~Understanding

Hey Dani, my mom had this and they do not know the cause.  She had her parathyroid removed and years later they found a tumor on her addrenal gland and thought it was pheochromocytoma but they have ruled that out.  She has been symptom free since her surgery.

Melissa

Awe Dani,
Sure hope the Mayo Clinic can help you, stay on top of it and hopefully you'll get your dx soon!
You know you'll be in my thoughts and prayers...
well wishes and lots of soft hugz
((((((((((((((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))))))))))))))))
Please keep us posted...

Hi Dani:

I wish I had some answers for you, but I do not. My family has a history of underactive thyroid, and it sounds like they think yours is overactive? I just wanted to say that my thoughts and prayers are with you. I pray that you finally get a concrete diagnosis with a concrete plan to treat it.

Lorie

 

  Dear Melissa,

 

     Thank you for your replay. I have never had a "parathyroidectomy" and I do not think I am being "assessed" for HypErparathyroidism (I could be wrong thou, who knows?). Would your mother happen to know where I can gain information reguarding hypo? Thanks so much for your response.

 

   Dear Joy,

 

     Thank you for your replay. I am sorry to hear of the troubles your brother is having. Though I will gladly help anyone in need, I do not think he would like my kidneys as they have had "problems" since I was 7yrs old & are under developed. He is in my heart and prayers for donor. I hope he can find help soon.

 

   Dear Chart,

 

     *warmest huggs* Thank you for your stregenth and encouragment, it means alot to me. *warm huggs*

 

    Dear Golitho,

 

     Please dont cry!! *huggs* Oh! And yes, good news, yes, I can get assistance for hotel costs if I do indeed need to go with option "c". I like having hope again. Thank you so much for your ideas and suggestions. *warmest huggs*

 

   Dear Lori,

 

      The TSH is all over the place, they re test it alot. I am sure he has his reasons *shruggs* Honestly I just want answers *huggs* I will find out more next week and let you know as soon as possible. *huggs*

 

   Dear P A Lady,

 

      I like the huggs, ALOT! *warm huggs* Keeps me strong!  *huggs*

 

   Thank you all for your replies.

 

*huggs*

   dani

    

 

   Dear Chart,

 

      If by wednesday of next week, they still need help.. I will be seeking head to toe diagnostic from UNM or Mayo, after the holidays. Money being the main problem, as we have been hit with some very signifigant medical bills. August = 14K / September = 6K , so far this month has only been 1200 *finger crossed*. On a more positive note, however, I am working very hard on something that I hope will provide atleast a little boost to our income. I will admitt, I would rather get "answers" from my "team" of doctors than have to go to such extreme legenths, but, I will do what I have to do, if it comes to that. I have lost so much...

 

*huggs*

   dani

thinking of you anf hoping you get some answers.

hugs
melissa

Dani, thanks for the offer, but he has enough troubles. Since he got E-coli poisoning nine years ago he's just gone down hill. (Kidneys, shoulder surgery, parathyroidism, gall bladder troubles)

He's on the list finally, but no one in our family is healthy enough to donate to him. He's 50 looking like 70.

Well, you get better soon and I pray your money troubles will be solved.

Joy

Dani, has your thyroid stopped working because of an autoimmune disease? Your symptoms sound so auto immune orientated? It just seems so wierd that they can't work out whats going on. Or is it a case of no one knows? Sorry to bombard you with questions.
Worrying for you, golitho

 

   Dear P A Lady,

 

     Thank you for your support an understanding. I do not want to HAVE to go to UNM or Mayo. I still holding hope next week provides the answers. But, if not, this time, I am ready for action. When it comes to the cost... I am sure if I didnt have little ones to care for, I would probably go about this differently. cost and careful planning will be needed. But, it is what it is. So, just keep trying the best I can. I do understand where you are comming from, and if more managable solutions come to light I will jump on it, for sure. I am hoping with every fiber of my being that my Doctors have the answers they have been searching for. If not, well. I will try my harest to get to the solutions. *huggs*

 

   Dear White Beard,

 

     Thank you so much!!! I am glad I am not the only one who had such a hard time finding information reguarding HypoParaThyroidism! It seems to be very uncommon unless "enduced" by surgical procedures / Chemo. A dear friend emailed me with the "auto immune" "genetic" causes last night. I feel much more prepared now and that alone is a huge weight lifted off my shoulders. I cannot thank you enough for your help. It means so much to me.*huggs*

   Dear Golitho,

 

     Yes, they are looking at "Hypo para thyroidism" from auto immune / genetic causes.  Though I hope that isnt the case... if it is, atleast I will have a "name" to get mad at. Or heck, just having an "answer" would be terriffic. Thank you so much for your support, it means so much to me. *huggs*

 

    Dear Pete,

 

     *huggs* I am not being looked at for "hypo thyroid". But, gosh, I simply cannot imagine all your have had to endure, and yet stay so active and positive!!!! You make me want to try harder each day. *warm huggs*

     I am being assesed these last 3 months .. for HypO Para Thyroidism.  If that is indeed the culprit and we can find the "cause" (either AI or Gene) we can slow down the damage and *cross fingers* being to repair the extensive damage that has been done to my body.  I had hoped, early on that "hypothyroid" or "hypErparathyroid" was the culprit as there is a "fix", but my doctors reminded me early on that they were "ruling it out" and they didnt think that was source of my rapid progression. And yes, I do see an endocronologist, he was added to the team almost 4 months ago. 2 weeks ago they added in a disease specialist after "test results" came back from endocronologist. I am to have meetings with them all next week.

 

    No you didnt scare me. A few months ago, I had hoped "hyperparathyroid or hypothyroidism"  was the answer and was dissapointed when that wasnt the cause. Feels silly now.. but...I wanted it to be fixed so badly, I held on to hope even thou my doctors told me they didnt think that was the case. *warm huggs*

 

Thank you all for your support and understanding,

*huggs*

 dani

 

  Dear P A Lady,

 

     No worries!!! I do not feel you are trying to pressure me atall!!!!!! *warm huggs* I know your are trying your hardest to find helpful ideas and solutions!!! If it wernt for you I would never have thought to call up and ask about insurance and fees!!! Please, please don't ever worry about that atall. I wouldnt be where I am today, and have the solutions at hand, without your help and support. Please please dont every feel that way *warm huggs*

 

*huggs*

   dani

Dani
My wife was diagnosed with Hashimotos(sp) disease at age 13. That is an auto immune hypothyroidism. She has had the left side removed due to nodules and had the right side reduce by half the thickness at the same time. Has yours started to enlarge? There are SO many side effects of hypothyroidism and most can be linked to other things too. My wife has side effect that are common for her thyroid, B-12 deficiency, and now may have Chairi's malformation.

Take care,
Bill