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Chronic Pain
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Posted 7/18/2012 12:38 AM (GMT 0)
After being cancelled yesterday due to my PM not submitting the proper documentation I got the call this morning that I am back on for tomorrow. Enough to drive me crazy! Having paddle leads done so its slightly more invasive but I think the better choice. Of course today from mid thigh to toes I am burning like never before and I am all swollen, geeze!

I will let you all know how things go!
Posted 7/18/2012 1:51 AM (GMT 0)
Good luck!! Hope you get some relief fast.

david
Posted 7/18/2012 1:59 AM (GMT 0)
I'll be praying for you and hope that you will be one of the success stories that this at least puts a dent in your pain!
Posted 7/18/2012 2:49 AM (GMT 0)
Prayers and many Well Wishes..
Blessings that things go good.
Posted 7/18/2012 3:16 AM (GMT 0)
Best of luck Shell... will be thinking of you!

Laura
Posted 7/18/2012 3:31 AM (GMT 0)
…Shell!…we all wish you the very best as you head into surgery tomorrow! wink My first advice it to take care of yourself first, and then when you get to feeling a bit better on the recovery road, then come back and give us an update.

Take care,

SE wink
Posted 7/18/2012 3:36 AM (GMT 0)
Wishing you the best, Shell, along w/ everyone else. Take care of yourself... and I hope you have a safe implantation and a "relatively" easy recovery.

Update when you can.

Thinking of you tonight - Tina
Posted 7/18/2012 6:28 AM (GMT 0)
Good luck and Im praying for a fast recovery!
Posted 7/18/2012 7:22 AM (GMT 0)
All the very best to you Shell, hope this helps with your pain and gives you some quality of life back. Will be thinking of you.

Jane
Posted 7/18/2012 12:27 PM (GMT 0)
Thank you everyone! With such fluctuating pain levels its hard to say what exactly I expect. The week of my trial I had moderate pain levels and a good response. We will see! Fingers crossed for the best.
Posted 7/18/2012 2:14 PM (GMT 0)
Wishing you much luck today Shell. I hope all goes well for you and that you have an uneventful postop period. Check back in with us when you are up to it.

Suzane
Posted 7/18/2012 9:21 PM (GMT 0)
I am on my home and feeling ok. Not much worse than a super dupper really bad back ache. Give that a few hours and that will change I assume,lol. Right now I have full coverage from toes to right below the belt line. Minus the two small toes on each foot. Knock on wood it stays like this and only gets better. Unfortunetely, I have had 3 episods of being incontinent of urine since in recovery, hopefully just an irritation to the nerves in the lumbar/sacral area due to swelling. I am sure I will not be sleeping tonight and heading to the chat rooms,lol. Thank you all for the well wishes!
Posted 7/18/2012 9:44 PM (GMT 0)
Thanks for the update! Did you contact the Dr. about the urine issue just to let them know? I would do that as it has happened a few times to have it on record and have them let you know when it would be time to worry if they need to adjust something...

I will certainly say some more prayers that you continue to heal and have this really help with the nerve pain!

I keep forgetting about chat on here so will try to pop in as well!
Posted 7/19/2012 2:14 AM (GMT 0)
Good to read your update and glad today went relatively well for you.

:) --Tina
Posted 7/19/2012 11:09 AM (GMT 0)
Holy cow! Got in about 2 hours of on and off sleep. Now I am stuck in the recliner and cant get up. This should be one fun day,lol. Not a happy camper.

Thank you for the support!
Posted 7/20/2012 3:09 PM (GMT 0)
Shell

Glad to hear you are home and the implantation went well. The first few days are bound to be a struggle, probably no different to any op. Let's hope it all settles and you benefit and get a terrific result. Keep posting and let us know how you are. I will be thinking of you.

Jane
Posted 7/21/2012 5:13 AM (GMT 0)
Interested in hearing how you like your new implant....

I'm sorry I don't know why you got the SCS was it back or neck pain?

What does it feel like... do you feel it really helps relieve the pain... please let me know

Best wishes!
Posted 7/21/2012 3:56 PM (GMT 0)
It is way to early for me to make any conclusions. There is tons of swelling so sensations are very weird at this point. The SCS placement for me was for lower back/leg pain.

Right now I have superficial numbness from the waist down and occasional incontinence. I have very good coverage as far as I can tell. With certain setting I can feel the tingle from mid back to toes. Getting the right placement is key. My pain is widespread so often certain areas are missed, but so far so good for me. Its very difficult to get everywhere according to the drs. It should only get better as swelling goes down.

The feeling it gives me is sort of between the momment before your foot falls asleep and a gentle massage. The unit can be adjusted for different sensations and intensities, right now my programs are very basic. As swelling goes down these will be changed as needed. I have been told my rep will be my very best friend,lol.

I will be sure to keep everyone updated as to how things go!
Posted 7/22/2012 6:23 PM (GMT 0)
To those with SCS implants just wondering how long the superficial numbness lasted. Right now I have numbness from mid back to my toes while the unit is on. I can feel a pinprick but not light touch.

Also while the unit is on,if I stand up after sitting for a while I have urine leakage, sometimes alot. Does that sound familiar to anyone? The dr is aware but didnt seem concerned.

Also wondering about levels, how often do you need to increase your program on you remote? Just seems I adjust to the level very quickly and need it higher to even notice it. And thats not related to position changes, thats sitting in one position.

I do understand that programming will change lots over time and right now epecially due to swelling and healing. Just wondering what to expect.

I have a follow up the end of the month and can contact my rep any time. My rep in actually going on maternity leave any second, so I have 4 other people on call, 2 of which I have met allready. Just looking for some real life experiences to give me some insite.

Thanks all!
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