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Posted 4/26/2012 8:33 PM (GMT 0)
I am just so upset right now and had to vent a little. 

I just went for my first appointment with the PM center on Tuesday.  I knew going into it they prescribe no pain meds on the first visit until they get the urine drug screen back, etc.  So at this point I have no pain meds because my ortho doc would only write for one month (even though I couldn't get in to see PM for six weeks) and I ran out of those Sunday.  I told the PM nurse practitioner this and she said she would call my family doc to see if she would write me a prescription to get me by until they see me again.

It's now Thursday and my family doctor hasn't even called me back.  I've called three times expressing how much pain I'm in.  I haven't worked since last week because I can't move my arms or neck.  It feels like I have been totally abandoned.  I've done nothing to deserve this.  I have always followed the exact orders of the doctors.  I've never abused any of my medications or any other drugs, yet I feel like I'm being treated like a criminal.  I have moderate to severe arthritis and stenosis of my neck at three levels, yet I can't get any help.  I'm losing money every day I don't work and I need to support my family. 

So I guess I'll just sit here and wait for someone to call me back in pain.  This is utterly ridiculous!

Posted 4/26/2012 9:46 PM (GMT 0)
StarMama this is so disgusting, CP patients should not have to go through this type of grief, Living the life of a CP patient can be bad enough. I do not normally suggest this, but here goes, do you have a decent ER that you could go to? If so, I would wait till all drs offices are closed and then go thru ER and see what you can get. Sometimes if you will say you are waiting on an appt they will give something. You know I was reading an online newsletter from a pain organization if memory serves me correctly a dr that has been rxing pain meds cannot cut a patient off until they are under the care of another dr that can take over writing scripts. The dr can say I will only write for 30 days but in many instances people cannot be seen in 30 days, so his 30 day rule is weak. You should turn the surgeon in and file a complaint, this may fall under abandonment if I read that article right.

Hopefully someone will call you in the morning, this is just wrong.

Take care...Susie
Posted 4/26/2012 10:19 PM (GMT 0)
I am going to complain on all these doctors once I get situated and don't have to worry about being labeled as something I am not. I've had chronic pain for the past 15 years and have to prove myself every time I get a new doctor. It's getting so old. I'm at my wit's end.
Posted 4/27/2012 2:03 AM (GMT 0)
Hello Starmoma, no you and no one else should have to go thru what we as cp patients go thru.  Would they to a diabetic, oh , wait until the doctor comes back next week, we cant precAribe for you until we hear from your doctor.  Of course not.  I am sorry you are suffering, please start writing your local politicians first, then after them keep going up the ladder.  I have had much success with this method.  Suddenly they have time to listen and respond, this is after threats to write the local papers.   I do no make idle threats, I move on these issues if I have not heard from whomever I have contacted.

We have to use the media the same way the people who want to regulate us do.  I have found even with these politians, they have family members who suffer from cp.

Good luck and take care,

Kathy

Posted 4/27/2012 6:43 PM (GMT 0)
It really sounds like at this point you don't know where the problem is.

You are assuming it is at your family doctor but unless you have proof otherwise the real problem could be at the pain doctor's office. They may not have called you family doctor as they said they would, and depending on how you worded your messages your family doctor may be left thinking you are drug seeking and does not want to get involved.

Regardless though it would be nice if they would call you back and let you know what is going on. By the way. Do you know for sure your family doctor is even in the office this week? I have had that happen to me on a few occasions. My doctor is out of the office and has another doctor covering but they will only deal with truly emergency situations such as those requiring an ER visit or hospital admit. Everything else gets left until the regular doctor returns.
Posted 4/28/2012 1:53 AM (GMT 0)
I've had the same type of problem before. I had a doctors appoinment that coincided with me needing refills on three medications that he had me on for over a year. Well, I showed up and he didn't. "No problem", I thought. I figured I'd call the next day and he'd fax the pharmacy refills of at least enough of each prescription to last until I got to see him on my rescheduled appoinment fourteen days later.

Nope.

According to his nurse, he refused to call them in until our next appoinment, which left me without the wellburtrin, levothyroxine, and tramadol that I'd been on for a very long time. It goes without saying that it wasn't a pleasant two weeks. It wasn't my fault that he didn't show up and it was inexcusable of him to have me on those medications for so long and then basically leave me out in the cold. I got very sick because of this and probably could have gotten him into a lot of trouble if I'd complained to the right people, but I didn't. Instead I gritted it out until our appointment and asked him why he'd refused to refill those prescriptions. He seemed dumbfounded. As it turned out, his nurses simply didn't relay my requests to him and he didn't have any idea that I needed the refills. At least that was his story. I've had no problems since then, but if I ever do again, I'll find a new doctor after I file a complaint against my current one.

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