Chrohns Disease Pain

Crohns can give you chronic pain but it sounds like it is time for stronger pain meds if your gi doc won't do it then what about your primary doc? There is a reason they put us on morphine when we go thru the doors of an er.

Hi Seekinganswers and welcome.

GIs are notorious for failing to treat the pain related to Crohn's. Most are too afraid of the constipating effects that narcotics have (which most of us benefit from), terrified of addiction and end up telling us that we just have to learn to live with the pain we have. Well, as far as I'm concerned that's a load of HORSEPUCKIES! Any Doc who says that to a patient should have to suffer their pain for a month and then see how they feel!!!!!!!

In between having Crohn's suspected and getting the real Dx, I was getting my pain meds from my Primary Doc. As time went on, the arthritis most often associated with IBD, Spondyloarthropathy (SpA) reared it's ugly head and my joint pain got so bad that I was miserable. The Vicodin which wore off in 4 hours just wasnt cutting it and didn't allow me a full night's sleep, so I self referred to a Pain Mgmt Doc who I knew from the hospital I was working at. He got me on long acting meds and although I had to try several, Oxycontin was my answer to both problems.

So, if your GI and Primary won't help you to find the relief you need, get a referral to a Pain Doc. Aftre all, they really are the best suited to treating pain. I certainly wouldn't have an eye doc treat my Crohn's, why would I expect a GI to treat my pain?

I hope you find relief soon and that you pop into the Crohn's board here at HealingWell. It's great to be able to talk to others who are suffering the same problems that you are.

HI there
I also believe that those with crohns have to have their pain addressed and done right
I take Ms Contin ( morphine) with percocets for in between pain.......I too got mine from family doc my GI would not touch the pain meds part of my crohns
Please talk to your doc
NO one should live in pain....IMHO

LYN

Please tell me how to approach a doctor about better pain relief.....

My husband suffers from Crohn's related pain; he has had every test imaginable but nothing shows up that could explain the pain.  He takes:  Pentassa x9 pills daily; percocet x6 pill daily (2 pills every six hours, but not a does at 6am); Remicade (still on induction).

He cannot walk, sit, stand comfortably; forget driving more than 5 minutes!  He has been on the percs for >6mos and his pcp is at a loss.  He has told us that there isn't anything more that he can give.  He tried giving us a referral to pain management, but at the time (we didn't have a DX of Crohn's at the time) they would not even speak to us without a diagnosis.

Yet, I see so many ppl here having their pain treated.....should we push his pcp for someting or should we try the pain management group again since we have a DX now?

Any advice is appreciated.