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Posted 11/9/2009 12:50 AM (GMT 0)
Hey everyone,

 

I'm new to this site and I'm kind of looking for some people to talk to. I have been suffering from chronic pain for 4 years. It started with a sebaceous cyst in my left arm. I had it drained but got a serious infection. It took several weeks for the infection to clear up but long afterwards I was still having serious pain. I saw 5 or 6 doctors over the next 2 years, none of them giving me a diagnosis but saying I needed to get over the trauma and move on. I was on and off of pain killers during this time, but they didn't help much and only took the edge off.

 

After two years the pain starting causing other serious health problems and I started seeing new specialists. I was referred to pain management and finally was diagnosed after having pain for two and half years with Type II Complex Regional Pain Syndrome (very similar to fibromyalgia). My symptoms have changed even since then and I have serious problems with migraines, muscle problems in my back, sleep issues, and basically have no immune system. I am currently only taking one medication for my pain which has worked pretty well. I am only 21 so the doctors feel, and I agree that I should try and stay on as few drugs as possible since I have a lot of years of having this disease. My health and pain have been really bad recently. I'm just looking for a little support and maybe a little guidance. I just want to get through this flare up so I can enjoy life before I have to deal with the next one...

 

Thanks!

 

in4thewin

Posted 11/9/2009 1:07 AM (GMT 0)
Welcome....

I am glad you posted.  You will find a very caring group.  Most everyone here suffers from some type of chronic pain and the associated issues.  I am sorry that you have had to good through so much at such a young age.  I think medical staff and people in general tend to trivialize chronic pain in younger patients.  I have heard some callous remarks - basically telling people that the younger you are the easier it is to "shake off" your pain.  Since when did pain and age ever run hand in hand.  If you older, it's ok to have and be treated for pain.  I guess younger people should just buck up while you are in intense pain.  I never realized a cyst can cause such pain post-infection. 

Posted 11/9/2009 1:47 AM (GMT 0)
In4thewin,

Welcome... Sorry that you are dealing w/ chronic pain, but I'm glad you are here. I have many of symptoms that you do, including "no immune system"...it's frustrating. I was sick in my early 20's, too... but, I got better...then have been dealing w/ pain/health issues since 30. So, I do know what it's like to be young and have a multitude of health issues. I don't have any really advice to give...but, more that I just understand where you are coming from.

From my own experiences, I agree that the more you can wait to start on meds., the better. Or at least use the least that you can. That being said, I also know how chronic pain can be and that meds do play a role w/ many people (including me). Do you have a pain management doctor?

Again, I'm glad you posted, and hope to see you here and get to know you. --Tina
Posted 11/9/2009 2:06 AM (GMT 0)
Welcome In4thewin,

I am so happy you posted but of course sorry for your plight. I have fibromyalgia and have had it for 28 years, so I know something of chronic pain. I know you will find many folks on here who are both caring and knowledgable, who will listen and support you throughout your good days and your bad.

So post often and let us get to know you and you get to know all of us. You have found a home if you want it, somewhere you can retreat to if you want someone to listen or if you just want to vent. You can count on us.

Hope you have a low pain day. God bless.

Lindaloo
Posted 11/9/2009 4:13 AM (GMT 0)
  Hello In4thewin! Welcome to the HW forum's You will love this place! thare are many wonderful people here, and lot's of good advice an support. I cant imagine starting at such a young age with CP. I think if I had any advice to give you, it would be to stay on a dosage of pain meds thats as low as possible. Becareful with them, as they can take a toll on you. Please  keep us informed here, and visit as much as you want. Don't be afraid to ask what you may think are sill questions. Knowledge is a big part of either winning the battle of CP or at least learning to live with it. Remember to visit often, and welcome to your new family. There are really come pretty cool people here. .......now Scram! :)
Posted 11/9/2009 6:35 AM (GMT 0)
In4thewin
I also want to extend a very warm Welcome to you, I am sorry that you have had to experience what you have at such a young age, but Pain has no boundaries and unfortunately some Doctors don't realize that! But like every one is telling you, You definitely have found a good place to come with your pain and all of its complications and complaints that usually go with it! Your not alone with your pain when you are here! We willl listen to you and share in your burden and give you as much support as you may want! You will find we all care about and support each other here on this forum, we are ........well.........Family! I do hope you join us and become a part of our Family!

I do wish you all the best!

White Beard
Posted 11/9/2009 12:02 PM (GMT 0)
Welcome to the forum Win!! You've stated that you are only on 1 med for the pain. I hope your doctor is helping you to deal with your other issues, migraines, the sleep & muscle aches. Have you had any sleep studies done? Lack of a good nights rest can really affect ones pain levels also some physical therapy may help with the muscle problems in the back. I don't get migraines but I've heard that alot of times that there are certain things that can trigger them. These may be a few things you could discuss with your doctor. Hope you find some relief soon.
Posted 11/10/2009 12:45 AM (GMT 0)
Hi and Welcome!!

This is such a wonderful family of people here...I'm sure you'll enjoy the friendship and help as much as I do. Without the people here I'm not sure how life would be right now.

One of your first comments on your doctor just stunned me. "needed to get over the trauma and move on." GET OVER IT? Since when did that prescription ever relieve anyone's chronic pain? Sorry, but I'm afraid I would let go on someone who said that to me...but at age 21 there is no way I would have talked back to any doctor. Even at my age...um, almost old enough to be your grandmother..lol...I still have a bit of trouble talking to specialists I have only met once.

I'm glad you have ways to connect to others, like the internet. Back when a lot of member's pain started the internet hadn't been brought to the general public yet. For me it's the best way to connect.

Hope you find some relief just knowing that a lot of people here do truly care about you.
Chutzie
Posted 11/10/2009 3:53 AM (GMT 0)
Thanks to everyone for responding! It is such a relief to know that people understand what its like to have CP. I know there are a lot of us but all of the advice really helps. Thank you!
Posted 11/10/2009 9:29 PM (GMT 0)

in4thewin
Hello...so sorry that you are here.  Or rather that you have to be here...WOW!!  Having such pain at such a young age is horrible... I truly hope that you don't have it for along time.  But you have your age as a plus... I'm 42, so I don't heal as quickly or as easily as you would.  Just know that we are here for you whenever you need us.

 

Rhonda

Posted 11/10/2009 9:59 PM (GMT 0)
I just wanted to say "Hello" and that I like"In4thewin" so cool and very hopeful..
there are a lot of nice people here...Have you had a brain MRI ??? just to rule
out other things that could cause headaches...Hope you can get a low pain day, soon!
(((((((((((((((((((((((((((((in4thewin)))))))))))))))))))))))))))))))))

hugz
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