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Neuropathy won't leave me alone!!!

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Chronic Pain
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Posted 12/30/2013 12:27 AM (GMT 0)
Hi friends, Im in so much pain each and every time that I lay down in my bed. I can not lay on my back so I have to lay on my side. When i lay on my side this is when on the hell began. No to mention that I have a SMS, and a pain pump. while laying on my side, both my left leg becomes numb down to my feet and the nerve becomes painful and acts as a magnet to my right foot, both attaching to each other. The pulling of the sciatica nerves drains so much of my body strength.

Although my pain pump helps a lot with my back pain, it hardly does much for the burning of my leg pain, especially the more active i am. Im just hoping and praying that one day I wake up and this could all be something of the past. Sure wish that I could have my past life back again. Don't remember what a good night sleep feels like anymore. Thanks for the support in advance.

Lynn
Posted 12/30/2013 12:52 AM (GMT 0)
Hi Lynn, sorry your having trouble these days. I have to ask what your taking for the Neuropathy? The opiates are fine for the day in day out same old same old but not alot of relief when it comes to that nerve pain.

Many of us are on several nerve type meds along with something like a muscle relaxer to try to get whatever's sitting on that nerve to ease up off of it.

If your not on those things you should talk to your Doc and if you are it may be time for a change or increase!

Its a hard thing to realize how many nights of sleep we've took for granted until you dont get them anylonger!! Lol

Wishing you relief, and sleep for the start of the new year!
Posted 12/30/2013 1:14 AM (GMT 0)
hi lynn, im right there with ya. just over a month ago i had a pump implanted and had the meds put in it a couple weeks after that. well a week ago i had my first adjustment in the morning. later that day i got the most excruciating pain from just around the waistline to my left foot. it has been constant this past
week. doesn't make any sense at all. and i can't think of anything i have done to aggravate it. i was told by my pm that on mondays i could stop by for an adjustment which i will be doing tomorrow and also to mention this nerve pain i've been having. hopefully he can figure something out.. well i wish you the best of luck and hope you find some relief.....
Posted 12/30/2013 8:18 PM (GMT 0)
Thanks Vickie, I am taking Lyrica 150mgs, 4x a day for the nerve pain which does not always help when its inflamed. I take Tananzadine for muscle relaxer pain.


Mark, its so true, around the waistline is exactly where the monster begins to roar. It begins here through the buttocks and run down the left leg to the feet, and the burning is awful. The next day usually causes me to stay in bed and recuperate and cancel any plans for that day, also due to the fact that the inflammation is still there, but tries to minimize itself. I too had 4 back surgeries, (2 fusions) 2 revisions. I had 4 pain pump adjustments since having the pump inserted in August 2013. I could deal with the back pain, but the nerve pain is too much to bear.

Lynn

Lynn
3/2008, Failed back surgery Laminectomy fusion L4-L5,7/2008--Revision of hardware,11/2011, SCS implant, 3/2012-Laminectomy Fusion with new hardware and cage,Permanent nerve damage in both legs 8/23/13 Pain Pump implanted....
Lyrica 150mg 4 x day, Methadone 5mg 3x a day, Tananzidine 4mgs, 2x a day, Lexapro 20mg daily, Ambien 10 mg for sleep, Pain pump Fentanyl 5 mg, Bupivicaine 0.050 mg.

Post Edited (Lynnzack) : 12/30/2013 1:33:50 PM (GMT-7)

Posted 12/30/2013 10:37 PM (GMT 0)
well i went to my appt. this morning. explained to the doc. what was going on. he adjusted my pump up to
0.0250 (i think that's right) also increased my nuerontin to 800mgs morning and mid day, then 900mgs at night. hopefully something will come of this. he had said if there is no relief by monday to come back in and
they will do an x-ray to see if the cath, might be kinked (hope not) that would mean another surgery to correct it.. well hope today finds ya feeling some what better....
Posted 12/31/2013 5:00 AM (GMT 0)
That's great Mark, the adjustment should help for the back and the others for the nerves. We both sound like we're in the same boat. Today I'm still hurting, had to cancell all my appt for today. Just was bed ridden and could not stand on my feet no longer than 5 minutes bfore having to sit down, plus the surgeries has cause me to have arthritis in my back to. Feel better.
Posted 12/31/2013 11:30 AM (GMT 0)
Hi again and thanks for answering my questions. I've only now noticed your on methadone along with the fentenyl and not ever sure why Drs do that but there's a real possibility that its not allowing the fentenyl to work at its best potential?

Even though its a relatively small dose it can still lower the effectiveness of the other opiates. Is there a specific reason the 2 are used? Have you tried other meds prior to the methadone or were you already on it before your pump installation?

Just "troubleshooting " trying to figure out how to possibly get you some better pain control advice.
Posted 12/31/2013 2:35 PM (GMT 0)
I have pain as soon as I hit the bed. Im up all night. Lately I try to see tay up as late as possible hoping i will just pass out. It hasnt helped. I have neuropathy with no known cause. Dr says they can only treat symptoms. Im on gabapentin and a compound cream.Feeling very depresessed but keep fightingthrough esch day hoping the next will be better.
Posted 1/1/2014 9:58 PM (GMT 0)
@Vicki,
in getting back to me, you know that I never thought of the methadone interfering with the pain pump meds. The plan at the time of getting the pump was to get me off the methadone, but I was still having a lot of pain, so my dr, continued the methadone and gradually was increasing the pain pump meds, but my meds are still low. I feel that I should be at full dosage now because Im still hurting like hell. I was just laying here thinking WHEN is this going to cease. I have a pump, yet Im still hurting like crazy. When i first got the pump in August after while, I was getting so frustrated that my plan was to ask my pm doc to change the pump meds, but after researching Fentanyl is suppose to be the most powerful opiate, I would like to keep the fantasy, he just increased me 25%. Im so sick of being subjected to my bed, but I hurt as soon as Im doing activities, and Im a very active person, I do not like being in the bed. Please offer me some advice, Im desperate. Its a lot of burning of my sciatica too, and the pressure from my back makes my legs so weak and depressed. I really thought that getting the pump was going to allow me a better quality of life. what is it going to take.
Posted 1/4/2014 12:59 AM (GMT 0)
I'm new here and reading your posts here make me feel like a light weight in the PC department. But here's my storey. Ten years ago I started to have burning stinging pain in my left foot. The MRI showed nothing so I was put on Gabapenton, 600 x 3/day. That cut it it in half which I was able to live with, so I went about my life. (BUT NEVER DID I TAVEL WITH AN EXTRA SUPPLY)

Then 2 months ago shooting pain down my leg had me worried and sure enough the pain Doubled. Gaba now up to 600-800 x 3 / day So, another MRI (now 10 years latter) Still, nothing. Had a spinal epidermal injection, only to have the pain increase again. So then Gaba up to 800 x 4 a day (maximum dose)

The surgeon, the pain doc, the physical therapist and the acupuncturist have no clue and were all powerless. I was stuck lying flat most of the day to keep the pain at bay. With no Gaba and no lying down, I'd say a 7. But then I don't let that happen :)

I'm a depressive to begin with so I can see the signs of a Clinical D coming on. Back at the pain doc He's just shaking his head (his injection made it worse) So I told him I was getting depressed. He say, OK, Cymatia. Free samples. Start at 30mg.

Normally I'm an Effexor many for the Big D, but I was still just skimming over the top of depression so I gave it a go. To say that nausea is a "common side effect" of Cymatia is pure marketing. Sick as a Dog. But I know abut ADs, to give them a chance.

Well, Well, day 4 and my nerve pain has been cut in 1/2, nausea mostly gone, and I can reduce the Gaba to my original does of 600 x 3. WOW And that's only at 30 mg of the Cym.

Still I'm 1/2 way into clinical depression in spite of the success. I've have added Effexor (75 mg) and will talk to a Psy next week to make sure the combo will not kill me with serotonin syndrome.

We are all so different but does any of this sound familiar to amyone?

Randy_H
Posted 1/4/2014 1:30 AM (GMT 0)
After reading some of your pain definations I need to reduce my score to a 5. See, a lightweight. Still being reduced to flat on my back is a kind of a pain in itself.
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