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Near constant full body pain

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Chronic Pain
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Posted 6/24/2016 5:09 PM (GMT 0)
I have been dealing for just over 2 months of near constant pain pretty much from the neck down. Sometimes I have the joy of a headache on top of it. Let me start by saying it is tons of fun in my most sarcastic tone possible. I am a single mom of two and work a full time job. I'm so frustrated with the constant pain and my doctor not seeming to care. I've switched doctors because the original one looked at my blood work and said I was healthy and the pain was probably just in my head!! Thankfully the new doctor said something slightly different. Blood work showed I'm healthy but clearly there was something wrong. Now I am being referred to a specialist and get to get some test done. Just want to know why I hurt and what can be done about it. I struggle daily with just getting out of bed. Work...ha nearly impossible but I've gotta do it. How does one deal with the pain all day everyday? Just want it to stop!!
Posted 6/24/2016 8:17 PM (GMT 0)
I am so sorry you have to deal with this. I can't imagine how difficult this is for you trying to hold down a job and raise children. I dealt with it off and on for 30 years. Even though I now take some Oxycodone (when I remember to) at this very moment it feels like every part of my body is being squeezed by vice grips. Except for the headache, which went away earlier.

You may get diagnosed with Fibromyalgia, but you should also check into Lyme disease which mimics the symptoms of Fibro. There are excellent sections here on both. The Lyme group (not sure of the Fibro one) give excellent suggestions on non prescription ways of dealing with it.
Posted 6/24/2016 9:02 PM (GMT 0)
A.jaggs123:
A "normal" blood panel does not guarantee health and well-being.

"Normal" is a range of expected values based on a statistical average, a bell curve developed from the analysis of wide population.

People can have low-normal and/or high-normal values for any one of a number of blood measures and be highly symptomatic. For example, a person with a cortisol level of 8 ug/dl (considered to be low-normal) can show extreme symptoms of Addison's disease.

Symptoms of unrelenting fatigue, muscle/joint pain, and general malaise are general symptoms that can be attributed to many different possible conditions - Lyme disease, chronic fatigue syndrome, hypothyroidism.

One thing that I have learned in my journey of endocrine failure is that the body will compensate for as long as it can as best as it can.

Some/many diseases and conditions will not reveal themselves through abnormal blood work until the body finally exhausts its ability to compensate. For example, my blood work was fairly normal despite a failing and sputtering pituitary gland. It was only when my pituitary gland completely failed that my blood work took a precipitous nose dive.

With your vague symptoms of fatigue and joint/muscle pain consultations with a both a rheumatologist and an endocrinologist would be appropriate. Certainly, you could be experiencing an auto-immune disorder or an endocrinology disorder. If you live in the northeastern US, testing for lyme disease would be appropriate.

Keep working with your primary care MD or specialist physician (rheumatologist, endocrinologist) until you feel that the underlying causation of your symptoms has been identified. Unfortunately, sometimes it can take locating and working with several physicians until a health issue is identified correctly.
- Karen -
Posted 6/25/2016 11:00 AM (GMT 0)
Welcome Aj and sorry to hear your struggling with pain issues.. The thing to remember is"normal" anything is based on personal level. People will say their b/p,temperature,glucose levels,are normal. Normal for what? Like Shell said normals a range and people fall within the range and some fall outside but that doesn't necessarily mean anything is wrong or everything is alright. My normal temperatures always for me 96.7-97.8 and if I have a"normal" 99 I'm likely feeling really bad and something is going on. I am also anemic therefore normal H&H levels are always low but that's"normal" for someone who has anemia.

It's clearly frustrating to have medical professionals tell you that your blood work or tests are normal so it must be in your head!! Not sure what posses these types of Drs to assume anyone would just want to feel like they do... there are rare cases where the psychological changes cause extreme pain conditions but rarely do they continue constantly and long-term.

There's many things that causes all consuming body pains or aches and its important to rule out some of those because they are progressive or respond best to early intervention. Lymes one of them. Autoimmune diseases such as lupus is another as is several bacterial infections. Certainly keep pushing for answers and keep changing Drs if your not finding one that is willing to go the distance and investigate aggressively.

I said changing Drs but actually you want to make consulting appointments and just see if they show interest in helping you find some answers. Its not wise to continue switching or jumping from one Dr to another so that was just my play on words but consulting appointments are just you trying to find a good fit for your personal healthcare needs.

Good luck and keep us posted.
Posted 6/26/2016 3:30 PM (GMT 0)
o I hear you...docs just want to get rid of you and on to the next. the more people they see, the more money they make.

I have horrible pains in both my arms (insides of) and knees (insides of). It could be infectious arthritis too because I run these cold chills during a heat wave but no fever.

I have showed up with the RA factor but the doc said my hands are normal and it is a false positive.

Well, whatever they call it...not a lot of help anyway...just suck it up and take drugs and PAY THEM.
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