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Posted 8/31/2016 9:39 AM (GMT 0)
After non-Hodgkin's lymphoma was cured two months already passed. I took 6 CTxs and the terrible pain disappeared but the nerves were damaged on my feet so, I still like thousands needles in my feet fingers. Two months since the CTXs but that terrible feeling is not leaving. I still have to use morphine 4 times daily. I need some experienced help with this, maybe somebody already had same problems or can advise me doctors at any location. I already looked through many web sites (uvlrx.com/acute-chronic-pain.html, www.webmd.com/pain-management/features/chronic-pain-relief-new-treatments, /www.asra.com/page/46/treatment-options-for-chronic-pain)

Post Edited (gretmar) : 8/31/2016 3:43:14 AM (GMT-6)

Posted 8/31/2016 2:21 PM (GMT 0)
Hello & welcome to Healing Well. So sorry to read about what you are dealing with. My thoughts are since you are dealing with nerve pain is there a reason your dr hasn't tried you on any of the medications available to treat nerve pain specifically? There are several medications available, such as Lyrica, Gabapentin, Cymbalta & Amitriptaline to name a few. These medications take time to see if they will work & it could take as a long as month or longer to get to the proper therapeutic dose & usually any sides effects will dissipate in a couple of weeks. Studies have shown narcotics has little effect on nerve pain so I don't understand why your dr hasn't tried you on some of the above. Keep in mind its trial & error in finding which one will help.

Talk to your dr about some of these medications. Let us know how things work out. Take care.
Posted 9/1/2016 1:25 PM (GMT 0)
So very sorry for everything you've gone through. You need to sit down with your doctors and talk to them and say you'd like to try a medicine that might help the nerve pain. If your doctor is then un helpful then seek out help with another doctor.
Many Hugs and well wishes...
Posted 9/1/2016 3:21 PM (GMT 0)
You already have some very good advice. I can only add a couple of notes. If your regular PCP or cancer doctor isn't helpful try to find a pain clinic or doctor.

For this kind of pain you don't need a pain doctor who does nerve blocks in the spine, at least not yet. A physiatrist is knowledgeable about medicines for pain.
Posted 9/16/2016 8:11 AM (GMT 0)
I am scared of becoming dependant from morphine, I constantly try other pain killers but they seem like water and no effect, simply start vomiting from too many other painkillers. Only morphine helps. Docs say pain will last for 6 months more but do you think I will become dependant from it? should I go to special clinic for drug dependent to keep monitor my state?
Posted 9/16/2016 8:15 AM (GMT 0)
Besides that, I was using Lyrica for 8 months but it simply stopped helping me, it was not really helping. I got used to it.
Posted 9/16/2016 8:52 AM (GMT 0)
Along with all that depression is killing me, starting every day is like a torture - what shall I do with that? Need advices, thanks
Posted 9/16/2016 2:16 PM (GMT 0)
Hello again Gretmar. All I can say is if you took a poll here in this forum every person would tell you when they first started this journey the fear of being on a narcotic was at the top of their list. Never in a million years did any of us ever think we would be where we are today. However, at the same time we all need some quality of life & if it means taking a pill to have this, then so be it. Do not sell yourself short. Yes, you can build up a tolerance to any medication taken long term, this applies to all medications.

Depression & chronic pain go hand in hand. Get the depression under control & most likely your pain will improve somewhat. There is a medication called Cymbalta that can be rx'd for depression & nerve pain. This may be something to consider. Talk to one of your drs about the depression, do not let it get out of hand you have too much to lose. If needed get professional help for the depression.

A little tip on posting, if you will click the little pencil icon you can add sentences of paragraphs to an existing post instead of having to make a new post for a one or two liner, lol.

Keep us posted on how you are doing. Take care.
Posted 9/28/2016 6:54 AM (GMT 0)
Thanks for the tips) the advices were great! I thought I was the only one to scare of becoming a narcotic. Now trying to work at home - do general things, cleaning, some cooking just to turn my brain off and stop thinking of all that electric impulses in my foot

straydog said...
Hello again Gretmar. All I can say is if you took a poll here in this forum every person would tell you when they first started this journey the fear of being on a narcotic was at the top of their list. Never in a million years did any of us ever think we would be where we are today. However, at the same time we all need some quality of life & if it means taking a pill to have this, then so be it. Do not sell yourself short. Yes, you can build up a tolerance to any medication taken long term, this applies to all medications.

Depression & chronic pain go hand in hand. Get the depression under control & most likely your pain will improve somewhat. There is a medication called Cymbalta that can be rx'd for depression & nerve pain. This may be something to consider. Talk to one of your drs about the depression, do not let it get out of hand you have too much to lose. If needed get professional help for the depression.

A little tip on posting, if you will click the little pencil icon you can add sentences of paragraphs to an existing post instead of having to make a new post for a one or two liner, lol.

Keep us posted on how you are doing. Take care.

Posted 9/28/2016 1:29 PM (GMT 0)
gretmar so good to hear from you. I am glad to read that you are making the effort to do some things. Its very hard especially when pain is there 24/7. We all try to get back some semblance of living. I am 63 yrs old & have been on this journey for well over 20 some odd years. Its like I have lived two separate lives which is very much true.

Keep us posted on how you are getting along. Take care.
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