~ Weekly Roll Call

I have nothing out of the ordinary going on this week. I'm praying that my pain is under control. Physical therapy this week and work. That's it for me!

Want to add--Dani, I'm thinking of you and hope your appt. goes well.

Hugs,

Flower

This weekend was both calm and quiet and then very busy and painful, but we made it through and it's Monday again.  I'm waiting on my tween to get out of the shower so I can help with her hair for the school day.....ahhhh....the Monday's of childhood.

So, this week will be ultra buzy with Dr apts on two days, getting the written results from the test I already wrote about and I'm sure seeing that Dr, then scheduling with a surgeon to do my hands.  I both look forward to and dread the hand prcedure, but I want this pain in my hands to get better.  I kind of know what to do about the back...what sets it off and what will help, but the hands have a mind of their own and I'm really having problems with that.  Honestly the ankles and feet are very painful too, but they will have to wait for a while...one day at a time.....

Today will probably be the quietest of the week, so I'm going to try to get all my "little stuff" done and rest a bit. 

I wish you all low pain days and low pain weeks!

Hello all,

I'm a bit too shy to start a new topic to introduce myself so this seems like a good place to do it!  Although I'm just introducing myself, I have been reading nearly every day for a long time and feel that I know all of you.  I am moved and humbled by your stories and your courage.

My name is Julie and I'm 39.  I'm happily married and have 2 kids - a 7 yr old son and 5 yr old daughter.  Needless to say, they are my world.  I was diagnosed w/fibromyalgia about 18 mos. ago although like most folks, I'm sure I've had it for years.  Since then, things seem to be falling apart.  Shortly after that, I discovered that I had a fractured tailbone but had no idea how I did it.  That has been over a yr ago and it's been terribly painful every day since.  In addition, I developed horrible pain in my legs and an EMG showed that I have perm nerve damage, most likely a result of the fracture my dr. said.  I also started having lower back pain, and an MRI showed degenerative arthritis, which really surprised me.

I have a bunch of other "conditions" that usually go along w/fibromyalgia as well.  I have to say though that I'm very fortunate to have 2 WONDERFUL doctors.  My rheumatologist and my neurologist/pain mgmt. doctors have both been w/me since the beginning and at every appt. I whip out my notes and list of questions and they both love it that I do that!

Ok, that's long enough!  Just wanted to introduce myself because then I'll feel more comfortable if want to post a response sometime.  You are all amazing and thanks for sharing your lives...you have no idea the impact it makes!  Even to "lurkers" like me!

Julie

 Dear Julie,

     I started an "Introduction" topic for you. Here is the link...

~~>  https://www.healingwell.com/community/default.aspx?f=16&m=1920252

 

Post Edited By Moderator (Dani Henson) : 10/4/2010 8:34:49 AM (GMT-6)

Oh I can agree with you about wanting a day back. Friday was relatively painfree (a 3 maybe) and Saturday I woke up for the first time without already feeling like something the cat dragged in.

So I promptly overdid it and spent Saturday night curled up on the couch hugged up to my heating pad, followed by a Sunday taking it easy and being called lazy for it. A followup call to the specialist had his nurse saying "give it at least another week" on the steroid shot and hedging on me coming back in because the doc's only there one day this week (and my PCP's nurse didn't bother to return my call at all).

Work was painful but at least there are sympathetic folk there. A coworker brought me crutches, my boss replaced my rickety desk chair with a nicer one & bought me a printer for my desk so I don't have to limp up and down the hallway all day long. Can I just stay at work? :)

On a plus side, even in pain, I managed two As and a B on tests I had to take over the weekend for college.

I've been having a really hard time with my anxiety & depression lately. Last week was absolutely horrible for me. I had a severe depressive episode/anxiety/panic attack one night & I thought I might have to hospitalize myself. Fortunately, my psychiatrist was there for me & together we came to a decision about how to resolve the situation that has been causing so much anxiety for me. As hard as it was for me, I resolved the situation this weekend, and thankfully, so far, this week has been much better.

My pain is about the same. Still better with the stimulator, but still there. Saw my pcp last week & we are going to try to taper my pain meds over the next couple months & see what happens. I'd love to be off of them, if possible. I only take them at night anyway, but just hate taking pills & I have to take such high doses, because my body doesn't metabolize the meds well... Hopefully the stim will be able to cover enough of my pain that I can get by without the meds.

Skeye

Post Edited (skeye) : 10/5/2010 6:55:49 PM (GMT-6)