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Help new dx and med changes

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Chronic Pain
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Posted 8/29/2013 1:30 AM (GMT 0)
My leg numbness and pain just got dx as paras theatrics meralgia. I saw my neurologist first this morning actually told me she thought that was what it was and that the test could be done in her office but that we could just treat it and if it gets better I wouldn't have to go through the test. She said to treat it by taking one more 75 mg Lyrica at bedtime. She also took me off my Tylenol 3 when I finish the Rx I currently have.

Well this afternoon I went to my PM. He agree with the dx but says I am on too many meds. That with all the nerve pain meds I am on I would have aready "maxed" out on the relief I would get. ( not exactly what he said but best way I know how to put it). Basically taking more is not going to do anything. So he actually wants me to start to go down on the Lyrica. Go from three a day to two. I know I am on tons of meds and I need to come off some because it is not healthy. If you did not see the other thread my list of pain meds is in the thread linked at the bottom. He is going to do a nerve block.

Basically now I have to decide what to do on my own. I know you guys are not medical professionals and can't give medical advice and all that. Can anyone say anything to help in any way? Does anyone know anything about this condition? I know it can be caused by my weight and also my UCTD. I am working on getting a gastric sleeve. Thank you.

www.healingwell.com/community/default.aspx?f=16&m=2835364
Posted 8/29/2013 1:38 AM (GMT 0)
It looks like it is listed on the Mayo clinic website as Meralgia paresthetica....

And as you mentioned, it's pretty much "overactive" nerves. It is pretty similar to something like Fibromyalgia...

As the Dr. said, it can be caused by obesity, weight gain, or even tight clothing or also a symptom/side effect of having diabetes.

The good news is that is says that most of the time conservative treatment of looser clothing, losing weight, and exercise treat this and even have it go away completely. They say that medication is rarely used and I have to agree with your Dr. that being on 25 meds already where quite a few are already for nerve pain, that adding more would not be a good idea.

Just be very careful about going down slowly with the Lyrica and follow the tirating schedule to the letter!

Glad that everything worked out today and there was no problem with the issues discussed in the other thread! This is where it never pays to worry about things in the future! LOL
Posted 8/29/2013 10:28 AM (GMT 0)
Im not familiar with the disorder but read Mayo clinics information. As for Neuro adding another dose of lyrica and PM telling you to decrease? Too many treating Drs going on here.

Im inclined to disagree with the PM about threshold with the neuropathy meds its just not totally so. I can see other meds that should have been dropped first, your already having pain issues, your now being instructed to completely d/c one pain Med and significantly start lowering another? How's that going to help pain wise?

I would be looking to pick just one of the Drs to handle all my meds. Seeing someone with multiple meds that overlap as yours do is generally the result of having multiple Drs prescribing and not working together, can be a dangerous situation.

If you get one Dr to actually sit down and take a look at what meds your on, decide where the overlapping is and change those, eliminate others and then only use that Drs prescribed meds your going to see better quality of care and more efficient pain coverage.

Good luck
Posted 8/29/2013 7:13 PM (GMT 0)
I'm also not familiar, but....

I recall reading about gabapentin having a threshold level, where once it reaches a certain point, that increasing the medication not only does not provide additional benefits, but actually can accentuate nerve pain. What that dose is, or how it varies from person to person, I'm not sure.

Since I was unable to use it successfully, I can't give anecdotal feedback, and while my experience was with a drug that was not Lyrica, I wonder if it works along the same lines?

I do agree that sticking with one prescribing doctor is the best idea. See the specialists you need to, and ask them to work together and collaborate, but rely on one prescribing doctor.

I cannot wear tight clothes at all, not even remotely, or my limbs go numb. And what is "tight" for me, might be what someone else considers "fitted." Either way, I've learned that at least for now, I wear light weight baggy clothes.



Sookie
Posted 8/30/2013 1:24 AM (GMT 0)
I do nto have your condition but what I HAVE leearned dealign with Chronic Pain is.........

. I have been told I am OVER MEDICATED ( WHEN I WAS FUNCTIONING FINE)
-What works for each individual differs.....
-I am currenlty UNDERMEDICATED for my pain and have been told by a Neuroloist this week I am "too advanced" for her. ( personally she doesnt want to deal with me in my op)

-There is a HUGE issue with pain managment in this country. Dr's are playign crime detectives which is detering their real job...

I hope you get more help................and I hoep my knowledge in some way is helping you......
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