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"VERY SEVERE" Sleep Apnea

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Posted 5/8/2009 12:03 AM (GMT 0)
You guys have me terrified! I think I better call the doc soon> like maybe tomorrow! My wife has been badgering me for years now about my problem. She had reserved a suite up in Virginia for us to stay while we were visiting my son this week. She copuldn't come up untill Monday afternoon because of her sick horse but was able to take the "Tiger Cruise" on Tuesday. Monday night I woke up and she was in the front room of the suite on the couch w/ the door to the bedroom closed! I knew why right away, it was me keeping her up as usual just like all the rare nights we get to sleep together, I wake> she's gone! It breaks my heart and unless she is lying and has other motives (which I doubt) she just can't sleep in the same room w/ me let alone the same bed. We were in different beds Monday night in the room. She was exausted from being up w/ her horse all week and I was beat up from my first tour of my son's ship. I just can't believe all you are saying about this sickness and I might be as bad as y'all and don't realize it! I might not make it through the night?? Thats an eyeopener! Thanks for the warnings.
Your brother,
Pete
Posted 5/8/2009 2:35 AM (GMT 0)
Pete

You know you really need to get the sleep study done, now two ways about it! I know that they have done studies and I have the links relating cervical spinal cord injuries with Central apneas, and I also have have the links from Mayo's linking opioid pain meds with central apneas. Plus the the fact if your snoring you probably have just regular obstructive sleep apnea too! It sure can't hurt having the sleep study done, and your wife will benefit from it too! Sleep Apnea is much much more than just snoring it really can be life threatening, and it can cause allot of damage to your body!

Good Luck to You

White Beard
Posted 5/8/2009 2:37 AM (GMT 0)
Hi Pete!

It shocked me, as well, once I understood what this stuff all meant.

But it made a huge difference, as well, once I got it clarified that my snoring would for sure be resolved.

As with you, but only recently, my wife has begun sleeping in another bedroom lately. She just can't sleep with my snoring.

It'll be awhile until my stuff all gets resolved, though But soon, very soon.
Posted 5/8/2009 4:02 AM (GMT 0)
Hi Tony,

Glad to hear that the sleep study went well & that they have at least begun to identify the problem! Hopefully their solution is tolerable as well as helpful!

Skeye
Posted 5/9/2009 2:04 AM (GMT 0)
Second sleep study now scheduled and results back from first (split) sleep study. My numbers didn't work out very well. Oxygen on both obstructive and central testing dropped down to 80%-87% on average, with 477 stops of breathing for entire sleep time (11pm to 6 am) and average 22-30 seconds of stopping. They couldn't do much for the obstructive and my specific pain meds are probably the reason for the central sleep apnea.

What does it all mean? (Well, honestly I haven't a clue, but...) Well, the 2 'normal' machines (if you wanna call them that) won't do me any good. I need to go to an 'ASV' machine, which the testing on May 13 will test and measure my breathing.

NO FUN, people! But I strongly urge everyone to pay the ugly piper now rather than the unmerciful piper later. (My left hand HURTS tonight, and I can hardly type. Likely another symptom of something, I suppose.)

Anyway, next Wednesday/Thursday I'll be tested. Thursday/Friday, I'm guessing, I'll get the verbal results. Those I'll take to my PM, when I go, to see if my pain meds can be adjusted any to help with the Central apnea portion.

This is so much fun. Are you sure it isn't Christmas?
Posted 5/9/2009 2:57 AM (GMT 0)
Tony

After I got my VPAP Adapt SV and since I also have to have Oxygen with it and have the Oxygen Concentrator, I got my DME to order the ResLink  (it is a device that connects to the back of the VPAP machine  that you put a ResMed Smart media card into and it records sleep data on it and I went had them order a nonin pulse-ox that connects into the ResLink, so at night when I go to bed I put on my mask and slip the rubber finger cover ( Pulse Ox)and then the ResLink  records my average machine pressure, AI (Apnea Index), AHI (Apnea Hyponea Index), Respiration rate, Oxygen Saturation, Pulse, a VT and MV, and a bunch of other data, and puts it all on the Smart Media Card, every week I pull the card out, and put it in the card reader on my computer and down load the data to the computer using ResScan software, then I can look at tht data for each individual night and see minute by minute every thing that happened during my sleep, I normally don't though, but I could look at every thing right down to the second that it happened , but I normally just make a report and save it, and every once in a while I will E-mail my sleep apnea doc one of the reports ( it is a PDF file) and he can review my progress. If he wanted to, he could actually send changes to my machine, to me and load them on to the data card and then I could put the data card back into the ResLink and it would load the changes into my machine and change the settings! He has never done that though. Every morning I do check the screen on the top of the machine and see what my average data was for the night, I like to check my AI and AHI to see if I had any Apneas or Hyponeas and how many,  5 or less an hour is considered normal and is OK!  Usually my machine prevents me from having any Apneas so my AI is always 0.0 I sometimes have some Hyponeas (I call them Apnea wantabees)  usually they are 0.2 to 1.4 which is fine! Anyway the ResLink and Card and Card reader and Pulse Ox set up and software was a pretty hefty price and insurance doesn't pay for it, so that came out of my pocket!

Pain definitely affects sleep apnea though, nights that I have lots of pain my AHI is alway higher!

Tony I am glad they are getting you in for the sleep studies so quickly, that is Great! If I can be of any Help to you just holler!

Good Luck to You

White Beard

Posted 5/9/2009 3:04 AM (GMT 0)
Thanks, WhiteBeard.

You have been answering my questions about an hour before I ask them.

Did my signature change on this post and/or the last?  If so, you are welcome to call and discuss it for your own version.

Posted 5/9/2009 4:24 PM (GMT 0)
Great Picture of you and your spouse Tony!  but the one of old Bearded guy looks a little scruffy though! smilewinkgrin

Did you get my E-mail 

White Beard!

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