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16yo with chronic pain, any advice?

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Chronic Pain
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Posted 1/6/2009 4:26 PM (GMT 0)
I am 16 years old and was diagnosed with
Amplified Pain Syndrome which is a child's version
of fibromyalgia.

I've also been diagnosed with plantars fasciitis
which isn't commonly found amoung people my
age. So, you can imagine, it's very difficult to walk.

So, I've had this since October and there are no pain
meds. I am now being homeschooled because it's
too painful to attend school. I go to PT 2 times a week
and fitness 3 times a week.

I was curious to see what other people have when
it come to chronic pain instead of asking people
who have just learned it, not really experienced
the real thing (like doctors). So, if anyone has any input, I'd
love to hear it! thanks!
Posted 1/6/2009 8:05 PM (GMT 0)
Hi, Kayla,
Welcome to the Chronic Pain forum of Healing Well. I'm so sorry you have to be here, especially at such a young age. The first thing I'd suggest is also posting on the fibromyalgia forum, which you can switch to easily by using the quick jump menu at the top of the page. You can post to both forums, so you can be here, too.

I have had plantar fascitis, and it still returns - and as a matter of fact is back because I've been slowly putting the 20 lbs. I took off 10 years ago back on. For me, that was the one thing that got rid of it. Ten years ago I did some PT for it, learned the stretches, etc. and wasn't obese but had put on those extra lbs. slowly. Once I took them off the pain went away. Now the reverse is happening. But I know this also happens to runners and other athletes. All I can suggest is to follow your PT's recommendations, and definitely don't over do it. Oh - and the shoes you wear are very important. For a long time all I could wear was my supportive walking shoes, but I "graduated" to Birkenstocks and such, but I still can't wear any kind of hard shoe or heel. Of course, now my back is also an issue, and I'm lots older than you, but shoes can matter!

Again, welcome!

PaLady
Posted 1/7/2009 2:21 AM (GMT 0)
Hi Kayla,

I'm also sorry to hear about your pain! I'm also fairly young (early 20's) & I've been dealing with chronic pain in my eye for several years, following a pretty horrific eye trauma. We're not completely sure what is going on, but we think that I have a rare unresponsive inflammatory condition behind my eye as well as a build up of scar tissue. I'd agree with PAlady that you should check out the fibro forum. However, there are a lot of people on this forum that have fibro, often in addition to other issues.

Also, PAlady's mention of shoes reminded me of something. I did PT for about 5 yrs for multiple shoulder injuries & there were a lot of people with foot & ankle problems that were also seeing my PT. I just remember them having special soles for their shoes that were molded specifically to their feet in order to give them the best possible support & reduce pain. I don't know if you get these from a podiatrist, or someone who works with prosthetics, or what, but it might be something to look into. I'm sure the internet has plenty of information about it.

Welcome to HW & I hope you can manage to find some relief!

Skeye
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