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Monday Check-in....

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Chronic Pain
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Posted 1/28/2013 4:15 PM (GMT 0)
Hey all,

This is the place to check in for the week.... to let us know how you are and what you've got planned for the week ahead.

Take care everyone.... --Tina
Posted 1/28/2013 5:41 PM (GMT 0)
Gooood Morning! -Well, from this part of the world. wink

Today I'm going for a gastric emptying study to validate my DX of Gastroparesis..(I'm on the slow side.) Tomorrow I'll making a drop from 10mg oxycodone every 6 hours to 5mg oxycodone every 6 hours. I'm weaning myself down by choice because I'll be starting at the pain clinic when I turn 18 in a few weeks and I'd like to be off everything so he has a clean slate to work with. I was on a 50mcg patch and 15mg oxy every 6 hours when I started to wean down! Oh, and I have my MRI on my brain today also to check for a brain aneurism.

Well wishes to all for a low-pain day! yeah
Posted 1/28/2013 5:48 PM (GMT 0)
Im sewing checkered flags for the speedway. One hour at a time, rest my back, sew for 30 minutes. Done for the day.

Betsey
Posted 1/28/2013 5:58 PM (GMT 0)
Tina thanks, I forgot it was Monday with all thats been going on with my daughter and grandaughter.

Holdon,looks as if your plate is full this week and I wish you well with your take down and finally getting to go to the pain clinic,hope they are able to help some. Also good luck with your MRI and heres to not finding anything!

For me pain levels high as stress will do that to you,trying to just sit and read and relax,do a little laundry if possible and get this pain down to livable. Can take more meds as he allows me way more then I want to take gotta stay out of the "methadone zombie mode" as my kids use to call it when I didnt know better and took whatever they gave me how they told me to take it and fall asleep standing up!! I was still naive enough to think that pain free was a reality. Lol

Anyway, its warm and sunny and 78 here in Florida today bbut we have a cold front moving in for the latter part of the week with highs of 63 and lows in the low 40's,more pain for these bad knees.

Hoping everyone has good pain relief this week and be kind to yourselves and each other.

Vickie
Posted 1/28/2013 6:10 PM (GMT 0)
Good afternoon all!….thought I would give the internet a try today, since Im home today. Still having computer problems on mine only, and do not have the funds to get it fixed just yet.

Lots happening with my health, and finally got a report back from the pump Dr after three months! LOL
Dr said he is willing to try the pain pump trial when I felt I was ready again. Yes, back problems are back with a vengeance. However it is and will be a very last resort for me here. I want to put it off as long as possible. My Dr said I need to seriously consider SSD in the future, but again I want to work as long as possible.

Ok!…three tries to post this, so I had to shorten it a bit. Grrr! GRRR!

SE
Posted 1/28/2013 6:58 PM (GMT 0)
Hello all...
I had my first cervical esi Friday and so far, so good. I still have pain at work (I have a desk job....not good for the back) but my arm pain is gone already. That is making a big difference. ;oP

I am hoping everyone has a great week!
Posted 1/28/2013 7:19 PM (GMT 0)
Went to the Houston Car show on Saturday, it was dis-appointing, only one Ferrari and that was a formula1 race car, no other Ferrari's no big bad names cars, no Lambo's over all dis-appointed, and caused pain looking for those cars..Did see an older BMW with the front end opening, did like the BMW X1 over all and it has some good gas mileage, almost as good as the Mazda CX-5 but the CX-5 won, what I'm waiting for is the Mazda5 minivan to get better gas mileage and automatic slideing back doors (ya know push button controls)and well they sell the slideing doors up in Canada, they need that tech down here in the USA, cheap out the USA cars don't they...shame on Mazda.
Also they need to know how to answer the hard questions at these car shows, and mine was: with Texas having 85mpg on Hwys at what mileage does the gas start going down fast? like my Pontiac Vibe start dropping gas mpg's really fast when it hit's 85mpg's, so at what mileage point do these new cars start falling fast? it's not that hard of a question, really...And also at what mpg is their mileage for their sticker price now, y'all do know it used to be based on 55mpg up until 2008 or so, shocking...that's why y'all don't get the listed mileage...
Anyways, I'm hurting from this car show and looking for those few cars that you can't see every day, what a bummer...always nice to look at those cars that cost over $500,000+ but where were they, come to Houston!!!!
Train show is in February gotta rest up for that...
Many well wishes
Posted 1/28/2013 9:08 PM (GMT 0)
I'm at the 2 hour mark for my stomach emptying study and I was just informed that the food has barely moved at this point.. Won't know the full extent of it for another 2 hours.. I expected this but am still quite disappointed.. shakehead
Posted 1/28/2013 9:22 PM (GMT 0)
Good Afternoon!

I am here. I have been in bed for most of the weekend, because of pain issues, as well as fatigue. This week I am hoping to have my stamina built up. I dunno how successful I am going to be, but I am going to try at least.

I also need to get myself into see a primary care doctor. As I need to get my thyroid checked due to the fatigue. I also need to get a full workup done.

That's it for me! Hope everyone else is doing as best they can.
Posted 1/28/2013 11:15 PM (GMT 0)
Me too, Blue. Knocked car into ditch Friday night. No injuries or car damage, but lots of pain from tensing body. Spent the weekend in bed.

Tomorrow seeing gastro for med adjustments and hopefully food sensitivity blood work, as well official response to colonoscopy, and rheumie on Thursday for more scripts and check-up.


<---Tired.
Posted 1/29/2013 1:20 AM (GMT 0)
Hi everyone I have an appointment Wednesday with my counselor, and an appointment to get my blood drawn on Thursday.

This past weekend was full of worrying about not being told about the chronic kidney disease that was listed on my paper for the blood draw.

I'm so tired, and I have been sleeping well. I'm wondering if my kidneys are causing it. I've gotta do some research on this.

Take care everyone. I hope you're having the least pain that is possible.

love and hugs
Loretta
Posted 1/29/2013 2:48 AM (GMT 0)
I don't have much time or brainpower, but I thought I'd check in quickly & let you all know what is happening!

I started back at school last Monday. To say that it was an insane week was an understatement. It's tough to get back into the swing of things after a year off -- waking up really early (especially when you have no energy to begin with), long days in class, tons and tons of work... Not to mention that BOTH my dogs got injured last week (independent of one another), and because their injuries are both to their feet, it is very time consuming, as I have to soak and wrap their affected feet several times a day, and put booties on them every time they go outside. It was between -10 and 10 here all last week (without windchill) & has snowed just about every day, so that in itself makes life difficult with dogs.

But all in all I'm fairly happy with my performance so far. My eyes are definitely taking a beating -- pain is way up, and muscle function & vision down, but this was expected. I'm way behind on personal things like HW, and email, as I both haven't had to time & haven't had the visual ability. The school does give me some accommodations, which does help.

Anyways, break over! Back to work, then bed & repeat in the AM. I can tell you one thing, I did NOT miss 8 am classes.

Hope everyone is doing well, and has a a good week!

Skeye
Posted 1/29/2013 3:24 AM (GMT 0)
Let me see...

Last Friday, we had a small ice storm here in SC, first in 3 winters. Stayed home, very tired and achy, mostly was in bed - unsual for me. Picked my wife up from work, as she doesn't do well driving on ice, etc.

Saturday, minor shopping, interrupeted when wife got called into work for an emergency

Sunday, mostly stayed in bed, lots and lots of severe back aches.

Monday, 2 small consulting calls, lunch with ex-boss, then home with lots of pain, went back to bed.

Life is starting to get overcome with more and more pain, poor sleep, etc, probably like many here, not much to look forward this moment. Another day, just means another day of pain. Long nights of bad dreams, broken sleep, and waking up in pain.

Yeah, I know, not a very positive report, but an honest one.

Hope most of you are doing better than me

david
Posted 1/29/2013 4:10 AM (GMT 0)
My daughter has bronchitis and I can't get up to her and I'm a wreck right now, just found this out, she called her dad, sure could use prayers...at least this time she told the doctor she has a heart condition, I keep having to remind her of that (she has Aortic Stenosis).
so wiped out, sorry...
Posted 1/29/2013 4:56 AM (GMT 0)
Chartreux, your daughter has aortic stenosis? I also had that along with my aortic aneurism & they had to go in and take away that part of the aorta and reconstruct it with arterial grafts. What are the doctors doing for her aortic stenosis? Meds, watching closely, ect. Also, does she have high blood pressure that accompanies this?

Many well wishes & prayers for you and your daughter.
Posted 1/29/2013 4:12 PM (GMT 0)
Well I received my Benylsta on Friday and spent the whole weekend in bed. I gave myself my shot for my blood thinner and ended up with a bruise covering my whole belly.

Was totally wiped out, weak, and short of breath. I was admitted last night for my next infusion of cidiovair. Most likely, will be in the hospital until Thursday.

Chart you're daughter is in my prayers, I know how hard it is to be away from our girls when they are sick. Please keep us posted on how she and you are doing.

Well wishes for all this week.

Hugs,
Barbara
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