Surgery results

So I had my surgery today. They found a lot of endometriosis. Both my ovaries were covered and it was also behind my pelvis. They were able to remove it all though.

No. He didn't take the ovaries. I have a feeling that may happen in the near future though.

I know the endometriosis is gone, but what are the chances it will grow back? Just trying to figure out the next step. Any suggestions?

Hey Wx2...So glad your surgery is now behind you.  Give yourself time to heal before you start to stress about "next time".  We've discussed this at length on several occasions.  I am rather shocked that the ovaries were left in place, as the estrogen they produce feeds the beast.  There is no one size fits all treatment for this IMO terminal (to the quality of life) disease.  I am 21 years post Hyst/Ooph/BiSalp followed by Lupron, and 7 years of Magace, which is a tumor suppressing steroid.  So...IME, a definitive YES it will grow back.  Right now as I type, my belly which is normally flat, is distended and bloated like I am with child.  My left side pulsates in pain, as the crimped colon agonizes to move my bowels.  When the bowel is full, my ability to urinate is impeded.  I have  blood filled tumors along my spine...MRI confirms...I think it's the Endo attaching itself to my spine, causing even more spinal pain.  And so it goes.

There are (unfortunately) many, many women who are suffering with this disease tonight.  Most of them are not being treated with any respect or dignity, instead being told their pain is in their head.  Those that do get a Dx are often led down the path of Lupron (evil) and repeated laparoscopies.  Each procedure reveals more disease or adhesions than the one before.  It's a vicious cycle...I'm so sorry you are here.

I was hoping that, with all of the problems you've had, the surgeon would totally remove EVERYTHING now, to prevent further surgeries.  Of course, that's still NO guarantee...as nothing cures this evil disease.  It's a death sentence with no hope of death.

No point in obssessing at this point.  Perhaps you'll be one of the few who gets relief.  I certainly hope so.  But in my life, HOPE is not a plan.

Hugs~~Dixie

It was laparoscopic surgery to diagnose and remove the endometriosis and to look at/in my uterus. The surgeon was just in. He said it will grow back since my ovaries are still in. We are going to discuss options when I see him for postop in 2 weeks. He seems willing to remove everything. It's either that or the Lupron. And I'm very hesitant about the Lupron.

What2, my sister-in-law had endo really bad. It was much worse than her dr thought & he actually apologized to her while she was in the hospital. I was standing there when he did it, lol. That was the first for me to hear a dr apologize. Her dr did not do a lap to try & clean it up, he said the complete hyst would take care of it & it did. Although, he said her surgery was more detailed than he had expected, it had grown all over inside & was attached to other organs. The good news is he got it & she has not had any problems since.

The one drawback to her getting the hyst done, her insurance required her to do 3 Lupron injections before they would approve her surgery. She survived the 3 injections, she said it felt like she was having menopause suddenly hit her, but that went away too not long after the 3rd injection.

I was 32 when I had a complete hyst & it was a blessing to finally get it done. I never felt better in my life. Let us know what you & the dr decide.