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Pain Meds: what works for you?

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Posted 9/27/2014 5:30 PM (GMT 0)
D I have to take pain meds daily as I have multiple illnesses including severe cervical dystonia, spinal stenosis, total gastrectomy with feeding tube, severe fibromyalgia and ulcerated stricture in esophagus, rod and pins in my hip, migraines, (anxiety/panic/depressive disorders, pernicious anemia, no gallbladder or spleen), over 30 surgeries...6 in the last 6 months incl a ventilator. I use a fentanyl patch 75mcg and hydrocodone. They just don't work well. I've heard ppl here mention a couple of pain meds I haven't heard of and wld like to ask my dr about. I can't recall what they were or find the thread. One began with an A, a C and an S. a lot of help, right?! LOL. Can someone help me out with this? Share what pain meds you take please? Thank you!
Posted 9/27/2014 5:56 PM (GMT 0)
Have you discussed with your dr increasing your dosage ? Have you thought about trying other forms of Pain Management ? Things like biofeedback and/or seeing psychologist who specializes in treating chronic pain patients can help alot. You will still need the meds, but the other forms of pain managment do help.
Posted 9/27/2014 6:03 PM (GMT 0)
I will discuss these with my neuro as soon as I see her. Being in a rural area I don't know if there are biofeedback or pain management clinics but ill definately ask! Thank you...
Posted 9/27/2014 7:34 PM (GMT 0)
Are you just seeing your PCP? I live in a rural area and there's at least one pain doctor who comes to the local hospital once a week. You should be able to find someone through your insurance.

I travel over an hour each way though, to see a pain group I trust. I have to plan nothing else that day. It's worth it.

I don't tolerate fentanyl, so all I get is hydrocodone and tramadol. The combination doesn't really take away all of the pain, and it can get really bad when I try to do a little work - like potting a few plants today. But the tramadol raises serotonin, which makes me fairly happy, at least enough through the day.

Distraction helps a lot too. 4-year-old grandson came over to help me sort the grape tomatoes before getting rid of the vines for the year. I didn't think about pain while talking with him for an hour.
Posted 9/27/2014 8:09 PM (GMT 0)
Hi and yes I have a great neuro specialist, new HMO PCP. My pain meds just aren't getting me thru. I need to see her soon and see what else we can do. I also use a vibrating body mat that helps my pain greatly. Backlofen for dystonia. Wish I cld afford acupuncture. Had it twice and was great. A lot of pain frm feeding tube.
Posted 9/28/2014 12:21 AM (GMT 0)
Hi BluAngel
I am on 100mcg Fentonyl patch. I also take Norco and diazepam. I just started adding in small amounts of legal, my state has legal marijuana clinics, of CBD. I smoked very little of this when young and hated it! It took me five yrs to agree to try this form; it worked! Mainly it has many uses but no psychoactive effects. For me, it relaxes me and releases "happy" serotonin.
After whiplash w/knee trauma, my usual meds are not enough, yet the amount of Tylenol is too much for health in the Norco. My daughter who has bulging disks in back and fibro, like me, takes Nuecentra. She does well on it and was able to stop using the F patch. My PCP and I are starting to discuss Oxycodone as added relief or change from the F patch.
As I am facing knee surgery soon, it is all scary.
I really hope you discover the mystery meds soon.
Blessings
Posted 9/28/2014 12:35 AM (GMT 0)
My Current Pain Management Doctor is the 1st one to prescribe me enough Pain Medicine.

It's not so much the strength of the ER med but the fact that she prescribed me 4 break-through pills a day.

I take 10mg Opana twice a day and 2 mg Dilaudid four times a day.

It's my understanding(may be mistaken) that the Opana I take is equal to 20 mg Oxycontin.

The PMD I was at last year prescribed me 30 mg Oxycontin x 2 and I was still in pain.He didn't prescribe BT meds though.

I think it's the fact that I'm able to keep a therapeutic level in my system all day.

Like others said I think you should discuss this with you Doctor.How long have you been taking the 75 mg patch?

edit:I also take Soma,usually in the evening.It's great for relaxing the muscles in my back that are tightening up and spasming as I type.

Hope y'all are having a relaxing evening,

Rick

Edit: BluAngel,you may be thinking of Actiq,which was mentioned in a Thread.It's Fentanyl,but in an instant release sucker.I believe it's pretty strongThere's also Fendora,a fentanyl tablet which is instant release also.

Posted 9/28/2014 1:24 AM (GMT 0)
You can use the search feature here at the forum & type in pain medications to see what you can pull up to read. We do ask that you not post on those older threads as we like to keep them off of the main page. There are so many different meds out there too. What may work for one person may not work for the next one because of how we each metabolize our meds,

I would check with my insurance online to see what pain mgt drs are available & where they are located. Pain mgt drs are much better at getting pain under control & this is what they are trained to do.

Take care.
Posted 9/28/2014 2:44 AM (GMT 0)
Thank u everyone. I've never heard of Opana or Antiq. Never brought up the oral(?) form of essentially THC but I'm getting desperate for relief. Ill ask. HUGGZ
Posted 9/28/2014 5:59 AM (GMT 0)
Just heads up Antiq is pretty much limited now to cancer patients only and super expensive even with insurance.
Posted 9/28/2014 1:30 PM (GMT 0)
Hi - I am a fairly knowledgeable medical marijuana user. THC and CBD are not the same thing at all. THC is the component that gets you 'high' and CBD is the component that relieves pain. You can get a lot of products that only have CBD in them. Tinctures, balms, oils, etc. They work very well.

Of course you have to live in a state that permits it and get certified/licensed. We had a discussion about it on this board a week or two ago, if you search on medical marijuana you should find it.
Posted 9/29/2014 12:16 PM (GMT 0)
In Florida we are allowed a break through med, extended relief med and preventative med. I have the Fentanyl 50mcg patch for prevent, Percocet for break through and Nucynta for extended relief. At night I have a muscle relaxer so I don't spasm and kick my wife off the bed.
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