Monday Check-In Day

Thanks Susie! !

Kept watching for Tina and almost missed it altogether. Nothing new here and sticking close to home as Florida is running in high 90's during the day and low 80's at night with little or no wind. Just too hot for me out there.

We do have a tropical storm brewing out there but they're expecting it to blow itself out before coming
inland.

No appointments or anything planned.

Hopefully everyone will have a great week ahead.

My weekend was good, after finding out about my puppy how could it be anything but good? LoL

Still having some residual pain... I hope this goes away soon. I go to the PM on Wednesday morning.

My good friend, Joe, starts chemo today. I was going to spend the night in the hospital with him so he wouldn't be alone but we literally just found out I couldn't. He's going in for an MRI right now and probably won't be back until after visiting hours so I'll go home to my pup.

I hope everyone is having a low pain day. It's raining and it's Monday so hopefully I'll be asleep by 7:30 :0)

Well my weekend was spent sick and hurting, seems to be the normal thing as of late for me. Did see my friend of 15 years become a US citizen on the 4th of July. She and her husband came here from Russia 15 years ago and after visiting her in her home country in 2002, I'm very grateful that she now can remain in the US forever. Of course, this made my situation worse over the weekend. My wheelchair wouldn't fit under the tents and I was sitting out in direct sun for over an hour. Lupus patients are to AVOID the sun.

Today, I was up early and off to a GYN/ONC appointment, rushed home and drove 25 miles in the opposite direction to see my Dermatologist about my warts on my thumbs. My left thumb looked so good a month ago, it seemed the radiation had worked, now the thumb looks terrible again. The Dermatologist wants me to see a Radiation Oncologist at his medical center, he's hoping they will be willing to give me even more radiation. The military Dr is refusing to do so, said I've had a big enough dose already.

I'm willing to try more radiation, if not, then I'm going to ask them to amputate my thumb on my left hand. It's totally useless to me as it is now.

Wednesday, I meet with my Oncologist regarding my Leukemia not sure what his game plan is. I'm hoping something as I know I can't continue on the way I'm going at this time. I know I need a couple of units of blood so hoping to get those too on Wednesday. Thursday, I need to see the Oral Surgeon to check the site where he removed my molar on the upper left side. When he pulled the tooth the nerve grew up into my sinus cavity. So it created a hole in it when they pulled it out, so they had to do extra work to close it up. Everything feels fine in there so I'm sure all is well.

That's it for my week I'm guessing, unless I go to the ER regarding my ribs. I'm certain they are broken again, and have been for some time now. I just want confirmation and not hear well we can't make out the photo. Hubby starts his furlough this Friday, so for the next 11 Fridays he'll be home with me. I'm sure I can find many Honey Do's for me LOL.

Hope you all have low pain levels and a good week.

Hugs,
Barbara

Well I spent the weekend mostly in bed. I got up Saturday morning and bent down to picka pen up off my bedroom floor and put my back out. Didn't think I was going to be able to stand back up. Couldn't stand up for more than 5 minutes at a time. Still bothering me but I'm able to move around now without thinking I'm going to die.

Puttered around here yesterday. And hubby and our oldest went and picked up a new clarinet for her. Hers was going to require a $300 overhaul. And I found one on craiglist that had only been used a few times for $75. She is quite pleased as the new one is a better aulity than hers. Picked the first bunch of zucchini out of my garden this morning. So I think I'm going to throw together spaghetti sauce in the crock pot here in a bit.

Finally down into the 70's today and the humidity has broken for now. At least until Thursday.

Need to run over to CVS later and pick up my epi pen. I just noticed the other day that mine are expired.

Other than that nothing really exciting here.

Hi everyone, I am sorry for those of you who had a bad pain week last week. I am happy for those of you who had a good week. I am very happy about that puppy Lindsey. I had a great weekend. Sunday was my birthday. We spent the whole weekend doing stuff for it.
Wednesday we bought me some new clothes.

Thursday we went and got stuff to cook on Sunday.

Friday we rented movies.

Saturday was a long day. We went out to eat at a fancy restaurant. Then took a break. Then went and bought me some new clothes. took a break and went to see two movies. Boy was I exhausted.

Sunday we had people over and grilled out. My husband and other family did all the work. It was tough because this was the first time I was not able to go hang out with everyone outside while we were grilling. Since I just found out I have UCTD we haven't had anyone over to grill since. I had amazing food and cake. My MIL made homemade ice cream. I got a soda maker that I wanted for two years. When my husband and I got married we had people write on quilt pieces and had it made into a quilt. My husband got me stuff to hang it.

Hi everyone, and sorry to those of you who've had a rough week.

Very chilly here, so I've been sore and a bit tired. Having a lovely time though - my parents are having a holiday up north (Mum is skiting about how it's only 28 degrees up there at the moment...in contrast it's zero here tonight!) and my best mate has come across from interstate so that we can have our own mini holiday while they're gone. She's got CRPS as well - we met online and we've only met once pretty briefly before, so it's just amazing to be able to spend so much time together