What's your diagnosis/symptoms?

I don't really have a solid diagnosis. I will be visiting a new doctor who has a very long wait list so I still have some time before my appointment. I've been dealing with CP for more than a decade and have a few bulging disks, some nerve damage, DDD, etc., but none of those (IMO) are serious enough to give me the kind of pain I'm putting up with on a constant basis. So I do have possible RSD (CPRS) and will find out eventually what's going on. This all began after an MVA.

Anyway, I have pain in my neck/back (and more recently in my hands, but they're much better since I posted about that). I have pain on the soles of my feet--they feel like FIRE most of the time. It's hard to deal with. I have burning pain in my back too. Oh, and my toe joints hurt, and have hurt for years. That's pretty much it, but it's enough for me!

Just curious to see what others are going through.

Hi Flower,
My wife and I have been on SSDI since 2009, I'm Dxed with prostate cancer and my pain stems from its treatment. My wife is like you, a grab bag of symptoms that have most definitely disabled her but no solid and sturdy big case Dx. She feels as though she doesn't/shouldn't be considered disabled because she lacks a big Dx. Do you see where I'm coming from?
I have to tell her that the combination of symptoms, like torn rotator cuff, torn bicep, DDD, Foraminal stenosis, arthritis, and a bunch of other nasties gained from several years of construction type work, have ganged up on her so that she is now in the CP club. I don't think that a lot of us CPs have just one thing wrong, most of us are all over the charts like yourself. When you put them all together with, usually, a nice dose of stress on top it can finally overwhelm you . . . Q

Post Edited (quincy17) : 9/20/2014 9:50:28 PM (GMT-6)

Hi Flower

i dont really use labels counselor said to much like a badge plus i have always said my gifts and challenges

for labels well let me think

Chronic fatigue, my whole life

Chronic Pain my whole life

neck back problems since very young

Fibromyalgia my whole life ( no im not full of crap a specialist in another state said last year i had chronic from birth both of them and fibro from birth fibro was mild and recessed back then full blown by 20)

lower bad is destroyed chiro says hard to describe so much is wrong and going on i trust my chiro hes the best of 20 i have found and all 20 have said lower back

my nerve channel is screwed up narrow or something it can pinch and drop like a rock 5 times people couldn't get me up had to call ambulance

it swells up too and pinches itself off

a gland in my brain dying and calcifying giving pass out migraines and daily headaches

sever ADHD with to many coexisting conditions to mention hand eye coordination very severe learning skills and lack of

rage disorder

panic and anxiety antisocial

ptsd borderline personality

Bipolar2 with manic

sleep apnea

spastic bowl reactive Colin

IT band Syndrome and damage bad knees

crap i forget the rest 10 or so 20 or so meds

i have almost died 5 or so times worst was the last methadon was to high went to sleep black till er

lucky wife makes sure i respond before she leaves at 5am they say another half or less would have killed me my vitals were dropping fast and low

my last lead investigator job cops firemen even security and investigators we learn early the value of life

mine was a train accident mom tried to race it held a dying 5 year old trying to comfort paramedics said to late wouldn't even make ride

you feel the cold grip take them from you then you look down at your blood soaked uniform and it hits hard the value and shortness of life

to many others like that and my own life battles with death i know live life my way

forums people dont like cant handle to bad every sec is to important to try to conform or play games

music and parks as much as i can it just shines looks different

but some of what haunts you is the monsters the evil you see things you thought were tv only

becomes like tar it wont wash off i wont stop haunting your dreams

i have made peace with my past with my gifts even learned to love my gifts

i also over last 6 or so years been in very severe accidents

me and the wife were sideswiped doing 60mph on way out of town so much spinning and pain

the worst was the last

we were sitting in line waiting for a car to turn a kid wasn't even paying attention

slammed into the rear end over 40mph no brakes i broke my brake pedal pushing so hard

that finished my back and fibro

my local fir screwed up didnt flex door and didnt slide board under me

now im quit i will smile and talk till i pass out i refuse to show pain till recent years i cant take or hide anymore

well anyway the pulled me a inch or so onto the board i felt snap grind and others in my lower back o man what came out of my mouth

well now my lower back done my fibro what are flares my fibro is stuck in flair i just shut down and cant move if i push to hard

sorry i rambled to much and tmi have a good one