Not a pain issue directly, but I know many of us are on disability. Maybe you guys can be of help...
Ugh. Spent an hour on the phone with Medicare a few days ago trying to figure out coverage and what's best for me. I was lucky enough to be approved for disability within weeks of applying. I was also awarded disability thru the school system where I was a middle school science teacher for 11yrs. Right now I'm paying $700+ for my son and I thru the county school system,. Medicare would be way cheaper-about $100 monthly. I gave them my med list and was told which prescription plan works the best for me. It's all so overwhelming. I'm scared of making a mistake and having it affect the quality of my care. I didn't sign up today. Just wrote down all the info. The insurance I currently have has no limitations on physical therapy. Since the jaw replacement 2yrs ago, I have pt 2x a week. This is to prevent the muscles from spasming shut. I also have lymphodema therapy to reduce swelling. Medicare has a pt cap of $1000. I'd reach that in a few weeks. The Cytoxan and IVIG is also covered by my current plan. I was told my dr would have to request compassionate usage of the infusions to Medicare. Also, I also need to sort out my son. Wish his dad wasn't so unreliable. The best situation would be for him to cover little guy. He would have to be covered by Medicaid. It's also upsetting. Once again I have to face the fact that I'm not teaching. I so miss it. Each and every day. I have been looking around and thinking about a part time job. Dr said to wait until after the holidays. He is concerned since two weeks after I get the Cytoxan, my cell count tanks. It's supposed to-but it's dangerous for me to be out around large groups of people and their germs. I haven't gone 2months without being inpatient. Hoping we can break the hospital cycle.
I just don't know what to do.