~ ..Just complaining

      Dear Friends,

      I am not sure if I am venting or just plain complaining. Gosh, I am having a hard time with my pain levels the last 5 days. I had hoped that it would have eased up by now. I am normally at about 7 to 8 on pain scale, with about 4.5 hours sleep and only 10 or less "waking peroids" while sleeping.

      Right now though, its out of control. I am having a hard time with the pain levels. I have never felt it this bad before. I havnt had to wake 15+ times per "sleep cycle" since last year. Its hard to keep my mind straight and remember or get out a sentence. The pain is very overwhelming. Im sweaty, cold and nausous. It is hard to function.

     I have an appointment with my spine specialist reguarding my X ray findings (progression findings) and I think "introduction" to new specialist who also does deformities. It isnt until the week before I leave to travel to east coast. So 2.5 weeks away. I don't want to alarm anyone and I don't want to bother anyone when I already have an appointment.... But gosh ive never felt anything like this before. Its super hard right now to make my body work. Its hard to think and remember what to do or what the sentence was

     So I am not sure why I am even complaining. Ive got severe issues with my spine and one would think I would be used to this by now. Its just spread much higher than I am used too and its tiring me out very quickly.

      Thanks for hearing me rant. I hope I can make it till my appointment. I dont want to scare or worry my doctors. Its just spread so quickly. Also I hope that the genetic / chromosonal testing is approved this comming week. Heres hoping. Thanks for listening.

*hugg*

  dani

     Thank you friends, I really appreciate your kindess a great deal. It has been hard. I do take many meds, and most recently even my antidepressant was doubled to help alleviate the pain that had increaded greatly in the beginning of the year. And trust me when I say the antidepressant is a tuff one to get used to the side effects!  It was hoped that all thes testing, scanns and images would be done by the time I would go in. All the imagee, tests, scanns are all done, except for the genetic testing. I got a letter informing me my insuance company was requesting documents from my doctors before approving it. ...which it would have been nice of they told me they were wanting genetic testing in the first place, maybe I could have helped somehow?

      The pain increase is rather hard to deal with and it is tiring me out quickly. It is much worse than anything I have felt before now. Which is why I had thought at the beginning "Well, this is an awfull flare, ill have to remember to tell someone about the extensive increase at my next appointment". ...But here I am waking up to day 6 and... Holy #2 in a hand bag! This isnt good atall. Not good. I want to be able to make it to the appointment. I mean, it isnt like I don't already know I have a progressive spinal deformity... its, well, progressing. Not much more to say. Still this is certianly much harder than anything I have encountered before. One would think with all the medicines opioids and antidepressants, hormone & Nsaid pain reliver mix, stimulation... that I most certianly shouldnt be this uncomfortable. Argh. I hate my spine. This is stupid. Sometimes I wish I would just progress the last degrees and get it over with already... I hate my curves sometimes.  Agh, I need to think of something else, last thing I need is my body revolting against me AND a case of the blues.

   *huggs*

      dani

((((((((((hugs)))))))))

Loretta

     Dear Friends,

      When we sat down to eat supper my husband said I didnt look so good. And asked that if things didnt improve by monday that I call the spine specialist. We talked about it for a bit before he went to work and talked about how odd and different this is. 

      I havnt met the other fellow who will be eventually my primary spine specialist. But I have met and already had introductions with the other doctor. She told me repeatedly to not hesistate to call her if I need her. Though I hate to bother anyone.. if it doesnt gett better I will call her Monday. I just don't want to HAVE to go in early. The appointment in two weeks we will have to go over everything that was tested and done last 2 months, go over medicine, and talk about my up comming trip. So, not really in a rush to have a "big" appointment.

      No matter if I improve or not I do need to document the oddities and speak with them about the way this transpired and areas that seem most effected right now. One area is much higher than I am used to. One area in my lower torso is "hard ball" on the right side of my spine. The "ice" sensations on the inner parts of my thighs is annoying..... There are other "odd differences" which are troubling. So reguardelss will need to talk about this last week one way or another. argh. My body has horrible timing    Wish I could trade my spine in for a newer model with less milage on it.

      Thanks for listening to me complain and ramble on and on. I really apprecite it alot.

       *hugg*

          dani