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Posted 8/12/2013 8:42 AM (GMT 0)
Hey everyone....

This is the place to "check in"... Let us know how you are... how you survived the weekend.... and what you've got planned for the week ahead.

Hope you all have the best week possible!

--Tina
Posted 8/12/2013 10:26 AM (GMT 0)
Tina thanks, it was a quiet weekend here spent hearing about my daughters trip. She seems to have had a wonderful time and enjoyed spending it with her sister and 18 months old niece! They did alot, visited many places, and shopped probably more then she needed to.

She's glad to be home and I certainly am glad to have her here! Now we spend a busy week getting her ready for high school next week.

Still on the lexapro, still maintaining my slow taper down on the methadone and beginning to feel it. This may turn out to be my stopping off point! I've only managed to come from 45 mgs to 30 mgs a day, no b/t meds except a few excedrin.

Still having all the "old lady " stuff going full swing! At least that's how I feel about it! Lol. Have an appointment with a Gyn the end of the month and possibly get HRT restarted so I can turn the air back to above sub zero as my kids say I keep it in here.

Hoping everyone else is having a smoother summer! Everyone going for tests and procedure's good luck. Everyone in flares here's hoping your close to the end.

(Hugs) Barbara Lee, Sandra, hoping your both well and thinking of you.

Peace to the rest of you wonderful folks.
Posted 8/12/2013 11:34 AM (GMT 0)
Glad your daughter had a good trip Vickie.I know you missed her.Things are pretty good in my little world.Have a "Procedure" Thursday at my Pain Doctor.I get to actually see my Doctor although I think I'll be sedated.I have to have a driver.This is my 1st shot in my back.A little nervous.
Posted 8/12/2013 2:37 PM (GMT 0)
Oh Vickie, Vickie, Vickie. I cherish your posts.

I had what started out as a great weekend running on high after a super duper PT session on Friday, then yesterday, DOMS kicked in and oh yeah, okay, got it, I feel it. Not real bad, but by bed time, up to around a 5. Where I "live" on the scale, I'm still okay, keeping the good weekend in my head AND I even (get this!) I walked around the block once, (with my cane of course)....it's a teeny block, but...

Last night was my first night I decided to try sleeping in the bedroom together and not in my hospital bed, which currently is in the living room as the house is filled with packing boxes (filled ones and broken down ones). Different room. Relegated to a fan that runs on me, non stop, 24/7. Okay, let's try this. I get into bed, crank that A/C up, and happily crawl under just a sheet and thin little quilt. This might work. Not bad. I'm doing okay.

Then the yanking starts. From the....other,...side,...of,....the,....bed. "WHY do you HAVE to HAVE this THING on? IT'S like SIXTY outside! open the -->insert word of choice for 2am<-- DOORS!" We have those sliding glass doors in the bedroom, so lots of air can come in.

So he did.

And then I did. I moved back to my hospital bed. Cranked the fan back on. Filled my Polar Cube with a whole bag of ice, took one of my Xanax, and tried to settle back into bed. Needless to say, once I get woken up, especially if it's "abruptly" like that, all the Grecian gods couldn't get me back into a slumber.

Hubby and I get along amazingly well, and he's terrifically supportive. He's also protective over me, wanting to make sure I don't hurt myself.....very encouraging. But girlfriend, when it comes to the A/C and the "temperature of choice" then it's like War of the Roses or something.

He also wears two tee shirts and a hoodie with jeans and boots when it's nearing 100 degrees out and he's comfy....even as a little kid, he was like that. And very sadly, even as a kid growing up, I'd swim in the Atlantic ocean in the Spring and Fall or in the freezing CT river or we lived near Angel Falls and the water never warmed up.

This whole,...."woman thing"....just makes me cringe.


Vickie, you rock. Just like CP it's nice to be able to share hot flashes and cold sweats and moments of thrashing, and not feel alone.


Sookie
Posted 8/12/2013 4:08 PM (GMT 0)
Pain was moderate through the weekend -- in part because I've been experimenting with some old hydrocodone on top of my standard oxycodone (by my PM's permission) and trying to find a regimen that works, doesn't make me too drowsy, and allows me to work.

I've also been exercising daily -- my wife bought me a "bowflex" home gym -- it doesn't add to the pain, thankfully, but so far no help (but clearly too soon).

My tens unit is also becoming a constant companion, and I've found it very helpful dealing with the background gnawing pain.

Now that my book is out of the way (though I did get a dozen more queries regarding typos on Friday!!!), I've started to move on to other projects. I have 4 grant applications due in September (just started #1) and my next major writing project (roughly 10,000 words) commissioned for November. I've also accepted 3 more that will take me through mid-2014. So, I sure hope that I can return to the momentum I had before the Cymbalta debacle.

Oh, I also got my wife angry with me -- I let my 13yr old step-daughter watch the Exorcist with me... actually I was more responsible -- I paused it when she came in, but then let her watch just the classic head-spinning scene :p.
Posted 8/12/2013 4:31 PM (GMT 0)
Awoke this morning.. the third & final time,
& I was, as usual, in pretty much the same position that I feel asleep
Except
Hhmm how to explain?
My chin was pointed toward the ceiling..
In other words, despite taking muscle relaxerS & pain meds before bed
My neck muscles were cranked.

Cranked tight

Stress
Other people's stress became mine..

Hopefully those folk's issues peaked. Trying not to think about it. ; •}

Will check back in later when I am hopefully less cranky.

You'll posts help so much !! Reminds me that life cycles & Mine just happens to be bottoming out right now.

Thanks to all & have a great week !!
Posted 8/12/2013 4:45 PM (GMT 0)
I hurt myself doing something last week so this weekend was filled with rest, rest and more rest. Still feeling badly this morning and I'm considering making an appointment to make sure I didn't really mess something up in my back. :0(

Nothing exciting this week. Just spending time with my kids who are back home after visiting Grandma for a month. I missed them terribly so I'm soaking up as much love and hugs and I can.

Hope everyone is feeling low pain and increasing relief.
Posted 8/13/2013 1:56 AM (GMT 0)
I seem to be on a pain roller coaster. Some days/hours are fine and others I am huddled up in a cold sweat trembling and trying not to cry. My pain management Is still in between doctors so I am stressing about that as well especially since i am almost out of medication (two days worth left) I hope my primary will fill/re-proscribe them like he did when he found out what my pain management doctor was doing.

Anyway here's to hoping and hope you all have a relatively pain free week

Morgan
Posted 8/13/2013 4:02 AM (GMT 0)
I have been in a similar boat as you mthixton! Hope it all sorts itself out for you soon...

@Cogito

I can't wait to have kids and have my wife get pissed at me over something similar! :)

@Diane

Hope that stress winds down soon :/ I know how stress will exacerbate my pain to unbearable levels if I'm already having a rough day.

@Sookie

I love having a fan blasting on me while I sleep...sadly my wife doesn't...so we compromised on having the ceiling fan going(she'd rather nothing be on while she sleeps...dead silence)


I had a PM appt. today...went alright. Bit frustrated, sad, but the last couple of days haven't been as bad as earlier this past week.

Hope everyone has a better week ahead! :)
Posted 8/13/2013 4:14 AM (GMT 0)
Lot of leg and feet pain this weekend, wouldn't let up, even while trying to nap or sleep. Steady, gnawing, achy, burning feelings.

We had a date night Saturday. Went to a decent restaurant, then took wife to see the movie, "The Conjuring". Second time I had seen the movie in 10 days, liked it that much.

Sunday, typical for us, stayed at home. Tried to nap twice, but couldn't get comfortable enough to really relax or sleep.

Rained like the blazes, but cleared up in time to have a cookout with my youngest son and his girlfriend. Did up marinated chicken breasts and turkey sausages, and grilled yellow squash/onions on the grille. I still enjoy being the designated grille master.

And now, it's Monday all over again.

david
Posted 8/13/2013 4:38 AM (GMT 0)
Well my weekend was spent in terrible pain. I have completed 3 of my 24 session of PT for my Achilles tendonitis. The PT therapist said I've got the worse case he's ever seen in 5 years. I'm suppose to stay off my feet as much as I can. Needless to say, my Pulmonary Rehab therapist isn't happy that the PT therapist said no walking on the treadmill for now.

My chest pain is still as bad as it was two weeks ago. Still haven't heard from my PCM. She's been away on vacation and was to return to work today. Hubby was trying to rub along my ribs last Thursday night and could feel something moving, so he stopped. He's certain I either have a totally fractured rib or have pulled a tendon or muscle away from the rib.

My right leg and buttock hurt me like the dickens. I was rear ended by another car on May 22nd. I jammed my foot and I've injured my leg and buttock. I think I've got sciatica going on, because when I sit longer than 20 minutes in the same position my buttock and leg all the way to my toes go numb. According to my PCM, that soft tissue injuries take a long time to heal, and I take even longer to heal considering all my health issues.

Today, I had a very early GYN/Onc appointment, tomorrow is pulmonary rehab and PT. Wednesday I see my Rheumy, Thursday I see PCM, Eye Doc for f/u on eye surgery. Of course pulmonary rehab and PT on Thursday too. Dealing with loads of stress, daughter is home until the 25th then we take her back to college. I'm very much a person who wants to be one time, and everything is in it's place and such. Well she's the total opposite of me and drives me totally insane LOL.

Other than my pain staying at a constant 8 out of 10 and my lupus flare being big time bad, that's all new with me. Truly feel that my Doctors and I are going to come to blows this week. I can not continue on the path I"m on. I have ZERO QOL, and I shouldn't hurt this badly, I don't care if we can't increase my LA pain medication okay, but at least lets increase my BT medications. I don't care anymore about the concern over my breathing issues. I so totally know that if I were someone's pet I would have been put out of my suffering long ago. So wish me luck as I'm going to express how unhappy I am with my position with my pain.

Hope everyone has a good week and low pain levels. Those that are in pain and having flares, I feel for you and hope that you begin to feel better ASAP. Vickie, I'm glad your daughter is home, I know it was really hard on you to let her go. The fact that you've cut back as far as you have on your methadone is a HUGE accomplishment I'm so proud of you. I hope that they can get things figured out for you.

Hugs,
Barbara
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