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A question for Purgatory

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Posted 10/16/2012 6:32 PM (GMT 0)
Hey David, some days my brain works and some days its on vacation, lol. Apparently when I posted to you on another thread my brain was on vacation because I forgot to ask you what your dr was going to give you for the stomach cramps?

A good friend of mine started having severe stomach cramps (she doubled over in pain when they hit) and loss of appetite which yielded sudden weight loss. She had a scope done and it came back ok. Her dr put her on what she called a tranquilizer that she took at bedtime. I just remember after being on it a couple of weeks she did much better.

Take care.....Susie
Posted 10/16/2012 11:00 PM (GMT 0)
I can't answer this for David, but I know there is one that my mother calls a "little green pill" that was a salvation for her. I believe it is called clindinium or something like that. I know the spelling is way off and that is the generic form, but it is a small green pill and relaxes the flat muscles in the stomach rather than something like valium. Bental may be the non-generic name, but I'm just not certain.

Good luck to your friend (and to David).
Posted 10/16/2012 11:56 PM (GMT 0)
Susie,

After many hints and prodding to the Gastro dr (He's on my "s" list now), he put me on dicyclomine 10 mg pills. He said right up front, it may or may not work, suppose to be for stomach cramping. After trying it for 5 days, I stopped using it. It did absolutely nothing, not a thing.

As far as a relaxer, I have been Tranzene for over 10 years. I take a single 7.5 mg pill about 2 hours before I want to go to sleep. What it does for me, is to slow down my brain, I have that run-away-thoughts syndrome at night and can't relax. It works well for me, its cheap generic, and prepares me to get sleepy. When I am ready to go to sleep for sure, I take my Ambien 10mg. Been on Ambien for over 12 years. To this day, it absolutely works for me, and within 15 minutes top, puts me out. Couldnt get by without those two meds, its the only way I am going to get sleep. Even with the meds, its rare for me to have more than 5 hours sleep per night. But that's another story.

Thanks for thinking of me,

David
Posted 10/17/2012 2:55 AM (GMT 0)
Hi David,

I just wanted you to know I have been thinking about you. I am sorry that the medication didn't help with your stomach cramps.

When I asked if they'd checked your stool for parasites I believe you said no that hadn't been done. If it were me in this situation I'd call my Dr and ask that they check a stool sample for parasites.

I've had both salmonella and giardia, I would eat and cramp up terribly, and would have to run to the toilet. I lost a lot of weight with both cases. It's just a thought, I just hate hearing that you hurt so much and you aren't getting the nutrition you need.

Keep us posted.

Hugs,
Barbara
Posted 10/17/2012 4:40 AM (GMT 0)
Still not a bad idea, Barbara,when I talk to the doctor again. When I have the cramping from eating, it doesnt usually make me run for the toilet. But when I have cramping from needing to go to the toilet, my reaction time is very fast, almost haven't made it a few times, which makes me nervous if I am out.

The cramping from eating, is less on the pain scale then the cramping from needing to go to the bathroom, if that makes any sense

david
Posted 10/17/2012 1:06 PM (GMT 0)
David

I too have been thinking of you. My brain is mince just now. I am thinking that you must have a big appointment coming up soon to decide what's to be done to help you. Am I right?

Anyway I hope you are doing as well as you can be at the moment. Praying that they have a good plan in mind for you, something to stop the weight loss and make you feel a whole lot better.

Take care

Jane
Posted 10/17/2012 1:09 PM (GMT 0)
Jane,

I have a scheduled normal meeting with my oncologist on the 28th of this month.

However, its been over a week since I sent him a 3 page update after my last visit with the Gastro doctor,
and so far, not a word back. My doc is usually great about getting back to me by phone or e-mail or through his nurse.

Meanwhile, still have the same issues, with no explanation or diagnosis, and no solutions in sight. Starting to feel like its hopeless, and it will be one more poor QOL issue to deal with.

David
Posted 10/17/2012 6:32 PM (GMT 0)
David

Roll on the 28th. Why can't all the doctors get together and have you in and be part of the discussion about where to go from here. I don't understand why you have had to wait so long.

I know you are not in a great place just now but please never give up. Keep fighting. I know that is easy for me to say but I know life for you is anything but easy. You have many people who care for you and are behind you 100%. Try to draw some strength from that, i am sure it's not hopeless. I hope you have a good and fruitful visit with your oncologist. We will be thinking of you and behind you all the way.

Hugs

Jane
Posted 10/17/2012 6:46 PM (GMT 0)
David, I am sorry to read that the medication did not help with the stomach cramps. I am fortunate that this particular medication does help my stomach cramps sometimes. If I am in a bad flare with the crohns nothing but knocking me completely out takes care of anything. Perhaps you can talk to your oncologist about this since the gi has bombed. Believe me, there are lots meds available for stomach cramps.

My friend I spoke of earlier was having a lot of personal problems and she ended up I guess with like a nervous stomach that caused the severe cramping and like I said her dr put her on what he called a mild tranquilizer that she took at bedtime and it worked like a champ for her. I sure hope you can get something for this.......Susie
Posted 10/17/2012 7:04 PM (GMT 0)
I've also been praying for you David!...

As Stray mentioned, there are quite a few options for the stomach issues/diarrhea, as well as medication to help stimulate your appetite..

And I know I sound like a broken record...but I just think you are way past time that if you spent a week or two in the hospital getting any appropriate tests and having as many Drs. as it takes to look at you and your situation, all the while getting you the nutritional support that you must need at this time with the continued weight loss.

I know no one wants to be in the hospital...but to have this going on for months and having it drag out all the while you are getting more and more sick and unhealthy it seems necessary. You shouldn't be having to wait weeks for results and trying new meds. They could be trying something, and then you would be right there for them to monitor whether it works in a few days, then on to the next thing.

I'm just scratching my head why not one of your Drs. thinks this is the way to go and it not being an emergent situation as they are leaving you at home suffering every day with pain, severe weight loss, losing valuable nutrients, and all the stomach/intestinal issues.

We all just want the best for you!!
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