Change of thought on Savella

Some of you know my husband has been dealing with Fibro.  We have been trying to find the right medication treatment plan.

This is our second time on Savella.  The first time last about 3 weeks but was discontinued due to side effects, rapid heartrate, shaking, sweating, irritable and many other things.  Well the doctor said to try again and bare with it.

He has now for almost 2 months now.  He seemed to adjust but we couldn't   The kids and I finally had to deal with his behavior. He actually told me he wanted a divorce.  Had me in tears this last week. He was so cold and just plain ole mean!   He was very self centered and cruel with the statements he made.  I was packing to leave the house the night before a pain treatment (monday) and all he did was sit in his chair eating and watching football.  So cold.

When he left for work when I was getting ready for work I decided to research some of the med combinations he was on.  I'm just so anal on that front.  Found out about the hostility, aggression and irritablility that this med can cause.  And that it reacts with his 24 hour ER release med!  I really think some docs need to research drug interactions before writing a script!

After my treatment I sat him down and showed him the drug information and interactions.  He still thought I was crazy and it was all in my head. (and the kids) He blamed everything on stress both our cars broke down.  And he was using my daughters car.  Ok yes that is stress but we have money to buy new cars.  Jeeze all we needed was time to find one.  (we both work alot)

I had also googled tappering this med.  It can cause some nasty withdrawls.  Its been two days now at half dose, even at that I see a huge difference.

My point of this is to tell all of you if a loved one tells you something is wrong PLEASE listen.  This has been so out of CHARACTER he is such a loving and caring man.  But he was convinced I was the crazy one.

So in this household no more SAVELLA!!!!!!

Thanks for listening to my rant

Laurie

Laurie

I applaud YOU! I do hope everything works out well for you! Some of these med do have some very weird side affects! I do hope that this is not a permanent side affect! I know when I was on Neurotin it messed up my vision, and it never did go back to what it was! Keep a close eye out and continue to observe for changes. Also I would suggest that you thoroughly document all of this, and continue to keep documentation in the future! You never know, it might prove handy to have, and possibly even important later on! I do wish you all the best!

Good Luck to YOU!

White Beard

 

   Dear Laurie,

 

      Good mornng *huggs* I hope you are doing a little bit better today. I am so sorry to hear of the termoil that has been going on in your house hold. And just before the holidays... I cannot imagine the amount of stress you must be enduring. *huggs*

 

     I am so glad you decided to dicontinue the medication. You are always making sure every aspect of your families health is researched and carefully planned. I hope your husband continues to improve.

 

      ...so, here is a random thought. If it is in error, im sorry. Dont mean to pry. !! to the point!! Last night I found myself wandering over to a post entitled "ultram?" (tramadol) and I noticed it was made in the "fibromyalgia" forum. It seems that ultram in very very low dose, is also used to treat fibromyalgia? I dont know if this is true or not, or even if your husband has already tired it. Was just a random thought. But I, just now reached the desired dose after slowly increasing it over the last month and half. It helps quite a bit for my pain. But I noticed a "common dose" of about 25mg - 100mg for the folks in the fibro forum? Anyway,  like I said,  I know nothing of fibro, but I know that in the beginning when I took 100mg the first 10 days, there was little to no side effects.

 

     Well, I wont chat endlessly, just know your in our hearts and we sure hope things continue to improve.

 

*warm huggs*

     dani

Oh Laurie, how awful for you to deal with. Its bad enough dealing with the toxicity of all these meds plus the lowering of immunity but to have to deal with personality changes too and such massive swings. You must be living on egg shells.

I'd definately go back to the doctor and sort it out, it obviously isn't the med for your DH.

Best of luck, especially in this mad stressful lead up to Christmas, I am so hanging out for that rest! It sounds as if you could deal with that too? Best best wishes, golitho

Laurie so glad you read up on this stuff. Some others on here tried it and has horrible side effects from it, scarey stuff. The problem we patients are faced with is these pharmacut. people hit these drs offices loaded for bear with their new miracle drugs. The dr or who ever is in charge of dealing with them gets a brief wonderful story on how fabulous the drug is and guess what thats the education they are given. The drs do not bother to really read about the drug, they skim across a brochure and thats it.

Hope all goes well and I sure would be calling the dr and letting him know what happened and what you all are doing. Hang in there. The person you described is not the man you told us about on here either, lol. Hope you get him back real soon.

Dani he is on Ryzolt which is tramadol (ultram) 300 mg ER release. He has fell in love with it. I also take it with percs for breakthrough pain.

You know I didnt' even think about christmas throught out this ordeal. Christmas will go on as if nothing happened or is happening. I require the holidays. I will start to cook on saturday regardless if the hubby is freakingout of not. Which I will love him to peices even if hes being a pain.

I'm telling you I love this site. When you feel pain or just stressed your always out there. Thank you so much for all your support.

Laurie

I had to stop savella affter a bout 4 weeks on it. It darn near killed me!!

Hi...my doc gave me Lexapro for Fibromyagia.  Within a week my vision was blurred.  I then became an emotionless drone.  It didn't help with the fibro at all and I decided to wean off...took four months of cutting the dose down then stopped at 2.5mgs.  My rheumy told me I shouldn't have any withdrawal effects from a 10 mg dose.  Wrong.  Besides the terrible brain zaps I have had for three months, the crying jags and irritabilty have made my husband nearly insane.  I'm surprised he hasn't moved into a hotel.  I understand this can go on for months.  Doctors have NO CLUE.  Mine gave me this SSRI knowing I was on NSAID's for pain...intestinal bleeding which I found out myself my after looking on the Lexapro site...NO NSAID's with Lexapro.  Also, my vision is probably ruined forever as the drug can do something to the muscle of the eye that regulates focus...found that out after continually going to the eye doctor for new glasses.

I just wish doctors had more insight to what they are  prescribing and do research on drug interactions etc instead of listening to what the drug reps tell them.  I know these drugs are lifesavers for some and have made a huge difference in their quality of life.   But Savella, Lyrica...SNRI's and SSRI's are potent drugs and before any doctor prescribes them, he/she should be more knowledable on what happens if you miss a dose...reduce a dose or want to wean off.  Sorry for the rant...I haven't been able to turn my head or move my eyes without getting electrocuted for three months.

Donna