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Posted 4/22/2013 2:36 PM (GMT 0)
Hey Everyone....

This is the place to check in.... let us know how you are doing, how your weekend was and what you've got planned for the week ahead.

Hope you all have the best week possible.... Take care --Tina
Posted 4/22/2013 2:43 PM (GMT 0)
Friday: Was supposed to start my iron infusions; they couldn't get a line in me, despite 13 attempts.... so now they are sending me to get a permanent IV port this week. Praying this quickly all falls into place, that the procedure goes w/out a hitch - and I can get these infusions started.

Weekend: Despite feeling lousy - was already committed to a zillion things and tried to push through them all. Involved painting some rooms and lots of other things that I really had no business doing.... by yesterday, I was not in a good place - physically or mentally. Thankfully I did have a good night's sleep - so we will see how today goes.

Anyway, that's my update :) Hoping to hear from the doctor - and get the port-a-cath put in this week...

Take care everyone. Wishing you all low pain and a good week.

--Tina
Posted 4/22/2013 4:07 PM (GMT 0)
I have been having lots of pain in my legs and feet. The pain pills only help a bit. The weather has been rainy, doesn't help much. I am taking ibuprofen and lyrica as well as the oxycodone. Tough feeling this way.

Anyway, thanks for letting me share. I miss you all.

Lindaloo
Posted 4/22/2013 5:28 PM (GMT 0)
Hi Everyone,

Happy Earth Day!

Tina: Sorry about the problems they had with the iron infusions. Hope they get through with the IV.
Linda: Hope you get an ease with your pain.

My weekend was quiet. Didn't go to physiotherapy. I didn't feel like I had the energy to go. I've been feeling very sad and hopeless lately. Hoping this phase will go away soon. I haven't been to PT for the past three weeks. The pain in my neck and lower back has been increasing. I called the physiotherapist this morning and scheduled an appointment for Saturday.
No major plans for the upcoming week. Just at work as usual.

Wishing everyone a great week ahead.

UA
Posted 4/22/2013 6:09 PM (GMT 0)
I feel good today so a nonmedical agency called me and at 4:30 today I leave to go to an elderly couple house to cook them dinner and then clean up the dishes and leave at 7:00.  Im a good cook and I can throw together nutritisious meals.  I dressed really nice because I understand their house is gorgeous so I took an apron along.  I will see how I feel after doing that.

Betsey

Posted 4/22/2013 6:10 PM (GMT 0)
Going on third week without methotrexate, everything is swollen and hurts more despite getting a steroid injection in the rear. Just dont know how much longer I can tolerate this, I' m trying but its so very hard.
(Was taken off the mtx due to see if that is causing the macular degeneration that I have). I see the eye doc on June 19 th...this is so frustrating and I' m also having more muscle spasms in low back. I had 8 spasms in Target the other night and I was in there under 1/2 hour...So I wonder if perhaps the RA was causing some of my back pain.
Posted 4/22/2013 7:55 PM (GMT 0)
Hi everyone, I hope everyone starts feeling better.

I had a crappy weekend. I had to call the police on my neighbor Friday night. The little punk kid from next door (we are attached with a garage separating us) decided they were going to park in my driveway and started mouthing off to me when i told them to move it. He was actually starting towards me until he seen my husband walk up behind me, then he hurriedly took off and didn't even come back.

Saturday sucked too, we were out trying to enjoy some trains and the rear drivers side wheel bearing almost broke off. Luckily i was able to drive it to the tire place that we were close to, but it cost $130 to fix it. That's on top of having the sway bar link and a wheel alignment and 2 tires that we had to get done on it on Thursday. So i was pretty much wiped out Sunday. And I've had heartburn all weekend on top of everything 8-(

On a good note though the rain and moisture are letting up for a few days so my pain has kind of leveled off finally. (knock on wood).

I pray for everyone to have as good of a day as possible.
Posted 4/23/2013 12:49 AM (GMT 0)
Hi Tina, and all other sufferers of cp. Saw my gp on Friday for what I suspected was a bruised rib. Turns out it is maybe cracked, maybe bruised, and the best part, nothing and I mean nothing can be done about it. Some ice some advil, that kind of thing, which I cannot take any of due to stomach problems. So I put my Volteren gel on it that I use for all other places on my beaten body that have any inflammation problems, like arthritis. Dont feel much different, put its getting better on its on due to the fact that its been going on 2 weeks now.

Other than that, we are all on high alert waiting for Madison Drew Lawrence to make her way into this world. I am working on acupuncture spots on the bottoms of her (Sara's feet, not Madisons) anyway I am so ready for her to get here.

All for now, Bless all,

Kathy
Posted 4/23/2013 1:53 AM (GMT 0)
Hi all! A lousy start to my week when I awoke with a very swollen knee and more pain then usual. Have not had this particular problem since the last knee scope and plica removal 5 years ago. Hoping this isn't a reoccurring problem and really I guess I've been lucky to have gotten 5 good years out of the scope.

Made it thru hydrotherapy and trying to keep it up. Will see what happens this week and make appt.with Ortho Dr if it doesn't resolve itself.

Hoping everyone is doing well and off to a better start to the week.

Vickie
Posted 4/23/2013 3:43 AM (GMT 0)
I got a lot accomplished this weekend - more than I thought I would. The in-home salon, kitchen and laundry room are completely painted! I got the two coats on the living room walls, and about 40% of the ceiling painted, then ran out of paint - Thank God! DH will pick more up sometime this week, but I am done working on the house until Friday, as I have work the next three days.

We found out last night that our new flooring that was supposed to arrive today would not be here until AFTER May 1st!!? So we cancelled the order and had to drive two hours each way to find flooring stores that had what we needed in stock. Of course, we didn't get flooring quite as great as our first choice, but I'm sure it will be fine. It was a really long day and I had to drive all the way through Seattle traffic, which I hate doing, because it really sends my pain upward - on top of my painting ugh that I won't even go into, I'm claiming traumatic amnesia. We did, however, end up spending almost $700 less on the flooring, and we now have it for installation beginning this weekend. I can't wait to see it all come together!

The only other big thing for me is my appointment with the PMD on Friday - I am going armed with a list, and planning to ask her - what is your goal for me??? If we can't come up with a good plan to get my pain lower and my life more active then I will need to decide to move on. She has helped me, but I feel we are stalled and her fear/dislike of drugs is coloring her management of my pain.

Hope everyone has some fun this week - any way you can!
Posted 4/23/2013 4:53 AM (GMT 0)
I have been in terrible pain all weekend. I saw my GI today and if my insurance will cover it he will up my Humira to once a week. I called the pain doctor and they made me an appt for Wed. The nurse didn't get that it is the same pain I have always had and kept wanting to say it is UC pain. If it was UC pain this weekend then it has been UC pain the whole time. Same pain, same spot, same sensation, just stronger.
So I have tons of doctors appts this week.

I have lots of stress also. My mom is still in the hospital and every day there is new drama with that. I got two incompletes in school and I have to finish up the work for those this week. I waited to late to start because of being sick and all the other stuff. I was in too much pain to go to my cousin's funeral. I thought my sister was going to go but she didn't and if I had know she wasn't I would have made myself. I am also trying to go back to work in the morning. I am worried my mom will remember my work number and cause drama at work. So much to do and so little left of me to do it.
Posted 4/23/2013 8:57 AM (GMT 0)
My weekend consisted of me having to use my crutches as my pain levels were insane :(

I have been feeling weird and panicky more than usual and wanted to hide from the world all last week. Saturday night I got up and had a shower, put on some mascara and lip balm and dressed comfy yet slightly appealing for my husband. We and his family went to dinner and a movie, then my dh and I went to the casino where I tried to play a few slots. We ended up going home with a little money than we had going in. Which was nice. The rest of the weekend ended nice. I was feeling good Sunday and Monday and cooked for the family. (His parents and sister. We live with them )

Anyone else get the panic feelings or the hide from the world as I'm so sore and exhausted?

-Everyday is a blessing and not a given right -
Posted 4/23/2013 2:37 PM (GMT 0)
Hi PerfectDisaster, I too panic. Usually I retreat when this happens. Before medication it got to the point that I could not leave my husband's side. He had to go to work with me and school etc. It was very stressful because not only did he have to be there for my work shift but his too. (We worked at the same place). Since medication I am much better. I rarely have panic attacks. Since I am under tons of stress right now I have had to take ativan more than usual lately. But sometimes my pain or my UC will make me panic. It makes me feel like I can't breath. I hate that. I hope you feel better.
Posted 4/25/2013 4:39 PM (GMT 0)
went to pcp on Tuesday and got placed on an antibotic for infection, so not feeling too good...
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