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Posted 9/29/2012 8:23 PM (GMT 0)
Nephrolithotomy that is what it is called they go in and take out the stone and In my case the part of the kidney that is damaged, so there is no other treatment they can do, I just have to wait and keep calling to find out when they are going to take it out and how much of that kidney is damaged they think at least 20-30% but won't know for sure until they go in.
Posted 9/29/2012 8:33 PM (GMT 0)
I've heard of PNL (Percutaneous nephrolithotomy)...

So the good news with this is that it's a small incision with only a few nights in the hospital and recovery is a few weeks.

And thankfully our bodies do well with one kidney if it comes down to that...

So as you have said...you just want them to "get on with it"!! LOL

You had mentioned previously that it's your GP that is prescribing this med? Or did I get that wrong?

As long as he is in touch with the DR. that is going to perform the surgery...then maybe he will be more apt to prescribe medication until then...

Was he the one who sent you to the other hospital?
Posted 9/29/2012 10:59 PM (GMT 0)
yes he and the urologist here in the town I live in, they both sent referals hoping to get something done asap, and yes he was the one that wrote the persciption for the pain, I have signed ever document there is so that all of these Doctors can talk to eachother and help me. The Hospital that does do the surgery know all of the meds I'm on and I have never asked any of them for anything else. They seem to be glad the GP is taking care of it, seem that I live down the street from his office and the other hospital is 2 1/2 hours from my home.
Posted 9/29/2012 11:33 PM (GMT 0)
I would contact him on Monday and let him know what the status is on the surgery and ask him about the medication.

Again...I think with being proactive with the meds before you run out will bode well for you and since he is well aware of the upcoming surgery...he will be more apt to help you out for a bit until then.

Just so you know...in many states if someone is not an actual PM Dr...they have to provide a lot of documentation on "why" they are prescribing opiates. So this is why I think it's crucial to keep him up to date with everything just in case the other Drs. are taking time to share this info.

If they know that you need surgery..what is the hold up for scheduling it?
Posted 9/30/2012 1:32 AM (GMT 0)
I don't know there is only one surgen at the hospital that does it, so I don't know, I didn't even get to see him.
like I said I left there more confused then I was before. When I called there on Friday all they said was they where working on it. Do you think I should ask about the pain clinic? I don't know how any of that works, I do know there is one in the next town over from me, but have never been there or needed to go, so should I ask my Gp I don't want to cause problems for him where I do need them and the doctors all agree, that was a good choice, the percocet I mean, it was a good med for my pain.
Posted 9/30/2012 1:59 AM (GMT 0)
I would contact the Dr. you met at the hospital last week and ask them if there is anything else on your end that you need to do before they schedule surgery...or are you waiting for them to tell you the date.

I don't think I would inquire about a pain clinic right now because I would assume your Drs. feel that the surgery will help things and then move you forward afterwards without medication with just a plan for diet, exercise, fluid intake, and all the other ways to help prevent stones from happening.

I would only pursue the pain clinic if it's a month or more out from your surgery and things are somehow worse and the surgeon recommends that he can't do anymore...That is usually when someone moves into pain management.

Surgery is your big next step now..I would think that if it's coming up soon...then your GP will be ok prescribing the medication for you until then..

Asking about a pain clinic now may seem like you are just looking for them to prescribe opiates.

Post Edited (Snowbunny21) : 9/29/2012 8:02:34 PM (GMT-6)

Posted 9/30/2012 2:23 AM (GMT 0)
oh no that wasnt what I ment by that I just don't know what the rules are for my GP, I don't have any intetion of needing meds other than now and post op. I live in New Hampshire and I didn't know what the rules are, it seems Doctors have to be so careful with what they do. Like I said my GP and local urologist wrote up referals to the bigger hospital and they all know what I am taking, I just didn't know if the Doctor would have to look into the pain clinic thing if it's longer than say 1 month before I can get the surgery then the recovery time.
Posted 9/30/2012 1:38 PM (GMT 0)
Ahh..thanks for explaining more...the written word among strangers can get tricky at times..lol

I'm sure your GP will let you know if he can't prescribe the medication for you if the surgery takes a long time to schedule...I would hope that since the Drs. say there isn't any other treatment for you and surgery is needed...they would schedule it very soon.

Just try to take things one day at a time...I think you will feel much better when you contact your Dr. and know for sure about the medication...
Posted 9/30/2012 3:22 PM (GMT 0)
It worries me about it so bad, It's all I can think about,I am what I think of as a weak person when it come to pain and hurting. Not to mention that this is the 13 stone in my life only this one is the worst, the other times I have had lithotripsy or just passed them on my own, but having to have this type of surgery scares me, After the last time over a year ago and thinking about ending my life because of how much pain I was in and then going to the ER and still get no relife from the pain wore my mind down into the deplths where I don't want to go again, I am going to tell the Doctors this so they are aware of my weakness. I don't know what else to call it.
Posted 9/30/2012 3:30 PM (GMT 0)
I appreciate your honesty and just so you know, our forum rules prohibit discussing the "S" word for ending one's life. Please don't feel bad...just realize that it's just not allowed to be talked about here..

If you are feeling that you are moving in that direction again than I urge you to seek out a mental health professional to help deal with the anxiety and stress of all of this.

Stress will only make one's pain levels higher.

As I wrote eariler...do you have a spouse/partner, family and friends who can pitch in right now to help you through this?

I would try to even seek out a counselor to speak with about things as well.

Finding ways to get outside even for a 10 minute walk, spend time with friends doing something fun that makes you feel joyful. Even if it's just a pajama party with a girlfriend watching movies...

Try to do things that can take your mind off of everything.

The surgery will hopefully solve a lot of issues. Obviously no one wants surgery and it can be scary if one has never before had this.

So...I think it's a good idea to let the Drs. know about your feelings right now. As I mentioned, hopefully they will schedule this surgery asap to get you on the road to recovery and then have a good plan in place with all the ways to help prevent further stones.

Sending you some hugs (( ))
Posted 9/30/2012 3:42 PM (GMT 0)
I don't feel that way now it was something I went through over a year ago, and I know that I need to tell them just incase so they can help me right away.I am married to a wonderful man and have 3 great kids, thats why I am scared of being away from them, I'm a stay at home mom, my husband works long days and I do try to talk to him( he knows nothing about meds or health problems) But I have told him about how I felt last time and I have told him I would talk to someone if it ever happend again. I do understand how people get so down when they are in pain, So please understand it was a feeling that happend over a year ago, not now.I don't know of anyone who has had this surgery before I tryed to ask people on the other forum listed under kidney stones but no one replyed, I have been trying to read everything from medical hospitals about this type of surgery, information is power.
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