no one really understands

You know, I finally came to the understanding that no one really understands. I have two neighbors, one is like oh you just have Crohn's it's likey UC which is no big deal? The other one more understanding checked on me on my last bought, I was in horrible pain. She realizes what it's like. Relatives are the same, they either get it or they don't. You can't change people, just take care of yourself, worry about yourself and the rest will happen.

Crohn'snme - I have to agree. Everyone out there likes to tell you how to fix things, without ever having suffered it themselves. Many do so thinking they are doing you some good. Most couldn't put up with what many of us deal with every day - for even one day.

My younger brother hurt his ankle while I was home, he sprained it pretty good, I still remember the time he looked at me, dead on, after two days of bad ankle pain and asked " you hurt like this every day?" my response was quite simple - "no, I hurt worse".

The best thing I've found is that I wouldn't wish this pain on even my worst enemy, I can't expect those around me to understand the pain and suffering of each day. I have to accept that people just don't "get it", unless they've been there. My husband shocked one of our friends when he described a good day as a day that I could "walk and get around okay". To some people it just can't sink in it's a struggle every day.

I wish you the best!