Posted 9/11/2013 9:49 PM (GMT 0)
Dr. Finally change my pump meds at 100% Fentanyl at 3700 mcg per day (3.7 mg) to 1500 mcg. Fentanyl & 150 mcg. Sufentanil per day. He finally agreed tat I was too tolerant to the Fenamyl as I'd been on it now over 4 yrs. used in patch form before pump implant one yr ago last Fri.
The Sufentinal didn't actually hit my system until Wed. 9/4 at 8 AM. First 3 hrs I slept. Then I got itchy & started to hurt some about 5 PM. The dr had me come in Thurs as I had called several times. Anyway he was happy with results proving I was definitely tolerant to Fentanyl. He increased a little to 160 mcg. Sufentinal & 1600 mcg. Fentanyl.
Both the dr & I were very happy with the outcome of the med change. All was good for about three days, then Saturday I started hurting again. Went in yesterday, Dr increased again to 180 mcg. Sufen. & 1800 mcg Fentanyl. I don't feel any better and he's now only allowing me 1 Norco a day, I was taking 3 a day up until last week. Some of the problem may be because it's overcast. I always hurt more when it's cloudy.
If I call they'll want me to come back in. It's almost impossible for me to get rides anymore, except the weekly one. I don't know what to do.
So has anyone experienced these symptoms?
Initial improvement and then none. Just back to where you were?