chronic low back/hip pain and burning pain in right neck. also days and nites messed up!

Help

I have read all of your wonderful comments and advice . I will try to share the short story. At birth had problems but family had no health insurance and so when my dad went to work for ASP, we still had a year waiting because of the (pre-existing) condition.

So at ripe old age of 5 I could not stand straight. Started when Dr in Little Rock could not help so we were referred to Dr Walter P. Blount in Milwaukee, Wisconsin. The inventor of the Milwaukee Brace. In fact my case of scoliosis and degenerative bone disease was so advanced that I saw him for 4 years where he fitted me for the Milwaukee Brace. I wore it 23hrs a day and at age 9 they operated on me in Memphis TN by Dr. Alan Edmundson. They were not able to use the steel rods so soft cartilage was taken from my hip and was grafted onto the vertibrate. Wore full body cast for 13 months.

To my problem. FDA & DEA have become so involved in things they know nothing about. I left Nevada taking 4-100mg Kadian, dilauded for BT pain, some, and robaxin with 10mg flexeril at bed time. There was not a pain management Dr. in southwest ARK that would even see me once they got medical records. Had to go to Texarkana and then finally to Little Rock when they opened a clinic.

At the age of 22, I was prescribed Darvecet, SOMA Robaxin and nitely flexeril and was told to Look forwalrd to this life.

At the age oaf 17, I quit wearing the brace and worked from 1981 until June of 2004. I was medically retired.

I have had my medicine lowered
In dosage amounts but with more frequency of taking what I get. Currently MS contin er,diazapam, Baclofen, and oxycodone for BT pain. I never take all that is prescribed as I want to know what goes on in my world.

The PROBLEM been taking some type of these medications for last 15 to 15 1/2 years. Any suggestions I could bet the DR. To try would be greatly appreciated. How bad is my case you might as? I was one of the featured patients in Dr. Blounts a book with before and after pics with the brace. I need a new direction but not sure where too start. I need to find something that subsides the pain to a tolerable amount. I know nothing can ever take away all the pain just need it bearable so I can watch my last two little boys grown. They are 8&11. Any ideas and suggestions. Current DR. Is super nice and seems to really care.
Thanks
ARMAN

Arman,I tried breaking your post up into paragraphs to make it easier to read for those of us with tracking problems.

Post Edited By Moderator (straydog) : 2/2/2013 11:19:33 AM (GMT-7)

Hi Arman & welcome to the chronic pain forum. You started your pain journey at a very young age from what you have written above. I know of a lady that had a little girl born with severe scoliosis and when she turned 16 or 17 she was finally cleared to have the Harrington rods put in to straighten her spine. It was a brutal surgery but this kid bounced back & was thrilled to be able to stand straight for the first time in her life. So your story is a little familiar to me. I have a question, I wonder why your folks didn't check into one of the Shriners Hospitals or St. Judes. Both are childrens hospitals that do not require insurance or money. They may have for all we know though.

I am guessing from what you described they did a fusion on you. You said your are on MsContin ER, is this not helping your pain? You talk about wanting something that will help the pain but let you remember things too. I see you take Baclofen & Diazapam and these two taken together could be the source of your problem. What milligram are you on with these two?

You know its really hard to say what pain medication would help you because we all metabolize these medications so differently. What may help me, may not do a thing for your pain. The best thing to do is just sit down and talk to your dr and let him know how your quality of life is not all that great and you need his help in this area. Its good to hear that you have a good dr, you sure want to hang onto him. I have a feeling that pain mgt is going to get a whole lot worse before it ever gets any better. Thats why I say, if you have a good dr, hang onto him for dear life because he may become your lifeline.

Take care.....Susie