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Chronic Pain
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Posted 11/25/2015 10:33 PM (GMT 0)
I have three herniated discs in my neck starting at c2 with stenosis and impingement on the nerve having difficulty with right arm. Diagnosed about 10 years ago. I have fractured to lumbar vertebrae and herniated an additional 2 discs. Bilateral torn rotator cuffs can't even brush my hair in the last six months. My Mede have been decreased. Thanks to the Dea Aetna has stalled my MRIs for months. I have too wonderful girls I wish I could be with on outings. Tears.my mother is in a wheel chair with senile dementia and Alzheimer's. She uses a lot of abusive language and complains constantly I can't eat this my room is cold then it's to hot. My boyfriend had to quit work. Really at the end of my rope I waited on the affordable care act worthless. I'm in therapy. If this is as good as it gets I feel worthless I'm tapped out. I am an only child. Ok what next if another Dr tells me to take ibuprofen i will use the only thing that works Iwill pull out what's left of my hair If I were an animal it would be considered cruel to leave me in this condition. They wonder why the Heroin abuse has skyrocketed in my age group socioeconomic group. Have to say some pretty crazy thoughts have crossed my mind. So SSID. Food stamps? Fracked in Texas

Post Edited (jenpen400) : 11/25/2015 4:12:32 PM (GMT-7)

Posted 11/25/2015 10:53 PM (GMT 0)
Hi Jen, I hear your pain & frustration. It stinks being in pain all the time. With all the things you have going on with your neck have you seen a board certified neurosurgeon to see what he thinks may help? If not I would be asking for a referral to one.

Pain mgt has been going down hill for us patients for several years. I am afraid it's going to get a whole lot worse before it gets too. I personally feel it will be phased out & it will be the terminally I'll that is allowed any treatment.

I would be inclined to stay with the PM dr you are seeing now instead of switching. All of these drs are working under the same guidelines & it's not worth the risk of getting in with someone that is worse.

If you would please edit out the word where you would like to kick your dr. I am posting this from my phone & worry if I try to delete the word I may delete in the entire post. I never use my phone for posting its too difficult for me. HW has rules & the owner wants this to be a family oriented site.

Don't give up those 2 girls need their mom. Take care.
Posted 11/25/2015 11:04 PM (GMT 0)
Oh great my moms up he double toothpicks how can I further disappoint you now . I'm jealous of her because she only broke her hip left the hospital walking then sat back in the wheel chair I have her though pt three times in the last 2 years and back she goes to the wheel chair. I'd love to trade places with her she does not believe my injuries. 4 years I've been wrestling 160 pounds of rag doll into bed. She won't wear diapers because she is not the one who peed the bed the wheel chair the recliner.
Posted 11/25/2015 11:32 PM (GMT 0)
Healthy kids they deserve better waited Two years to get to pain management and was removed from. Tylenol 3 and Tramadol flexeril these injuries didn't indicate the use of them I had a referral saw the neurologist and when I had my next appt with my GP he told me his brother the head of this practice sent everyone there and he was yet to see any patient come out with a positive result. He spent one full hour consulting with me when I checked the order they had me signed up for lumbar after they check my neck films.
Posted 11/25/2015 11:39 PM (GMT 0)
I'm thankful for healthy girls as they go through puberty I'm going through menopause. At least I have a home to suffer in bed. For now.
Posted 11/25/2015 11:41 PM (GMT 0)
Thanks all need to get this out and all suggestions are welcome
Posted 11/26/2015 12:54 AM (GMT 0)
Hi Jen and sorry your dealing with so much right now. It sounds as if your Mom's state of mind has deteriorated to a point where alternative care may be best for her. I know that as a child we like to think we owe our parents the benefits of caring for them but in many instances where dementia and Alzheimer is present they require more care than nonprofessionals can give and they do have a tendency to get extremely mean and some violent. You can't afford to let her get you down you have two kids you have to think about here. If nothing else look into adult daycare and give yourself a break.
Posted 11/26/2015 4:20 AM (GMT 0)
Hi Jen,

Feel free to vent here…we are all dealing with our own pain and whatever comes with it, but we don't have to do it alone. I'm sorry things are so bad. But, everyone is right, your girls need you. If you feel like you can't go on, think of them. Do you have something small, like a picture or something special from them, that you could keep in your pocket or next to your bed? Something that you could see or hold in your hand and help you to keep going, to remind you that your daughters need their mother. If that's all that keeps you going right now, it's ok. Hang on to any bit of hope that you can.

Know that we are here to listen, to support you any way we can, to offer advice, whatever you need. You are not alone. Take care of yourself as best you can and for Thanksgiving, try to find something, anything, that you are grateful for.

Sending positive thoughts and gentle hugs….
Posted 11/26/2015 5:53 AM (GMT 0)
Does your mother qualify for Medicaid ? If she does, she should also meet the criteria for Personal Care Services. It's not a lot of help, but they come in a certain number of hours a week and help with activities of daily living. It would give you a break.

Have your drs mentioned surgery ? If PT doesn't help with rotator cuff tears, surgery is usually the next step. Have they recommended it for your back ? Frankly, I don't see how you can do anything with the rotator cuff tear alone. I had a severe tear in my rotator cuff and I could barely move my shoulder, arm to do anything and the pain without the Morphine was unbearable.
Posted 11/26/2015 3:52 PM (GMT 0)
Jen,

with your health condition and your mom's alz. I would suggest that you place her in a nursing home. They are qualified to care for her.

You are just causing yourself more stress trying to help her, when you can not care for yourself. I worked for nursing homes over 14 years, it really is not 'putty them away'.

Peace and strength.
Trina
Posted 11/26/2015 6:46 PM (GMT 0)
I've want to get her into a place like warm springs she needs someone who can crack the whip. Granny boot camp if she could do more she would feel better it doesn't help that she is also responsible for my neglect as a child that lead to some injuries. Thank god for a great therapist. Yes my insurance company forced me to wait for imaging so long that now that the cure is worse than the cause who is going to care for my kids. I walked around with my back fractured in to places. No absolutely no pt because I need more imaging. Can't get it I'm using horse linament lol and my hair has never been shiner than when I use shine and show. We have to rescue horses in starvation mode. Fortunately my mouth works and I'm pretty good bartering what I have for what they need. Really adentify. With those beautiful animals and it strengthens the bond will my girls. Hey maybe the vet can help she sure is good with horses. They are so gentle hoping might make good therapy animals. I can't help my self but love my kids and animals. btw 2000 lb 18 hand at a full gallop nothing better. Oh I'll never be in the saddle but they have turned into big puppies ok out of the funk I'm doing this thanks giving thanks God bless.
Posted 11/26/2015 10:54 PM (GMT 0)
jenpen, I can so identify with at least part of your posts! I'm not clear on whether or not you've had surgery on your shoulders yet. As you can see from my signature, I've had both shoulders done, twice, with additional injury to the right shoulder, twice! What has helped me besides my pain med (tramadol) is Ibuprofen taken with Benadryl. Then, a heating pad. I have one that is shaped to go over both shoulders and the back of the neck. For some reason, the Benadryl helps with any swelling that may be going on inside the joint. Give it a try, unless contra indicated by other meds or allergy. I also use an 'icy hot' brand 'tens' unit to help release muscle tension from the way I have to move my arms now that the joints are so messed up. They make one for 'shoulders and knees'.

I had to stop working and at first hated it, being on SSD. I went on anti depressants for a while, saw a psychiatrist and had a counselor for about a year too. It's not the worst fate in the world.

Keep posting! I'm glad you found us here.

P.S. Another thing that helped my shoulders was rolling a towel and placing it in the armpit. It keeps the joint in a more relaxed position and can help reduce swelling. I would do this and put ice packs on at the same time. Give it a try.
Posted 11/28/2015 6:26 PM (GMT 0)
Aetna refuses the imaging so no doctor can touch me can't afford the 350 a month and pay 4000 for the MRIs. Plus the 75 dolor copy's they will not have this plan next year I expect the premium to double again. I believe they are evil. Many doctors will not except the other carriers and if your not careful you end up with a 700 buck ua at pain mismanagement they billed me for an inhouse gas mass spectrometry test. Well my mouth works so I asked them to show it to me I watch CSI they corrected the bill and labeled me as difficult they are corrupt how many people have they lied to and stolen from.
Posted 11/28/2015 6:33 PM (GMT 0)
Love you folks people often misjudged us because we have good and bad days some times I lash out but here I know where I walk someone has been before and maybe they have the answers.
Posted 11/28/2015 9:51 PM (GMT 0)
Well I do understand all your fury but I shake my head and say "that's the way it is" with my particular situation. Find myself very tired and worn out and not terribly interested in doing a lot of stuff. Feel pettered out.

Doctors don't give me any time, just take this drug. One doctor was so excited about the scan I had. She asked can I take a copy of this like it was an Rembrandt drawing. However when I told her I fell in their ambulatory surgery place, she lied and said it was not their place and when I told her that I knew it was, she got huffy and got rid of me. STRANGE GROUP.

You are NOT under legal obligation to take care of your mother. You ARE legally responsible for your children. Texas does not have a lot of resources for their people but there has to place to bring your mother. You should keep trying to go to help with your pain so you can better manage your own life and that of your children.

It is sad that you have to place your mother somewhere but you must consider your children's future. I hope it all works out.
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