So much pain today

What do you do on those terrible days?

When lying in bed, maxing out on pain killers, and using all your additional strategies don't take the pain away?

How do you mentally manage your thoughts on that day?

Do you interact with others?

Do you cry into a pillow, or cuddle with a pet?

Today has been one of those days, the type of day where all I can do is sleep, and cry. Sleep and cry. If I move I squawk in pain. If I lay still I meditate the best I can.

I guess what I'm asking is you, as an individual, how do you handle the terrible days when your pain has control over your mind and body?

So sorry you are having such a miserable pain day.

These are what I call my "severe CP days", as opposed to my "regular CP days"

What I do in that situation, first, is prayer.

Second, I will do anything within my abilities or grasps to distract my mind from the pain in my body, this might include watching a movie, surfing the web, etc. Anything other than allowing my mind to focus on the pain itself.

On those bad days, I always feel worse if I am alone in the house (my wife works all day as a nurse), just knowing she is home, somehow makes my worse pain more bearable, even though there is nothing she can do to alleviate the pain.

I am not prone to cry easily, but there are times where I am almost white with pain, close to panic, and will have tears well in my eyes, and for a brief moment, feel like I can not take any more of this...but then I get hold of myself, and it passes.

I wish I had the ability to sleep more, because its often the only real relief we get from the pain, so if you are like me, and are awake up to 20 hours a day, you don't get much break from being awake in pain.

Hoping you have a better day tomorrow. I only do one day at the time with what I am dealing with, I don't deal with tomorrow, until tomorrow becomes today.

David

I put my headphones on and crank up the music! It soothes the soul! My kids call it my zombie state, as I respond to nothing outside the music. Lol They know I'm currently "out to lunch "

That's after the hydropool and meds, books and other distractions fail.

Im legally deaf although I hear with the headphones and really loud volume decibels!! Everyone in the room can also hear what I'm listening to so its a good thing I instilled my love of all types of music in my kids when they were young.

Hoping for better days for you.