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Posted 10/27/2009 12:09 AM (GMT 0)
Managed to get a cancellation yesterday and get in to see my rheumy, I'm Tuesday OZ time! She tells me the sudden menopause from losing both ovaries is the cause. Now I have to go back to my surgeon and see if he'll let me take HRT for a while even if I'm weaned off it over 6 months. Just when I thought I could handle this menopause without more meds! Meanwhile she injected my hips and has told me to wear my splints and rest, plus up my pain meds. So I feel depressed to say the least. I feel in a fog with this pain, I know you've all been there.

Its just such a busy time, end of academic year for me, so I can't not work.

Hopefully the pathology is good and I'm worrying for nothing, the thought of this much pain for months on end is yawning in front of me.

My white blood cells have plummeted again, so I feel a bit like a pin cushion, she won't put me on prednisone but is going to take over the bone density scans, seemingly I can get this for free once a year with RA. So thats a bit of good news.

Sorry I'm all over the place, feeling a bit sorry for myself and then I keep thinking of all you guys with your horrendous backs and necks. Sometimes its all a bit overwhelming. I wish she could have injected everywhere, wrists, feet, thumbs, knees, elbows even my back is sore. Plus I have headaches and a general low grade fever. Flares are the pits....

enough rambling, tell me off for being so self absorbed. Gotta get back in a positive frame of mind, Hope everyone is feeling good today, golitho

 

Posted 10/27/2009 1:02 AM (GMT 0)
golitho

First off let us get something clear right now, no body is going to to "tell you off" or accuse you of being "self absorbed"  your in pain and flaring and  need to vent your frustrations about it! And we all care about you and are here to listen to you and give you our love and support! You are a part of our family! If you can't talk to us about your pain just who can you talk to? So please golitho no more of this nonsense about rambling or being self absorbed! You have been through so much lately! I do wish there was more I could do to help you! I wish I could make your pain disappear! I will keep you in my prayers and sent good vibes your way! I wish you  only the very best golitho! 

 I do hope your pain goes away soon! Soft gentle hugs to you golitho! {{{{{{{{{{{{{{[golitho}}}}}}}}}}}}}}}}

White Beard

Posted 10/27/2009 1:44 AM (GMT 0)
((((((Golitho))))))). Sometimes it just seems like the whole word is against us! I'm sending you some strength! Hang in there! You'll get through this. At least the semester is almost over & you will have a little break from teaching. Take things slow. One step at a time. Just try to get through each hour. That helps me manage the stress some (although I wish I could say it helps the pain too).

hugs,
Skeye
Posted 10/27/2009 4:02 AM (GMT 0)
Golitho,
I can only say "ditto" to White Beard & Skeye's posts. You definitely aren't being self-absorbed. Overwhelmed is probably closer to the truth, right?

I hope you can get some relief somehow, even from the increased pain meds.

It's so frustrating, isn't it?

Hugs!!

PaLady
Posted 10/27/2009 5:42 AM (GMT 0)
Thank you White Beard, PAlady and Skeye.

It really is just so comforting knowing you are out there and so understanding. I know its just a low patch and I know I'm not getting enough sleep, so itall feels like everything is on top of me.

Thanks again, you guys really help, golitho

Posted 10/27/2009 10:14 AM (GMT 0)
Golitho, a hot bath, clean pj's, a nice warm blanket and some comfort food always makes me feel better. Maybe pop in a old classic movie in the dvd player too. I hope you feel better soon and your surgeon can get you on the HRT. Menopause is bad enough without other complications added in with it. Just try to relax until this passes and it will, so try to take it easy.
Posted 10/27/2009 3:07 PM (GMT 0)
 

   Dear Golitho,

 

     Good morning! *huggs* How aren your joints feeling this am? How are you hipps? I hate knowing you are in such wide spread pain!!! And worse!! No way that you can relax at all with the school year in full swing *warm huggs* I hope the NS can get you on the medicine you needed without the hassle of traveling.. It must be so painful at the end of your day! *huggs* And you are NOT being self absorbed!! You would tell any of us that it is healthy to get the worries off our chest, so same goes for you!!!! I am running horribly late and have to get ready for a 2hr drive. But I had to stop and say "hello" *warm huggs*

 

*huggs*

  dani

Posted 10/28/2009 4:02 AM (GMT 0)
Thanks Dani and Jag. My hips are much better today the joy of cortisone injections but I was awake half the night. Hands are bad, wrists are pretty swollen and my knees and feet just HURT. My doc suggested an epsom salt bath, suppose to help relax the muscles. I'll give it a try. Got permission to start the Livial. Oh joy.
Cross your fingers I cope with the side effects.
Seemingly my vit D is still low, keeping up a partnership with my low white blood cells. The two have gone out dancing together and forgotten to come home. I know I've gone a bit crazy, not used to taking these stronger meds. Feeling in a bit of a haze.
Hey Skeye, I loved your day advice. I'm fully focussed on not going beyond 24 hours. Small bites so I can cope. Thank you...golitho
Posted 10/28/2009 6:33 PM (GMT 0)
Golitho,
you should know by now we care about ya and that you can whine anytime! Sure hope some part of ya is feeling
better today, ya would be so nice if they could inject everywhere all at once and get it done with...
maybe go out and get a good book and a nice hot bath and relax with that....would be a good distraction, eh...
Sure hope your feeling better soon...lots and lots of soft hugz...
(((((((((((((((((((((((((((((((((((((((((Golitho)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
fingers crossed on the Livia and will hope it works wonders for you...
Posted 10/28/2009 11:53 PM (GMT 0)
Oh my dear friend,
Please let it fly anytime!!! and this is coming from Mr. Selfabsorbed himself! Heck, my rantings make you sound like a little peeping field mouse! I'm so sory to hear about the hard time and pain you are going through but I'm just sure it will pass soon! You like WB & PA said, are family here and who understands better than us> Right? So, if it helps, write a BOOK! Hey, thats a good idea for me! I'll title it "The Book of Whine"!!!
Big Hugz coming your way!!
Pete
Posted 10/29/2009 5:18 AM (GMT 0)
Hi golitho!

And belated hugs. I'm so sorry your pain is awful and you are so 'down'. It's such a lonely feeling. Please know that you are never truly alone, in spirit that is. You are part of a wonderful family here and we hold each other up when the going gets tough. So hang on <extending hand> and we'll search for some sunshine together..OK?

Warm and gentle hugs,
Chutzie
Posted 10/30/2009 6:40 AM (GMT 0)
Thank you Chutz, Char and Pete, I'm getting my head in the zone now, adjusting to the new pain regime. Doesn't feel so overwhelming now but I had a wierd experience today, a steroid flush, followed by a pain wave over my joints, then a rush of nausea and then I felt like I was going to pass out. Lucky my hubby came and rescued me and I went home and slept for 2 hours. Feel much better now after the sleep.
Never had that experience before.
My kids were being really sweet making me cups of tea and minding me.
Halloween coming up so exciting weekend for them. I love their innocence, a bit of face paint, a costume and they're instantly transformed, such a delight to be around.
Wishing you all a happy weekend, golitho
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