Screwed after 7 yrs

On New Years Eve I rcvd the shock of my life. I thought my pain doctor of 7 yrs was not only real but had bed side manners. In terms I didnt understand as we was taling out the wrong end and I heard about 4 different reasons he litterally said he is only in this state 4 hrs a week and was moving practice (1 excuse).
I will be glad to get into in private with you what all the issues are if you really got to know but this is about the just of it. My two biggest problems being my back and my stomach I have been seen for 41 and 31 years respectively. After failed surgeries, other body aches, and depending on what area of the body trying up to 18 different therapies I was started on Opiates a long time ago. My body is now physically dependant and it has become part of my life so much that w/out pain mgmt (meds) it affects how I treat my daughter. If I just stair at a blank screen TV, etc.....pain effects me and my quality of life. Because my doctor has now screwed me I dont even have a chance to do things with my daughter when I feel well enough.
Because I have to get out of MN ( there was 1 doc in this state and I had him) I would like to move by the ocean whether its the Atlantic side of Fl or any of the cities in other states that are on the gulf of Mexico.
I havent played this game for so long and so Im not doing to well at finding a doc and my doc only gave me 30 days to uproot my entire life. Going through Divorce, facing my 13th stomach surgery, moving etc.
Whether you do privately (dont know what rules are here, but please contact direct if can) if anyone that can help me find a pain doc in any of the states in which there is the ocean in the south (fl,MS,AL, and Texas) I would greatly appreciate it. I need a doctor that is good, sympathetic, and understands that my to biggest pain issues I have been dealing with for 41 and 31 years respectfully. I am a wreck from the head down. I have 6-8 diagnosable back issues including fracturing twice, 12 and now possibly 13 stomach surgeries, and pain do to previous surgeries, and Ill just leave it there. I can explain more if you contact. My body has been physically dependant for sometime and I dont need one of these docs that sz 2 30mg tablets of whatever will do it for you. I passed that point a long long time ago.
This pain issue and I will explain if you contact me impacts every area of my life. Without relief I cannot be a dad, a husband, raise my dghtr like Im supposed to and worst of all Im divorcing my wife because of her mistreatment of my daughter. I cant take care of my dghtr even though that is my calling because I am sick way to often. So I can explain things more if you contact me but I told you the area I wanna be around (within 100 miles of Gulf of Mexico or east coast Fl)
I need help bad. I am a disabled vet (100%) and even I cant get them to help me. I will take any help I can get. I know boards are to help everyone but if you wanna talk to me. Please get back to me. Im already out of time but I am crossing my fingers for a last minute save.


^{I had to delete your email address, sorry the administrator does not allow us to put our email addresses in posts. You can go into your profile & put it there, only members will have access to it.}

Post Edited By Moderator (straydog) : 1/27/2021 7:11:32 PM (GMT-7)

Susie,

Thanks for reply. The VA and chronic pain changed about 10 yrs ago with what they do about chronic pain. They actually sight a study that they said they performed and said that after two years the group that took Actominophen vs narcotics actually did better. Aside from my 12 stomach surgeries alone not to mention at least 10 non stomach surgeries plus all the areas that are now affected because of the reprucussions from surgery I dont know about you but if you were hurt and the doc said we can give you an IV drip of tylenol or you can get something real for your pain I know what my answer would be. The VA also sights that about 10 yrs ago a study said that most of the drugs being sold illegally on the street were from the VA.
Like I told doctor everybody doesnt fit into same mold. Out of 10 people that come in hear for pain I gaurantee you that im1 of 3 at the most that are here for the right reasons.
Because the top 3 or 4 things that matter to me are all affected by what should be a no brainer it affects my quality of life. If you take my age of almost 50 with the exception of my dghtr (14) every single blood relative is dead. Im the only one left. Im worse than my dad and he died at 52. My odds are not good. For 31 or 41 yrs depending on issue I have had to live with pain pretty much every day. The question is how much and for the duration.
When Trying to find a new doc I tell them about how all my blood family members are dead and If I get the one surgery and thats just for my abdomen I will find out for sure but from what Ive read that there is a fair chance I wont make it off the OR table or if I do I dont know how to explain other than to say he is counting on my body to produce needed chmicals that you Pancreas produces. If my liver refuses to take over for my pancreas at the very least Im talking insulin for what Im assuming will be a very short life.
Things arent good. What ultimately killed my dad was the VA because the screwed up a surgery. Surgery has caused me chronic pain. I refuse back surgery so the only thing left is meds?
Does anybody have experience if you can get a doc to put a pain puump in you would I still have to play games and find a doc willing to refill it or is it easier to find a doc to refill it then to prescibe pills???
Any thoughts would be appreciated.
Between the possible surgery and implications, family, family history, and my best guess at how long Im gonna be on earth it is no fun for me. Whether I caused myself to feel this enormous guilt about my mom/dad and their deaths I dont wont my daughter to feel that way for 50 yrs or more but its just getting so bad that sometimes I think about whether god will forgive me if I saddle my daughter with guilt.
For instance literally there was one doctor that provided the level of care I got that I found so I faced with making dghtr feel guilt for a long time, living in pain (I think 41 years for my back) is long enough. So I was hoping if somebody even chatted with me privately could help find me a doctor anywhere surrounding the Gulf of Mexico.
I feel the most scared and out of control Ive ever felt. Because Im going through a divorce with my X, she is such a drug addict she wouldnt even help my 14 yr old bury me I wrote out instructions on for who to call to get help.
Ive tried the therapy and the treatments that try and fool your mind out of pain and its just crap. Some body parts you can do only very limited things. I have 3 of those body parts. What do you do when none of the 3 medecine choices they give you work (including narcotics)????
I dont want t o live in pain but I know that if I dont die on the OR table or through other means that I cant live like this. So I dont know if people pass judgement on this board but if you do you dont walk in my size 15 4E shoes. When all 6'6" of you hurt it is to much. Reasonable is a 3 on pain scale. I cant remember last time for a 3. Anybody help please

I wish you the best of luck and if all else falls I will share what worked wonders for me. Buprenorphine AKASubutex and with addition of naloxone. Suboxone.
I tried every opioid use for pain and I always required more than prescribed. I was even on 90mg of morphine 3 time's a day
I entered a pain study and was started on buprenorphine for pain. I did not know how much I was given until I left. It was 8mg twice a day
I used it for a year then slowly went off with little withdrawal symptoms.
After a year off my pain got the better of me so I found a doctor who prescribed it. By then 2mg twice a day worked but over time I needed more and the doctor increased it.
It's safer and doctors are prescribing it now for pain. It has stigma because it's usually used to detox or maintain opioid addiction.
I am just relating what worked wonders for me. Each person reacts differently
Luckily for me I live in Manhattan and there are many pain doctors who will prescribe it
They are however getting tough with regular opioid medications. My doctor gave those patients 90 days to wean off or find another doctor

Good luck to you

Glen

My doctor who happens to be my wife's pain doctor stopped all opioid medications. He gave 60 to 90 day's for people to wean off or find another doctor.
Luckily for me he still prescribed buprenorphine for pain. He knows it's an opioid medication but it has a much better safety profile. In particular it does not effect breathing as powerfully as regular "Mu" agonist opiates do. Secondly it does not cause as much tolerance.
It's known as an agonist - antagonistic opioid medication.
My wife got 90 day supply (prescription plus 2 refills) and found a doctor here in Manhattan who agreed to treat her. She has sacral insufficiency or broken sacram syndrome.
She gets much the same or exactly the same as her former doctor gave.
It's not easy even in NYC thanks to the so called crisis.
The crisis is stopping pain medication which people need and them ending up criminal because they seek relief in the street market. Each time playing Russian roulette with the horrible mix of heroin and fentynal.
The latter killing more than any legally prescribed opioid medication.
I highly doubt chronic pain patients are dying from legal amounts. Rarely accidentally by using alcohol or benzodiazepines but just pain pills to a person taking them for year's? Gimme a break not the case.
Take their pills away and that's the real danger

Just my opinion

Glen