TMJ Update!!

Hello my dear friends!! how are you all doing? My laptop is back so I will be able to join in on the conversations. i need an update on everyone!!

Myself, I came off my second cycle of ketamine infusion March 16. The first week of March I was doing so great. My pain was 7.5/10. That is good for me. But the last week and a half my headache is back to 9 and 10. Don't know why. My next cycle will start April 5. I hope things can get back on track. I have been up and about but the last few days I am not feeling great with the increase in pain. Also I am not sleeping great, having trouble voiding, awaiting a urology consult as I might need to do cathetherizations,  terribly dry mouth, going to look at getting some biotine products which help in saliva production. I will be talking to my dr. that is doing the infusions about seeing if I can decrease my Oxycodone as I am sure this is the major factor in all these problems. i feel like my body is just a terrible mess. I am certainly starting to feel down again! Going to get some bloodwork done on Monday to check liver functions and other.

I sure have missed you all!! hope you don't mind if I lean on your shoulders for a bit!!

Hugs

I too have wondered where you have been. Though we don't seem to converse often, I've appreciated your imput to so many threads. I am so sorry you have been in pain so badly. I so understand the feeling! My daughter-in-love has TMJ so badly that she is miserable all the time! I feel for her! The closest I can come to understanding constant headaches is through my own chronic migraines. I hope you will get the treatment that you need to help with this terrible pain. And please, write in anytime you can, we all love your imput!!
Take Care,
Catz4

Hello Suzane! As you know I have been a little under the weather here, so my support is a little slow right now. I'm getting better day by day though. I hope they can keep you on the med that has helped you lately. I know it is a struggle, but hang in there, and I will be back soon to my old self supporting where I can. Take care my friend and I will see you soon.

SE

Suzane-
So glad to hear from you. I was a bit concerned so glad we got an update. i am hoping things will go better this time around.
Cyber hugs to you
Catahoula

hello everyone. i am posting on a more joyous note. We are in Vermont for a four day holiday. i t is wonderful here. The condo is huge. The weather calls for sun at 78 degrees. i was in my bathing suit all day and it April 2. so hard to believe. My headache has not disappeared but it is is 8/10. The main thing is i am happy and laughing while here with my hubby, son and his friend. We are having a grand time. They are just loving their skiing. I wish that this could last for forever but I know it can't. When I go back I have to start my ketamine infusions again, but for now, i am trying to keep that out of my mind.

I hope you have each had a lovely day even if it was 15 minutes in the beautiful sun!!!!

Hugs

Thank you for all of your replies. They mean so much to me. Yes the trip was wonderful and it felt so good to laugh and smile and be happy for a change, even with a headache of 8/10.

But now the fun is over and I must start my cycle of Ketamine. I am scared, I wish I could be stronger than what I am. I just can't sleep, it's been a few weeks now. I must find out if there is something else I can do.
Please be there with me as I need you all badly!!! I will have my laptop this time so I will be able to keep in touch.

Hope you are catching more shut eye than I am and I will see you in the morning.

Hugs