update

Just heard from PD office and they will call me tomorrow for when the Mylogram will be taking place. It will be in Billings and I will have to spend the night at a hotel there. Will keep you updated on how it goes and what the results are from the test.


Hugs everyone

Oh ya hun...got my laptop and will have it with me. Hubby will have to go back to work the next day so it'll be the all day affair and then spend the night and boom we are headed back home.

I should know the results in about two weeks so cross them fingers that they find something

Good Luck on your myelogram . I will be praying for you. I had one in feburary and it was not fun at all. I hope you have a better experience than I did.

I thank you all for your Good lucks and all the kind words. Waiting by the phone today for the nurse to call on when this dreaded Mylogram is going to take place uggggggg. I hate even thinking of going through this once again! I know how I felt the last time when they decided to do a Mylogram and that pain is not something that I am truly looking forward to at all!

I am crossing my fingers that it will show something there to explain the horrible pain in my back and my legs, so that maybe they can fix it finally and I can be rid of some of this pain. One thing that I know is that I can never expect my pain to completely go away, I know this and have come to terms with that fact. But to be in this much pain and truly not want to do anything to further heighten it is driving me nuts!

Hubby looked at that microsurgery website last night.....its down in FL and he tells me that maybe if doc finds nothing to cause my pain that we might try this place and see what they say. I hold no hopes that they will actually find something or that anyone can help me....been going through this too long to actually feel like there is something around the corner to help ya know? But somewhere in the back of my mind I am praying there will be a solution to my ails and that I shall find something that works to decrease my pain levels.

Yeah I too am a little leery of a site that says it can relieve all pain no matter if you have had surgery or not. Something in the back of my mind tells me that a red flag is about to wave madly about me.

I know PA....something in the back of my mind tells me its too good to be true. I guess I am so bent on a cure for this pain that all of us experience that I am looking for something that is not there. They say that they have done 7000 surgeries and that 80% of them are success rates. But what about the other 20%? Where are they in this maze of control?

*Sigh* I guess I am just going to have to realize that not all sites are as we wish them to be. I see the red flags waving high hun!

Your right PA...since we have had our spines "Played With" we are what the neuro's call a failure which to me I hate being labeled anything! It frustrates me to no end why anyone would say your a failure in anything and makes me want to fight more for my basic right to have no pain or little that I feel is right. Its hard at times to think of myself in pain and realize that this is the best I'm going to get for awhile, but as I am now 44 years old and "Broken" its difficult at best to realize that I am never going to feel the great things that I want to.

Life goes on around me as I sit in my house feeling so dejected and horrible about being a so called "Shut in" and it seems to add to the stress of my life. I did not ask to be in pain, nor did I wake up one day and think "Gee I wish I was in pain the rest of my life!" But I realize now that there is no real cure for us CPers and we just have to struggle with our day to day lives the best we can and hope that someday they will figure out gee that person needs a better life.

As I watch those with Cancer and things more horrible then I can ever imagine to have....it tears me up inside. Hubby just bought me a four-wheeler this past spring...and yet it sits in the driveway waiting for the day that I can say Lets go for a ride!

Exactly.....I did not mean that our god given right is to be without pain by no means. But this health care we all are receiving is insane and needs to be really thought out as managing our pain and concerns the best we can. I agree that docs are not miracle workers, they make mistakes as well. Like my Pain Specialist he sees 3000 patients in his practice a year and that isn't including those who are new. He is the only PCP in a 200 mile radius and does his best to keep up with all of us that go to see him. There used to be four docs with him but two moved back east where they could make more money then the lowest state for wages in the nation...and one....well, let me tell you this story.

Ok when Dr Bilbo decided to move away she referred me to Dr Oakley who was the top leading Pain Specialist in MT for the Neurostimulator. I was two weeks from seeing him when he decided to fly a plane over UT and crashed killing himself. Well they called me to refer me to another doc and my last chance for a stimulator passed away with him.

Dr Davis since has left the service and I am left with Dr Shaubacher who has too many patients already and asks me every time I go to see him to restate my entire case to him each time. Pain docs are sometimes totally overwhelmed with patients and cannot seem to catch up with their patients through the day.

Anyway, I am glad to being at least seeing a pain doc and that he wishes to find out what the cause is for my pain. If nothing can be found I shall be placed for a pain pump and we shall see where that leads me. All I can do is jump through hoops and that too leaves me frustrated to no end with the entire health care system. Docs are in bed with so many pharmaceutical companies that its unnerving to all of us in pain.


Here is to better days and lessen pain!

I know - that's so frustrating. I can understand there are snags with people connecting on the phone to do scheduling as everyone is busy, but I've had people just go for a couple of weeks after they were supposed to call with a procedure date. And then when I'd call I get chastized for not being patient, but at the same time I find out that either I had been scheduled but no one called me, or my paperwork was lost/ buried in some stack and the call never got made.

I wish they'd let us do some of this on our own. We're not children. (unless in the E.R.! LOL)

PaLady
Hang in there - beach party plans are in the works.