up feeling extremely tired and dizzy, some days starving and feeling as though I may pass out.


Rarely, I will wake up feeling okay. I used to play a ton of sports and be very active and in shape... I am 23 now and no longer workout as much because I do not ever feel well enough to. I am 5'5" and weight 123 pounds.



My appetite is strange because I will eat cereal for breakfast or a bagel and cream cheese sometimes at 7:30 AM because I wake up feeling starving... then I will eat again around 11:30 and have a sandwich or pasta or a filling salad, and then some days this is when I become really sick all of the sudden... I will feel like I am going to pass out, my heart will race, I will get somewhat blurred vision and everything I look at looks like it is closer than it really is.... I get either really hot or freezing cold....



I get a headache... and have fainted at this time before...today I just went to my kitchen and felt too exhausted and weak to stand up so I sat down at the fridge almost in panic and drank juice and had some pre-made cold pasta feeling like nothing would help and that I was going to pass out but then 5 minutes later.... I feel much better just have a headache?



The other day I did a fat blasting boot camp for the first time and it was more difficult than I have ever imagined and rather than just feeling out of shape and tired.... I kept getting tunnel vision and feeling like I was going to pass out... I kept taking breaks but she would not let me quit....



After the class I felt really sick and my heart would not stop racing, even after our 15 minute cool down I could not seem to slow my heart down. On my way home I called my dad and could barely talk... I kept feeling like I was going to fall asleep and that I could not talk normally.... I had to talk really slow and slurred my words.



My eyes kept closing and I had to pull over. I then checked my pulse and it was still racing. I finally got home and my husband made me a hot bath and I sat in the tub for about 45 minutes and my heart still did not calm down. It was racing as fast as it was when I was exercising. The heart racing happens quite frequently...whether I am just in the shower or laying down. Especially if I drink any alcohol.



The doctors have tested me for hypoglycemia and that was negative... they tested me for diabetes... that was negative... I took an allergy test which came out normal... I was hooked to to a heart monitor for a few minutes which came out normal....



I have had a brain MRI and an EEG test which was normal. I was tested for Lupus which I showed a positive screen to by my family doctor, but when I was actually tested by the Rheumatologist...it came out negative. I also get frequent UTI's that are excrutiating and sometimes hardly anything comes out and there is bleeding....



The last few UTI's have been tested and come back normal? It is so painful I am crying and have to use the restroom often and feeling like I will lose my bladder but then nothing comes out? Please help me :( I am really scared at this point





(I split up your post so that members with eyesight and tracking problems can read it easier.) Thanks! SE

Post Edited By Moderator (Screaming Eagle) : 8/28/2012 2:25:07 PM (GMT-6)

Hi Snowbunny 21, thank you for your response and splitting up my long post.... I didn't really think about how difficult it is to read one big jumbled essay.

I do not drink very often.... it will be maybe once a month (if that) and it will be a few glasses of wine or a cocktail out at dinner but I stopped drinking because of the problems it was causing.

I do get anxiety and I have had panic attacks before.... I just didn't think that my other symptoms were related? Although, nobody has ever really sat down and talked to me about my anxiety so I would not really know otherwise....

I will definitely talk to my doctor about the adrenal glands and anxiety... anxiety runs in my family and my sister and mom have it : / but they do not get the other symptoms I have so neither of them really know what to do and have become pretty worried about me especially now that I live on the east coast and they live on the west coast (my husband is in the military)

I guess I just wish I had a doctor who would keep testing me for other things. Every time I have gone in I am the one asking them to test me for certain illnesses due to problems that I have. They know something is wrong and they state that all of my symptoms are strange and worrysome but after one round of tests they don't really seem to care much. I am not making all of this up and it is quite frustrating because I love to runa dn be active.... I hate being glued to my bed or couch because I am too sick to go anywhere or do anything which includes getting ready for the day sometimes.... or walking down the hallway.... it is really upsetting.

I know at this point it isn't a brain tumor (which my doctor from California had thought it may be), and it isn't lupus, or diabetes (which does run in my family though and so does breast cancer and heart disease) I guess I am just hoping to find someone who has similar or the same symptoms that could help me here because I am out of possibilities...

APM I am new too, and all your symptoms sound how my lupus started. I also I have --prolonged qt in my heart-- which doesn't cause pain but sure causes dizziness, passing out, high blood pressure, racing pulse. You should see a 2nd rheumatologist, one that might work with your regular doctor so they know why you had a positive (ANA i am guessing) screen. And with the prolonged qt I see an electrophysiologist for that.

I got online after going to the ER and recieving the all good. I went in for symptoms just like you. I feel ill all the time but they say I'm all clear. I was just thinking I was crazy when I found this. I'm not sure what it may be, but I have found eating certain things help (ie. Dairy free, gluten free, soy free) I still feel awful so maybe it doesn't help I don't know.