Nucynta ER Nightmare?

Hello all, have any of you had bad experiences tapering off of Nucynta ER? Not just head spinny, nausea type things... But Neuro muscular, fatigue, vision, cognitive, coordination, vertigo, walking type issues. Major ones. Like, woke up a completely differently functioning person, lasting over a month, some of my Dr's thinking MS type of issues.

My PM Dr had added it to my Norco and Soma (that I've taken for years), I gave the Nucynta 6 months, noticed no changes and discussed dropping it due to lack of efficacy and the high cost. My PM Dr tapered me off in about 5 weeks. Long story short, I was referred to a Neuro after these issues started who was a total (insert favorite derogatory explitive here) and because my brain MRI came back with no lesions, tumors, etc, he decided it was because I'd tapered off the Nucynta ER. I expressed my views that this just didn't line up timeline or symptom wise, he was completely dismissive and said that he had no other answer. It's been well over a month and the issues still continue. I'm of course seeing another Neuro for a 2nd opinion... But not until June.

Everything I've read on Nycynta ER says nothing about symptoms to this degree but I also know strange things can occur on these drugs. Thoughts?

I was on Nucynta ER around 4 years ago.

The big thing I remember is it didn't control the pain as well as MS Contin did and I had this weird feeling of just something not feeling right.

It is hard to explain what I mean.

Never had that kind of feeling before and haven't since.

It may have been some anxiety issues as well but it was something I couldn't live with.

My Doctor thought maybe I was sensitive to one of the fillers used.

Think I was on it two weeks because I just couldn't stand the feelings it gave me anymore.

Switched back to the MS Contin and I was fine.

I know it works really well for some people though.

I am kind of a weird one.

My MD used to say that if there was a side effect to be had from a med that I was bound to have it.

Good Luck!

Cindy

I also tried Nucynta, and had some very bad side effects. It sounds like there was a lot going on here in a long period of time in your situation, so I'm not sure I can give you a specific answer, or know precisely what answer you are looking for.

But what I can tell you is my experience with Nucynta. It gave me a flushed face, I felt disoriented, I would wake up with a racing heart beat. It was bad stuff. When was the last time you took Nucynta? It would seem odd that if you've been off it for so long, the Nucynta would be causing long term side effects. I think as long as you are off of it, it should be out of the picture now.