Run out of Meds early?

I'm not worried about wd. That would be terrible but it's the pain that scares the crap out of me. Lying curled up in the fetal position puking and crying like a little baby is not where I want to be. I have Crohn's disease and take numerous drugs and have tried everything.

There's nothing really left to try that's when someone wrote "if you're current treatment isn't working...find something that does..." Really? You don't think that crossed my mind? You think I've been a reactive pacifist for the last 26 years desling with this? Nope.

But when the options run out they run out. When the crohns Meds cSnt control a terrible flare for a few weeks then you have to desl with the symptoms head on. Sorry if I can't easy concede to these a hole govt folks who have drs terrified into letting their patients fear asking for help. I wish some healthy dea guy could deal with what I do and experience the pain and everything else and when he asks for Meds say oh sorry Joe down the street might want to get high with those and I don't trust you not to of and kill yourself. But down a handful of Tylenol and destroy your liver. ONE TIME.

Or give yourself this shot if humira Thst might kill you next week, next month, next year. Or take a higher dose of prednisone- you'll feel wonderful -- my wife calls them my a hole pills. Yeah I'm frustrated- more so with the freaking pharmas who don't really want to cure anything- just keep us sheep trying to control our symptoms so they can take in the cash month after month and year after year bc when they do find a cute there go the $36,000 a month remicade bills, $6,800 mo humira bills, $1,500 mo asacol bills...

but if you're gonna string me along and just make me well enough to get out of bed, at least let me be a big boy and be well enough to excel at work, fatherhood, as a husband and live life to the fullest which in this case PARTIALLY is done through Meds Thst some freaking govt beuracrats think they need to keep awSy from me bc I might hurt myself. Well guess what- I'm already hurting ...eh whatever I'm done. Amen and sorry for rambling. Happy new year all!

Post Edited By Moderator (Blessedx8) : 12/31/2013 10:28:59 PM (GMT-7)

Mtgman,

I get that you are frustrated and needed to vent - which is fine - but I think people on this thread (including me) have only tried to help you.

When you write something like: "You try to be honest and get answers and the ones you do receive are belittling and condescending." -- I don't get it because most of the answers that I read were ones of people TRYING to help you. ??

And - just to clarify - it IS pain medication you are talking about regarding "running out early", correct? My understanding is that your pain meds DO work, you just have needed more recently, correct? (It's the other meds for your medical conditions that work "marginally at best")....... but the pain meds ARE what you were talking about when you said about running out early.

As someone else said - it's hard to read tone and intent on a computer. But we've all tried to help you, in my opinion.

In the confusion of the different posts......... there's still one thing that I can't understand -- and that's why you feel like you "can't" ask your doctor for an increase in your pain meds to use for flares? Are you afraid to ask? Have you asked and been told no?

I have multiple health issues...... and multiple pain issues. I get being in flares. Being frustrated. Running out of options. All of it.

So.............. in a perfect world - what do you need that you aren't getting? (I ask that with all sincerity).... Is there a medication (be it a pain med increase or whatever) that you think would be helpful and would be able to make things improved for you?

--Tina

Something I wanted to throw out, I have been the Remicade route for crohns, it worked great until I developed antibodies & developed Lupus. I then went to Humira which surpassed the Remicade. When you use these drugs it is quality of life that is important, without them I had none. Sure there are potential bad side effects, but you know I could get ran over & killed by a bus tomorrow too, same goes for you & everyone else here. All medications have potential bad side effects but it does not mean each & everyone of us will have them.

I take Zofran for the nausea & puking, thats a way of life. Suppositories if out of control, if both ends are going then I go to ER because I will get dehydrated real fast, I am always admitted when in this shape. Surely, your gi has told you to go to ER when you do this too. Have you hd any surgery or has it been recommended? What is showing on your scopes? There are plenty of meds out there available to treat crohns and get you to a point of being able to function, its finding the right combination.

If you get the opportunity try Humira. The pens are are great, burns pretty bad but then its over. In addition to crohns dx, I was dx'ed with UC in 2005, I fall in the 5% group of having both diseases. Between the two I know how they can make a person sick........Susie

Crohns and UC here, with Fibro and CD-related arthritis and AS.

I get the concern about the Asacol bills. I have been on half doses since September, when I lost my insurance. I can't afford it. I am still resisting the biologics, since my immune system is in the toilet.

You sound a bit as if you have some roid rage, if you have been on pred for some time.

Remember-you posted on a chronic pain board, and one thing we read a bit here (I am more a lurker than poster on this board) is the "gee, I took too many meds, what do I do?" question. It ranks right up there with the "Gee I feel better so I am gonna stop my meds." we read on depression.

As far as Chrohns goes, I started the SCD in June, as a last ditch effort to avoid biologics. I am not as strict as I ought to be, but my system is so much better than it was 6 months ago. Just a thought.

Never take more pain meds than prescribed. I take tramadol daily and hydrocodone at night, along with a muscle relaxer. These were prescribed for the fibro/arthritis.

Vomiting isn't fun. I understand. I hope you find some help soon.

mtg,

I do hope you give us another shot at trying to help out. Please correct me if I am wrong, but I think you were referring to prednisone? And that is a steroid. The term "roid" in this context, as I read it anyway, was referring to how so many of us who have been on prednisone for long periods of time,....it affects our moods.

Nothing more, nothing less. Prednisone, as a steroid, can do a number on our bodies and our minds.

I'm sure the help being offered is innocent. This is a very tolerant forum, and the folks here are very open minded and understanding. Sometimes things get misunderstood when all we have to go by are written words on a screen.

Hoping you decide to come back,.....



M.

Just to follow up- I went with my gut and as always was 100% honest with doc and everything worked out great. No issues whatsoever refilling early.

Thanks

Ha little scare last night. Got home counted and whoops....short! I called pharm and they were closed. Left MSG. Pharmacist called 1st thing this am and said sorry for the miscount. The rest is waiting for me. Hmmmmmmm