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Favourite CP Strategy of the Week?

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Posted 8/16/2013 1:34 PM (GMT 0)
What have we learnt this week?

Any new methods you've found that have worked well for you? Any 'tried and tested' pain relief strategies that you would like to share?

Laura
Posted 8/16/2013 2:26 PM (GMT 0)
That if you sleep 22 hours out of the day, you won't feel as much pain.

(sorry, had to say this, as a lame attempt at humor)

But on the other hand, if I got more than 4-5 hours of sleep per day, I definitely wouldn't be awake
as much, being conscious of pain.

What would help me a lot is soaking in hot water, either bath tub or Spa/Hot Tub. If it weren't for my Urostomy and it's device, I would do that twice a day. But there really is such a high risk for dangerous UTI's in my case, so I put it out of my mind. I may go in the Spa 3-4 times a year at the most, and I haven't taken a tub bath in nearly 5 years. Which is a shame, as I was a bath rather than shower person most of my life.

david
Posted 8/16/2013 6:43 PM (GMT 0)
David,

I liked your comment about sleeping. I'm afraid I actually DID get it...sadly because I've resorted to trying to sleep longer to avoid pain. Not very effective, but desperate times, we do desperate things. Been on the flip side and stayed up without sleep,...started hallucinating by day/night 3, both visual and auditory. Scary ride.

Hmm, what have we learned? (I also liked the way that was phrased, teacher!) ;)

My PT sessions have been running 2 hours long, and that gets me high, which feels good, the endorphins feel nifty. Then there's the ride down, as the chemical balance returns to it's not so comfy baseline. I've learned exercise feels good, but I've known that for a long while. I've learned NOT being ABLE to do it sucks donkey orbs. I've also learned to be thankful for the very good care I DO get.

Still coping with ice.

Every now and again I make a mental slide downhill and feel sad when I start dreading the pain of getting out of my hospital bed just to walk to the bathroom, (given how much water I drink, I think it's my way of "forcing" me to exercise and move,...gotta get up when ya gotta go!)

Then I come here, and you guys help lots and lots. And lots!


A thankful and grateful Sookie.
Posted 8/16/2013 7:00 PM (GMT 0)
I am on a PT "break" right now, upon my oncologist's advisement. I spent 25 months in oncology rehab, and was in regular PT for 3 months prior to that. For me, in my situation, the once a week PT session was causing more harm than good, as I would tend to have several bad pain days in a row after each session. It's not that I was being overworked or doing too much, it was just difficult in general.

I miss going, and I had the same therapist the entire time. Where I went, they had a one therapist to one patient ration. The only time I had anyone different was when mine was out on maternity leave, but even then, she use to call and e-mail me weekly to make the substitute was treating me fairly.

She definitely knew me inside and out, and could tell upon her first glance, what kind of pain day I was having just by looking at me.

Hoping at some point, to go back at it again. I see value in both going, and not going.

David
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