Were you all waiting to post for lil ole me????

Hi, Scarred!

That's great news! And I'm glad to see you're taking it easy. It is interesting to think that our backs no longer look like those models the PT shows us! Oh, well, neither do my "outsides'! LOL

Have a good night! If you're bored go build a sea creature on the beach!

PaLady

Scarred ! So good to hear that it went well ! I was just checking in to see if anyone had heard from you !!!

Going out with fam for dinner now but so glad to know you are doing well !!!!

CP

tom inpain said...
Guess who/what found my pills ? Damm Goat. Your friend in pain worried about You and scared of what life holds for us but as long as we have each other and my pigs, goose and ............. was gonna say Goat but i shot him- serves him right messing with my pills. Almost forgot where my list ? ? ? Damm pigs................to be continued

If the goat ate the pills & you ate the goat, who's gonna eat you?
the pigs, maybe?
better be on the look-out! no sleep tonight! https://www.healingwell.com/community/posticons/icon11.gif
no worries. Scarred & me -- and maybe that monster eating pirate (does he hunt pigs?)-- can keep on the look-out for you.


Scarred, Seriously though, I really hope & pray you find some peaceful sleep tonight and wake to a better day tomorrow. :)
Love & Prayers, Frances

I'm glad things went good for you. Welcome back :)

Good Morning all my fellow Painsters!

Bad night with the back and legs (the legs being the worse of the two!) and wishing that the searing.....stabbing....shooting pain that goes down my legs would just QUIT Complaining at me! Hoping they find something in the results that explains the dang pain I am having. I was talking to hubby last night and I told him you know I don't mind the back pain. Kinda have to accept that when you have had as many surgeries as I have and my Neurosurgeon told me this. But for goodness sakes the surgeries were suppose to take care of the leg pain and make it to where I wouldn't have to bother with that anymore.

I am just so frustrated with the shooting leg pain that I have been living with for the last 6 years and want it gone! When a doctor tells you that you won't have anymore leg pain you have to expect that he is telling you the truth, but man......after 6 years this is getting to be old stuff. This is the one issue I want cleared up. The back pain isn't too bad for what I went through and I expected some kind of pain from that, but pleassse do I have to be in so much shooting...tingling.....searing suffering in my legs?

Tom: Dang Pigs!! I'll come help you round them up so that you can find your list. Can't believe the stupid goat ate your pills, maybe we could tie the goat up on the beach with a huge heavy chain and that way he won't get your meds. LOL gosh your a card Tom! Everything you say cracks me up! What a hoot!! Anyway, I had my doubts that it would go so smoothly, but this radiologist was soo gentle and so good that I felt quite comfortable with her doing the procedure. Wish all our docs were like that, don't you??

Linda: LOL I know what ya mean hun. As good as it gets anyway huh? The radiologist and I were talking about Mylo's verses Disco's and I think I'd rather go through another Mylo then one more of those Disco's! Talk about painful...the last one they had to actually put me out cause I was crying so hard that the needle was moving inside me. Last I remember was waking up as I came out of the CT machine and it was over thank goodness. The doc told me that she is the same way with them, does not want them to happen to her! I don't think there is one at St. Vincent's hospital that did not wish that I wasn't in so much pain. Radiologist said that the CP'ers are growing by leaps and bounds around the U.S. and it has to make me wonder if it isn't the surgeries that are causing people to be in so much pain? Or whether its the fact that so many are just discovering that they have issues with their backs, necks, heads, knees and other things that is causing this?

CP; I am glad that you were wondering where I was and it seemed weird to come home and find that not one post had been posted since I left. Thought maybe you all missed me but your all probably just doing your thing and trying to get through the day. Hope you slept well last night cause I sure didn't :-( The nerves were telling me that I shouldn't have done the Mylo and were complaining quite loud. But this morning its a little better except for the leg pain which was heightened by the Mylo and are quite upset with me.

For the rest of you that posted: Thanks for all your prayers and blessings. I am truly blessed to have found you all and hope that someday we all can be free of this horrible pain that we all suffer. Wonder and dream of this quite often.....running through the grass in a field of wildflowers not feeling any pain or anything......being able to hunt once more with hubby.......going fishing and sitting on the shores of a huge lake....and enjoying life that once was wracked with pain but now is free from the pain pills, anxiety pills, sleeping pills and muscle relaxers that have become a huge part of my life. Wouldn't that be great????

Anyway, sorry for the long post this morning, I was up at 4:00am with shooting pain down my legs and not being able to rest. So I made me a pot of coffee and reclining in my lounger thinking of days when I was younger and how I could do most anything I wished without the pain.

Until my next post.............your pain filled, leg hurting.....post Mylogram......trying to relax friend,

Scarred

Thanks much Kara I hope you are having a good day.

Two weeks ry and I will hear from doc. I have an appt with his PA on the 14th so then we will know what we are doing. I do know that this is a possible surgical intervention, that is if there is something causing my nerves to be pinched. I hate feeling that the hope of this is slim after so many years but I have to have faith and hope that they will find something right?

Anyway....I hope that you are having a semi-pain free day or at least somewhat so. Your scarred up, searing leg pain, totally messed up friend.

Scarred

PA;

If the nerve damage that I believe is causing my pain is permanent then no. I will not put myself through another surgery to try and relief pain that is hopeless to begin with. I have been told that many soft tissue and scar tissues can be taken out but I have also been told that it really isn't worth the risk because the scar tissue will return in a year or so and your back where you started from in the first place.

The nerve damage that I speak of in my signature is what I believe is going on and not what I have been told is going on. If that makes any sense. I was told by my Neurosurgeon that he thinks that the nerves are being compressed by the scar tissue and that nothing can be done to relieve that pain. I was given better odds then you as my doc told me that only 3% of fusions do not help. When I took this risk I figured hey 3% is pretty good odds but then when it failed after the second fusion I knew that the odds of it failing were increased by doing another surgery.

My PCP doc has told me that if there is nothing going on in there that he is going to push hard for the pain pump and will re-evaluate the diagnosis of DDD to permanent nerve damage. In which case there is a good possibility that W/C will actually go for this. Invasive procedures are pretty hard to decide upon and I for one probably would not have gone through this whole thing if I knew then what I know now LOL (but then again I most likely would have).

Something that really bothers me is that if I have DDD then why is it that the nerves in my legs are in worse pain then that of my back? And why is it that I would rather deal with that pain then to have this horrid leg pain?

I agree that invasive surgeries are to not be taken lightly and I do not think that I will allow anyone to open me up again to fix the back ever, unless it is a guarantee that it will totally take away the pain and I would most likely have to take maybe a tylenol now and then to relieve the minor pain accompanied with such pain. I think we all wish there was a miracle cure for this problem but there isn't and each one of us have to look upon this as a permanent problem that we have to learn to live with.

From one failed surgery "Victim" to another.....

Ok......I will have to look that up PA "Referred pain" that is I had not heard of that before. When I talk to doc about my leg pain it is not just in one spot like most leg pain. Mine goes from leg to leg and is not just in one spot it sometimes hits the front....sometimes side...sometimes back. But it is always present and always very painful. I think that is the reason why doc ordered the Mylo to figure out why I am having leg pain.

DDD I agree is ever present as we grow older, but when W/C says I cannot be a candidate for the Pain Pump because I have DJD (Degenerative Joint disease) it makes me wonder if I will ever be allowed to get some rest from the pain at any time. L3-L2 is bulging but I do not have any symptoms of its presence and the docs don't wanna mess with it, of course neither do I LOL. I think you can understand why not hehehe.

BTW; all my leg pain today is localized in the left leg down the back of the leg and it is driving me into the loony bin!!

Ry,
I don't blame you for pulling your hair out for that one! I remember your doc who thinks these meds are only for "end of life cancer pain" and to me that's very inaccurate. Pain that's referred is still referred from somewhere! I mean what scarred is describing - the pain goes all over at times - SOME of the pain is probably referred, but the basic pain down her leg is probably traceable to one or more of the spine levels.

I think it's probably just as true that while many people can have abnormal MRI's and such but have no symptoms, others can have normal looking MRi's but still have pain because the pain can have so many causes. You're right that your doc should be treating it even if she can't find the precise source. Geesh!

Scarred - I'm wondering if part of the problem is that you have multiple diagnoses, but the primary one (the one listed first ) maybe DDD or DJD and W.C. doesn't recognize that one as justifying the pain pump. I'd talk with your doc about that, if what you're trying to do is get the pump and not surgery. Are there other diagnostic categories (and there's usually a ton of them for our backs and pain) that could be used that W.C. would recognize as making you a candidate for the pump.

PaLady

Scarred,
Request your records and read them - including the ones from the psych. Then you will know what was said.

PaLady

PA I have the records from the Psych and its exactly as my doc says it is...he says that if I do Biofeedback.....pain therapy (which by the way W/C will only pay for a total of 6 sessions) and go through occupational testing before and after the test run (ie. bending, lifting, sitting, standing etc.) then he does not have a problem with me having the pain pump or stim inserted on a more permanent basis.

Ry; the Mylo shows the nerves and roots and discs so that they can see if anything is being pinched or compressed. I am going to get my records so that I can see exactly what it says as to my conditions and such.

By the way just heard from hubby that my Lexipro and Tamazapem are in but it seems that they did not get the Lunestia so should be a fun weekend arrrrrg. I hate it when I don't get my meds on time