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Posted 4/14/2014 9:25 AM (GMT 0)
Well it's Easter Week and I can't believe we're headed into the last week of April already! Hopefully Spring has pushed away the cold weather for all you Northerners and the warmer temps will bring some relief. I heard the weatherman say Florida had cooler temps coming for a few days but cooler being 70 versus the high 80s we've been seeing.

Hoping everyone has nice plans for Easter and as always that your pain levels allow you to enjoy the holiday. It might be interesting to see how everyone plans to spend Easter so tell us a bit about your family traditional.

This is Monday check in for all the new folks. Every Monday you will find it here and this is the place where you tell us how your weekend went,what's on the upcoming weeks agenda, appts, scans,procedures. New Drs visit or old. Anyone who may be in need of xtra prayers or thoughts this is the time to let us know!

Something you wish to share on topic or off is okay here.

Hoping everyone has a great pain controlled week and holiday.
Posted 4/14/2014 1:03 PM (GMT 0)
Good morning! Well, I'm taking my grandbaby to a local farm-slash-petting zoo-slash-activity center-slash play ground-slash-picnic ground-area-slash-hay ride (you get the idea) to meet the Easter Bunny, himself! She's "sittin' on G, waitin' on O", as they say down here. :-)

I see my neurosurgeon this week who, hopefully, will release me so that the orthopedic surgeon can have his turn. They've coerced me into getting a PCP who immediately farmed me out to a GYN. This has adversely affected my charm. cry

Overall, though, I'm good. wink
Posted 4/14/2014 4:21 PM (GMT 0)
Well I was going to say good morning but lol, I guess I lost track of time and its afternoon now.

I have our youngest home from school today with a spring cold. But its warm enough today to open up the windows and hopefully get all the germ bugs out of the house. The older two girls decided they were both going to school. They both look like chipmunks that have been in bar room brawls. But are feeling much better than they were over the weekend.

Kids start school vacation when they get out of school on Thursday. Just going to be the six of us here for Easter, nothing fancy. Small ham dinner and something vegetarian for my 2nd oldest and the kids will get their baskets from the Santa Bunny. They had decided when they were little that the easter bunny must be santa because he gave surprises. lol And they still wait for their little gifts even though all know where the gifts come from now.

Monday being a holiday we're probably going to drive down to Boston if its decent weather and watch the Boston marathon.

Waiting on a call back from my PCP to up my Topomax again. I started with a weird little, well not so little hot stabbing pain off and on this weekend on my upper inner left thigh. I have a funny feeling its from my back. It feels similar to what I get on the outer thigh. I'm trying to hold off on any appointments until after the kids and hubby go back from vacation. I just want one vacation that we can have some sort of normal without me having to ruin it even if it kills me.

Other than that not much going on here. Enjoying the 70 degrees in Maine today. And its not raining is a plus. Just need to run over to the high school here shortly with the older girls ibuprofen and hydrocodone and hot water bottles for their mouths.
Posted 4/14/2014 4:33 PM (GMT 0)
Wishing everyone a good day.

I finally got a call from the acpuncture MD's office person saying basically nothing more than maybe I'm a person on whom it doesn't work. So I cancelled the next appointment. This doctor is in the same department as the useless rehab MD who sees me once a month and does nothing. I'm sure they know nothing about central cord pain, even though they are in a very large university medical center. My pain doctor from a small outlying hospital has been far more helpful and caring!

I've got an appointment with the neurosurgeon ... next month. I hope I can still walk by then. I was walking a half mile on the treadmill a couple of months ago, then the spasticity and spasms hit and I'm going downhill fast. I can barely walk from the bedroom to the kitchen. It may be my pain med (tramadol) is part of the problem - I'll post separately on that.
Posted 4/14/2014 5:10 PM (GMT 0)
Well nothing exciting this week, I have to prep tomorrow, ( lots of hard studying) for my annual colonoscopy on Wednesday. I always hate the day before! It really "poops" me out! This time they have me on a low residue diet for four days before the event, I miss my beloved Popcorn and mix nuts even if it is only for four days! This time they gave me a script for "MoviPrep" which is a new one for me to do. Usually it has always been the gallon jug of Golytely or the 30+ tablets taken four at a time with an 8 oz glass of water. So I guess I will see how this works out! LOL!

White Beard
Posted 4/14/2014 5:19 PM (GMT 0)
Hi and a very good morning everyone,

Have 2 appts today and PT tomorrow, feeling actually pretty good brain wise this morning, slept well which I'm sure helps.

Trying to not think negative for this week as I know! some of the referrals sent by my new Dr have not been sent to the right places yet again....so will have to deal with that in a few days.

Neck feels a little better from the injection, horrendous pain has subsided but still have worse arm/ankle pain, going to take my dog out for a walk even though I'm in pain as I always feel better being in nature.
Posted 4/15/2014 12:50 AM (GMT 0)
Nothing really new here, I'm hanging in there....have my appt this week on Thurs...can't wait to hopefully get some relief! Hope everyone has a Happy Easter this week!
Posted 4/15/2014 2:14 AM (GMT 0)
Nothing new this week on my condition. Although I had found out about 3 months ago that my mom has breast cancer. This past week we found out that it has spread into her back and liver. According to her onocologist she only has a few months left at the most. So I've been dealing with that.

For Easter Sunday my husband and I are going to go over to his parents for a little while.
Posted 4/15/2014 2:24 PM (GMT 0)
hI EVERYONE - NOTHING HAPPENING YET UNTIL aPRIL24TH WHEN I GET A BLOCK ON MY NECK........




HUGS, cAREN

AND I KEEP USING COBIC EVERY DAY-AND AS NEEDED vICADONE
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