White Beard said...
NikiS
What you have said does not sound good at all, and I sure don't understand why your doctor is not being more aggressive in trying to get to the bottom of all this. You may well have Lupus, but you could have something entirely diffferent too! And you should not have to suffer the way you are waiting to find out! I strongly urge you to seek a second opinion with another doctor, I know that being short of money can be hard, do you have any type of health insurance? If not have you tried seeing or checking out any free clinics in your area? You really need to get this diagnosed and treated, what ever it is you have. I know you want your husband to be more active in being your advocate, but if he is not then you really need to step up to the plate and be your own advocate! I know it is not easy and Doctors can often be intimidating, but honestly they are no better or different than you or me. They put their pants on one leg at a time just like the rest of us! An they are not infallible either, they can and do make mistakes, just like we do! So NikiS I urge you to go and seek a second opinion, if nothing else go to your local hospital ER when things get bad for you. You need to get this diagnosed and taken care of, you said you had a 16 month old son, do it for him, and for your husband if not for yourself! It is important! and come here as often as you feel you need to vent and get support! You are part of our family too and we all care about you!
White Beard
White Beard, i just saw this morning and started to cry. you mean so much to me! it has been so hard. i did go by ambulance to er locally finally sat night--had been in bed crying all evening and my husband couldn't stand it and called ambulance and told them they have to do something--really stuck up for me and it meant SO much! my hand is so swollen hard to type--apologize i am not writing better. my neck was so swollen it was out past my left ear! sores all over my head, in mouth, bruises everywhere, swollen hands/feet, etc... er doc upped prednisone to 40 mg! i could have hugged her!!! and asked what helped pain and gave me lortab 10mg so i can break in half and last longer too. i don't need much--just something because steroid is what really gives me relief. my grandfather just died of leukemia and very sick over 4 months and nothing show up in his bloodwork--16 days before he died finally showed up and put him in hospice because too late. when i talk to my aunt she real upset cause saying i have same symptoms as him. the pain from my head into neck and back is unreal. never had pain this bad except from lumbar drain after brain surgery. even birth of son--don't remember pain but had fever 103.5 at time but no epidural cause of tumor... no pain then. so i have high pain tolerance usually. frustrated my fam doc just don't get it. trying so hard to keep up with school and now can't even hardly type!!! wed last day of this class and 2 major papers due (one from a week ago!) and one wed and not done yet cause so hard to type or sit for too long. when i tell fam doc they upped prednisone dose i know he will get mad. scared to tell him but already getting a lot of relief from it yesterday and today (and from decadron shot in er). so tired of all this--so tired... so depressed that i can't get my life back and feel everyone watching me and no one helping--like drowning in front of a million people! love you all so much--you are only thing keeping me going other than praying so much that God give me strength and courage to keep going and fight for my son and husband's sake too. it would devastate them if something happen to me. nicki