I'm through with this!!!!

So, your kadian is your long term med that is is not working very well, and the Roxicodone is your BT med. As I understand it. Then what you need is a new long term med, and I'm guessing that Oxycontin will not be well suited for you since it had oxycodone in it., and this is what elevated your Liver.

So, I'm wondering if MScontin would be a better long term med for you. You would think that they would at least try another med for your long term relief, especially if they believe that your on way too much Kadian. I see that they do come in 100mg capsules, and that you are taking two of them a day. Do you break yours apart and sprinkle on your food or take them whole? I read where a person can sprinkle it on apple sauce and swallow it, as your not supposed to chew it. Have you tried this?
Of course, I'm just grasping at straws here, because I feel so badly for you. Anyone with back problems, understands full well how debilitating it can be.

I saw that you answered me at 3:42am this morning, so I know your suffering quite heavily. Also, do you keep a pain journal? .....and if so, maybe you can take it with you on your next appt to share with them.

Please keep searching, as there should be no reason for you to have to suffer this way, especially if it can be handled with meds.

I took my wife with me, on the last appointment, and I think it helps. I think you told me the last time you came to Wichita, you brought you're husband with you. Was he in the room with you, when you saw the PM?

My wife, saw first hand the fear these Dr have of the government crackdown around here. I think the PM you are seeing is very well known around this part of the country, and is getting a lot of unwanted attention.
You may want to see if you're PCD will be willing to take over your pain management or at least suggest a new one if your not getting any positive results with the current one.

I would be willing to even suggest my PCD, but with the seriousness of your condition, I would be willing to bet that he will refer you to a PM, but not the one you are currently seeing.

Take care, and I will be thinking of you. And my offer still stands....if you are in the Wichita area again, we would love to meet you and your husband. We can meet for lunch, and like I said our treat!

Privey and her Husband have been here several times, and we hope to fly to Canada sometime next year to visit tmjpain and her husband Red. A real swell couple!

My wife and I just inherited a 36' Winnebago motor-home from her fathers estate, and I would love to travel the country to meet several of the CP members. The thing looks like one of those big touring buses. However, we just can't afford it, and I have a few years to go until retirement. So right now, were in the process of selling it.

My PCD wants me to retire as soon as possible, and we are working on that plan as fast as I can, but I'm afraid age rules the game with that. Looks like I have another five years to go, at least :(

I never thought in all my life that I would wind up in this condition, and I'm not very happy about it. Not much I can do, other than to take care of the rest of my body, and hope for the best.

Are you, or you're husband close to retirement? I was always told, you never want to wish you're life away, but these days, I wish I was closer to retirement, while I have a few moving parts left.

Again, take care, and do please keep us informed on what takes place with you're next appointment.

Your Kansas friend,


SE

    Good morning Scarred! Hey!...my wife and I do go to that fair every year!

   We love going to it, and seems almost magical. Remind me when it gets closer, and we will make arangements to meet the both of you there.

      I hear every word you are saying in your post, and I feel the same at times, and think there is not much to look forward to for the rest of my life. All I can do is hope though.

        SE

hey scarred, i have not read all of both pages but i see you deal with some real peices of work for healthcare practioners. i have had my fair share but thank God my saint of PCD manages my pain. he is a internist and has a younger internest working for him who also does pain mang. according to my doctor the internal medicine doctors are being schooled in pain control and are expected to do it with patients they can get stabilized. this stratedgy is meant to gain control of the pain mang. problem in this country and improve the poor continuity of care with ther patients. i wish you luck getting to someone you have confidience in and a good personality and compassion to treat you. i see you take Kadian 200mg/24 hours for 5 years. you must have become tolerant by now to that dose. to pass your tolerance level the dose would start to get to the point where doctors get nervous, although technically there is no limit if side effects are not a problem. Kadian is good as a baseline drug because it has no immediate release effects at all and levels off maybe better that any drug on the market. since the roxi helped your pain noticeably well OXYcontin might be a consideration, although since they do UA's so much they usually want to use two separate drugs to see if your cheating, ha ha, what a joke it is. OPANA is a metabolite of oxycocdone-"oxymorphone" it is apprx. 4x more potent than oxycodone and OPANA ER is about as level as KADIAN but it's also more expensive. i think the combo i take might fit all your circumstances well. OXYCONTIN [your getting some of the more effective med. for your baseline] and DILAUDID 2,4,or 8mg for BRKT. PAIN HYDROMORPHONE is cheap and potent in generic form. about the sleep issue one would think that would fall under pain mang. responsibility. they could at least give you 50-100mg of trazadone or 4-12 of zanaflex for bedtime if it's not to much trouble for them. good luck, i hope you can slap them into shape.