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I am so tired of this pain!!!

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Posted 8/16/2009 7:00 PM (GMT 0)
  • These headaches are so horrible. I just can't stand it anymore. They are killing me, putting me in the ground. The pain is 9-10/10 all the time. I can't sleep at night because the pain is so bad. This last week has been so beautiful outside and here I am always in bed with ice packs on my head. Is it ever going to stop. The Natural pain relief center i go to, they say i will get better but I need more time. Well I've given lots of my time now. There may be some emotional issues blocking me from going forward. I don't know what they are, they are subconscious. I was checking out the book The Journey. Have you read that. I also did a few sessions of EFT and he found a few things from my past. But I don't have much money to continue doing sessions. Then my cousin gave me the book The Journey which I will read. But still, day in and day out I have this terrible pain. It's hard to stay positive and do things that will make me feel good. Please help me!!

Thanks for listening

Suzane

Posted 8/16/2009 7:44 PM (GMT 0)
Suzanne,
I'm so sorry for all you're going through. The things you are doing like EFT and other natural approaches, reading, learninig, etc., are not meant to be the whole package for most of us here. There are also very physical things going on which require traditional western medicine. Think of an Integrative Medicine approach. The things you're doing can be part of the package, but not the whole package. This is NOT just due to blocked emotional issues; they may play a role, but we all have blocked past emotional baggage. So working with a good therapist and also with pain management and other specialists is what you need. It sounds to me like the center you're going to may be laying on some what I call "new age guilt". I say this as someone with a professional background in mental health who has integrated many comlplimentary therapies into traditional mental health approaches. There is a real danger when anyone starts telling people that basically, the pain or the cancer or whatever is related to blocked emotional issues that need to be solved as part of it all before the pain or cancer can be healed or cured or fixed or even improved. The worst of the practitioners promote avoiding traditional medicine in favor of alternatives, and that can be dangerous. It also sounds like you are starting to feel guilty that if you could just unblock these emotions you'd be cured of your headaches.

Try to work with practitioners who are willing to integrate the best of all approaches. This isn't all about emotions, athough they can be a part of it.
Hugs,

PaLady
Posted 8/16/2009 8:23 PM (GMT 0)
Suzane,
Choosing a treatment plan is a very personal decision to be made between you & your healthcare provider. That said, most of the members here do not use a wholly "naturalistic" approach to treating their pain so there is some bias. Personally, I really like using complementary medicine as much as possible -- acupuncture, massage, physical therapy, nutrition, meditation & prayer, etc. -- however, I found that for me it was never sufficient to get my pain under control.

At a minimum, you might consider getting a second opinion even within the realm of naturalist medicine. Beyond that, there are a whole range of treatments available in pain clinics that include modern medicine -- injections, nerve ablations, surgeries, medication, etc. IMHO, a good pain clinic should include both traditional & modern medicine in order to best serve the patients, but again, that is my own decision based on several discussions with my doctor & adjunct treatment providers. It's up to you, but perhaps that is something you might consider exploring if the pain is really out of control.

From my own experience, pain is cyclical. It gets better for a time (during which the "healers" claim credit) & then gets worse for a time (during which the "healers" would blame me). The important thing is to get a pain management program (whatever that may be for you) that will adjust treatment based on fluctuating levels of pain.

Well, I don't know whether that's helpful at all, but I hope it is at least a little bit helpful b/c I always hate to hear of a fellow CPer suffering in so much pain all the time.

prayers & blessings,
Frances
Posted 8/17/2009 1:01 AM (GMT 0)

PALady and Frances

Thank you for your suggestions and believe me I have tried them all or certainly tons of them. I just had several sessions by an osteopath who also did acupuncture with no relief so he said we'll take a break for now instead of wasting my money if it doesn't work. I get nerve blocks done to freeze my whole head? (If you have had this done how long did you find the block lasted??)I also have weekly massage and chiro. I am going to try a new chiro this week. Like i said I have tried several forms of therapy and after several weeks of treatment and there is no improvement then there is no sense in carrying on. We were just trying the EFT as it was suggested. so if there is something there it is in my subconscious as i don't know what would be causing this pain if it is emotional. It's worth looking into as I am trying everything possible. I have a pain dr. as well. I feel that I have everyone one board that I need but no one is finding the answer yet. All my tests are negative.

I just wanted to post and vent about my pain as I figured who better to understand than you people here.

Posted 8/17/2009 2:10 AM (GMT 0)
Suzane, I am so sorry you are hurting and suffering so bad. I want you to know that I do care and I'll be thinking about you. I admire you for trying other forms of pain relief. What works for some may not work for others. But I did want to say that I agree with PaLady. I do not think you have emotional issues blocking you from getting pain relief. I am sorry. I hope that doesn't offend you. We all have emotional issues. All people everywhere have emotional issues. But don't buy that. Please have pain management work with you on your pain. There has to be some medication available that you haven't tried that will help you. I don't remember the specifics about your pain, forgive me. Have you been given a diagnosis? Hang in there. I do hope you are able to get some relief to your pain...
Anice
Posted 8/17/2009 3:54 AM (GMT 0)
In response to your question about nerve blocks, they generally last 2-8 days for me. Sometimes as long as 3 weeks, but that's really, really rare. However, the nerve blocks were a good diagnostic tool in my case that lead me to decide to go forward with the Radio Frequency nerve ablation (which lasted over 6 years) & then a Spinal Cord Stimulator, which I have implanted at C2. The SCS has provided pretty constant relief ever since I got it programmed. Sometimes I don't get as great of relief from it for a while, but then I just go back for reprogramming & then it helps again. It takes care of about 50% of my total pain, about 70% of the pain in my neck/head/shoulders.

Anyways, I'm certainly not one to fault anyone for trying whatever treatments are out there. If something works for you, that's great. I think what PA & I were gently trying to suggest was that taking on guilt/blame for being in pain usually doesn't help anyone to recover. In so much as there are emotional roots to your pain, I genuinely hope that this program you are trying helps. I just know from my own experience that when I started feeling guilty that I had all these negative hidden emotions that were basically ruining my life through crippling headaches, it just caused my muscles to tighten up which resulted in even more pain. When I was able to just let that go, forgive myself & move forward with my life (as much as possible), I found that not only was I less miserable, but my pain improved as well. It was not even close to 100% gone, but it was noticeably improved. So, please, try to cut yourself a break on the "blocked emotions". If you have that, they will come out in time when you are ready to face them.

feel better,
Frances
Posted 8/17/2009 7:48 PM (GMT 0)

anice said...
Suzane, I am so sorry you are hurting and suffering so bad. I want you to know that I do care and I'll be thinking about you. I admire you for trying other forms of pain relief. What works for some may not work for others. But I did want to say that I agree with PaLady. I do not think you have emotional issues blocking you from getting pain relief. I am sorry. I hope that doesn't offend you. We all have emotional issues. All people everywhere have emotional issues. But don't buy that. Please have pain management work with you on your pain. There has to be some medication available that you haven't tried that will help you. I don't remember the specifics about your pain, forgive me. Have you been given a diagnosis? Hang in there. I do hope you are able to get some relief to your pain...
Anice

I am not offended but you saying that emotional issues are blocking me from getting pain relief. It is not something that is offered at the pain clinic i go to but they brought him in after researching him on the net to see if he could help me. Like I said I am trying anything to try and get to the bottom of these headaches. Nothing has worked yet and these headaches started in 2000. I was diagnosed with tmj and had corrections made that way and now they are saying myofacial pain disorder. You ask what the specifics are of my pain:headaches, bilateral temples, severe, 24/7. My husband and I don't know where else to turn to for help!

Thanks for caring.

Posted 8/17/2009 7:53 PM (GMT 0)

Frances_2008 said...
In response to your question about nerve blocks, they generally last 2-8 days for me. Sometimes as long as 3 weeks, but that's really, really rare. However, the nerve blocks were a good diagnostic tool in my case that lead me to decide to go forward with the Radio Frequency nerve ablation (which lasted over 6 years) & then a Spinal Cord Stimulator, which I have implanted at C2. The SCS has provided pretty constant relief ever since I got it programmed. Sometimes I don't get as great of relief from it for a while, but then I just go back for reprogramming & then it helps again. It takes care of about 50% of my total pain, about 70% of the pain in my neck/head/shoulders.

Anyways, I'm certainly not one to fault anyone for trying whatever treatments are out there. If something works for you, that's great. I think what PA & I were gently trying to suggest was that taking on guilt/blame for being in pain usually doesn't help anyone to recover. In so much as there are emotional roots to your pain, I genuinely hope that this program you are trying helps. I just know from my own experience that when I started feeling guilty that I had all these negative hidden emotions that were basically ruining my life through crippling headaches, it just caused my muscles to tighten up which resulted in even more pain. When I was able to just let that go, forgive myself & move forward with my life (as much as possible), I found that not only was I less miserable, but my pain improved as well. It was not even close to 100% gone, but it was noticeably improved. So, please, try to cut yourself a break on the "blocked emotions". If you have that, they will come out in time when you are ready to face them.

feel better,
Frances

My pain dr. did not recommend the nerve ablation for myself. I am not taking on guilt for my pain I just want it gone and am going everywhere possible to get help and answers. I find it difficult to move forward when i have so much pain, no sleep, I am exhausted and feel terrible. Everyday I try to do a little something fun for myself but sometimes I am in bed all day with ice on my head. A few of my meds were changed today so I hope for changes in the next week.

 

Thanks for caring Frances.

Posted 8/17/2009 9:17 PM (GMT 0)
tmjpain

This is just a "shot in the dark type of question" but has anyone suggested Hypnosis or anything like that? If you have had all the test and they are all negative, I was just wondering if maybe something like that might help? I know it might sound odd, but you seem to have tried so many things! Anyway it was just a thought! I do wish you well and hope that you will find something that will work for you!

Good Luck to You!

White Beard
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