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Posted 4/27/2013 10:06 PM (GMT 0)
Hi everyone! I'm new here! I've actually been looking for a support group to join for a little while and havent been able to find out thats still active until now! I have something call Ehlers Danlos Syndrome so chronic pain is something Im quite familiar with.
Ahhhh... I hate that new kid on the block feeling.
Posted 4/27/2013 10:35 PM (GMT 0)
Agent,

Welcome to the CP board of HealingWell. The members here are supportive and informative.... :) While I'm sorry that you are suffering from EDS.... I'm glad you found your way here.

No worries about being the "new kids on the block".... :) Just jump in and start posting! Feel free to share more about yourself on this thread, if you are so inclined.... In addition, we ask that all new members take a peek at the forum rules (upper right hand side).... these are the rules set by the Admin of HW.... and what keeps HealingWell the wonderful place that it is :)

I don't personally have EDS.... but I have dysautonomia/POTS -- which is often linked to EDS. Do you happen to have dysautonomia as well? Just curious. I think we do have a couple of members that are currently on here w/ EDS.... I think one of our mods has it (Laura?)... You might also use the search function (again, upper right hand side) and search "Ehlers Danlos"....

How long have you had it? What type of treatments do you do for it?

Anyway - welcome aboard! If you have any questions or need help w/ anything -- just let one of us know. Look forward to getting to know you better :)

--Tina
Posted 4/27/2013 11:04 PM (GMT 0)
Agent,

Welcome to the CP forum, all the folks here are great and really supportive. Don't worry about being the new kid on the block, many will be by to welcome you.

It can be a bit slow on the weekends, but during the week there are plenty to answer your questions. I'm sorry I don't know anything about your condition. I can relate to your being in pain though I have lupus/RA, Fibro that cause most of my pain issues. Have many other serious health issues, one which is looking like it's turned into full blown cancer.

I'll have to do some research on your condition so that I can understand it better. I'm truly sorry that you're in so much pain. Is your pain under control and do you have good Doctors taking care of you? I hope that you find us a help to you whenever you need. Please feel free to come and vent anytime, as all of us here understand the frustrations that go with CP and living with chronic illnesses.

Again, welcome and looking forward to getting to know you.

Hugs,
Barbara
Posted 4/28/2013 12:31 AM (GMT 0)
Hi Agent Welcome to our chronic pain forum. As the other two said, we have a lot of supportive and caring folks on here. I don't have the EDS and I don't know what it is. Maybe you could inform us a little more of what it is, and what treatments you do for it. Take care.

hugs
Loretta
Posted 4/28/2013 2:10 AM (GMT 0)
Hi Agent,

Just wanted to say hi and welcome to the forum.
Hope you're having a low pain day today.

Take Care

UA
Posted 4/28/2013 5:20 AM (GMT 0)
Hello Agent and welcome to the forum. Glad you found us just sorry you had to be looking.

You will find we all have pain in common and the common goal of helping each other thru understanding and support.

I will look forward to hearing more of your experiences.
Posted 5/2/2013 5:13 AM (GMT 0)
Agent, this is Q, welcome aboard and if you will give ma a moment to investigate Ehlers Danlos Syndrome I will see if I can be of some help . . . Q
Posted 5/2/2013 5:28 AM (GMT 0)
agent, well I found out quite a bit, that it is likely genetically caused, marked my very loose joints and a host of painful syndromes. At least your prognosis is not fatal but I can see why you are looking for a support group. This is definitely one of the best on the web, most of us,I do, have big shoulders to cry on especially for diseases like yours and mine that have no cure. please stick with us and share your story as its is one the most compelling I've read here . . . Q
Posted 5/2/2013 5:28 AM (GMT 0)
Duplicate post. Quincy I removed 6 duplicate replies.
Dont know why it kept posting over and over?

Post Edited By Moderator (nvrthesame98) : 5/2/2013 2:07:06 AM (GMT-6)

Posted 5/2/2013 8:40 PM (GMT 0)
Hi Agent, I am new here too. I also don't know anything about EDS but would love to learn about you. whatever you wish to share of course. I have a host of medical problems and there is still some debate as to what is causing my pain. Everyone here is really great. They don't get mad when you ask questions even if they have been asked before. Hope you are having a good day.
Posted 5/2/2013 9:00 PM (GMT 0)
Glad that you are finding it a "home" here Teddtlove. That is one of the things I love most about HW is that we all can express ourselves and ask lots of questions in a respectful way. We, (collective), can even agree to disagree in some things or have hearty discussions just like with family/great friends but we all know we come from a place of care and empathy. It's definitely not the same at other forums!

We all can learn from one another as even though we all have pain, we have walked different paths to get here.

Agent...hope you will return to share more about your journey with us!
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