The idea that there is some magic number with fentanyl after which you overdose isn't necessarily true. I overdosed while taking 25mcg/hr patch AS PRESCRIBED (and yes, I was already opioid tolerant). So now they've got me on 12.5mcg patches and even those I usually only change every 4 days. I have a very low tolerance for medications. But yes, 25mcg/hr is on the low side. The point of starting there is to be sure that the patient tolerates it okay for a bit before upping it (and 25mcg/hr works for some people). They do take time to build up in your system. If I don't change mine on schedule, it usually takes close to 24 hours before I start to feel any relief from the patches.
You may want to check out the ACPA resource guide
www.theacpa.org/uploads/ACPA_Resource_Guide_2014_FINAL.pdf. It lists dozens of alternatives to opioid pain medication. Surely there is something out there besides narcotics that would help you (even if it's not enough on its own). It took me more than 2 years working with my PM to find a decent combination, but eventually we figured it out. There are many categories of "pain medicine" -- anticonvulsants, anxiolytics, tricyclics, muscle relaxants, NSAIDs, acetaminophen, etc. Plus, various delivery systems -- topical, IM injection, oral, nasal, transdermal, transmucosal. Plus interventional medicine -- injections, rhizotomies, neuromodulation, pain pumps. And physical medicine -- PT, acupuncture, chiropractic care, massage, and other alternative therapies. And lastly there is pain (behavioral) psychology to work on behavioral modification, setting reasonable goals/limits for yourself, distracting techniques, relaxation techniques and so forth.
Believe me when I say that I understand how frustrating it is to be in pain while the doctors try to figure something out, but self-adjusting a new medicine after only a few hours -- especially a C2 -- is crazy dangerous. I'm glad you are okay but please don't try that again, ok?
It is possible to get rebound pain. My PM deals with that in new patients all the time -- people who truly weren't addicts but had irresponsible former PM's that just kept upping their dose again and again. He started working with them and got them down to 1/10th of their former dose AND with better pain control than ever. Even I am dealing with this now since I was up a lot on my pain meds because of a massive infection in my back. Cutting back was brutal at first, but at week 3 now, my body is starting to re-adjust and the lower dose is starting to be sufficient again. Keep trying to find a PM -- maybe now that you are only on patches, it will be easier. Have you talked to anyone about
an epidural? They are designed to block out a good portion of the pain in a specific area. It wouldn't make it completely numb, but maybe could bring the pain down from an 8 or 9 down to a 5 or 6 & I always consider that a huge win! I just got an epidural last week for pain that went from low back to iliac crest (those bony parts of your pelvis that stick out in the front of your body) and down my legs to my knees. Pain went from a 9 to a 5. I went from crying and screaming in pain, barely able to move at all, to being able to resume my normal life (albeit still with noticeable pain). :) There are also topical treatments like Lidoderm patches that might offer some relief.
Take care