I have some horrible problem, and I dont know what to do.

first, hello everyone. I'm new here..

This is akward. so I'm just going to post it. Please bear with me.

From the day I was born, I've had some sort of problem. Any time anything touches me anywhere, it causes extreme pain. This includes anybody else's touch anywhere on me, my own touch on most places, and even things as absurd as my hair being gently blown against my face. These things are painful, to the point where my muscles will start to convulse if i move my hand anywhere on my torso (though especially the sides.) only subsiding when i remove my hand.

Some time last year, I suddenly comprehended the consequences of this in a single moment: I will enver be able to enjoy even something as simple as a hug. Because thats how immensely painful it is.

I'm worried. I know howi mportant human contact is, and I know how much I desire it but..it causes intense physical pain, always. Without exception. Painkillers do absolutely nothing for this. Nothing does anything for this. I dont even have a name for it, all I know is, its not going away. And that makes me feel like my future is meaningless. I cant afford either a neurologist or a therapist to help me cope. I have no money because, well really, working is next to impossible. It feels pointless.

And thats it basically. pain over 100% of my body, for my entire life, all touch feels like glass or gravel or something. it hurts so badly.

I try to stay optimistic. really, I do. I never hate my life, though I do hate this thing thats screwing it up. I should say, things. Ive also been diagnosed with a minor mitral valve prolapse (Which makes me nervous about a heart problem which induces panic attacks which make me tense and strain which causes chest pain which...yeah. The problem itself does not cause pain to a notable degree.), some sort of bowel disorder, and something thats in one of those autism specturm dealies.

so, as for my question... "What now?" What do I do now? This question has kept me in stasis for over a year, and it shows no sign of letting up. And its just so exhausting.

Does this extend to your hands and feet?
When standing, does this put your soles into severe pain? What about your fingertips when typing?

Eating? Does food touching your lips and tongue pain? Sitting? Clothes?

Or is the pain limited to just some areas? If some areas are unaffected, it may be diagnostically relevant. What sort of doctors have you seen? Have you tried lyrica or gabapentin?

BTW, I too have mitral valve prolapse. Might your panic attacks be related to a form of tachycardia? If so, then a calcium channel or beta blocker may do wonders. I take the former daily and have now for almost 15 years. During my early 20's, I was having more and more episodes of tachycardia. They eventually became daily, and even multiple times per day. I finally saw a doctor when I was 30 and regret not having done so years earlier.

If you have not had a halter monitor test, you should speak to your GP or cardiologist.

Please make sure you have good health insurance as in the USA an echocardiogram
is very expensive and most insurances cover it at 80% if it's done in a Hospital
the charge will be over $2,000 for a 5 to 10 minutes test, then deductable applies
so last year our daughter had her's and the hospital charge over $2,000 which
we had to pay 20% of plus $750 deductible, but this test will pick up on heart problems
if that is suspected...many well wishes and do keep us posted...

I know that you have said that pain killers do nothing for you, but have you tried medications such as Lyrica, Cymbalta or Neurontin.

These medications are often prescribed to treat nerve pain and/or non specific pain such as Fibromyalgia type pain.

As far as not being able to afford to see a specialist goes talk to your area hospitals about their charitable care programs. Many times these programs will extend beyond care received at the hospital and include any care you might receive by doctors who are employed by the hospital.

Finally while the name brand medications I named are somewhat expensive their manufactures have programs in place to cover most or all of their costs for people who do not have insurance and can not afford them.

Hi Signal,

I am so sorry to hear of your suffering. I think the advice for finding medical treatment through a charitable program would be a great first step. Many states have free health care for indigent people on county levels. Also, if you apply for disability you get medical care while your case is being decided.

I hope this helps. Hang in there and best of luck!
Janet