Does anyone have restless leg syndrome ?

Hi I would like to know if any one has restless syndrome ? I went to the doctor yesterday and I might have it. Could you please tell me your symtoms? I have cramping from my thighs to my feet. All so from my thighs to my feet ache and burn. I all so was diagnosed with anxiety. I all so have tingleing in my thighs to my feet. Misty.

I had RLS and it didn't feel that way at all... My legs would jerk constantly whenever I was laying or sitting still. It felt like there was a spasm or twitch in my muscle and I couldn't control the movement. I agree with Vickie, that sounds more like neuropathy to me.

Hi Linds Thanks for your reply. What took your Restless leg syndrome away ? Did you take medication for it? I all so have anxiety. This might play a role in it to. i was diagnosed with colon cancer and getting chemo. Eloxtin and S5u. I only had three treatments and this is when it started. The chemo doctor said this should go away in three or 4 months. I all so have anxiety this does not help. Misty.

Misty my ex had RLS as did her father and uncle and aunt and several of her brothers and sisters! They were on Mirapex for it. I know for my ex it worked really well, the whole time we were married she suffered from RLS but it wasn't till in the nineties that she was diagnosed and treated for it, as earlier in the seventies and eighties it was not known as a condition. It mostly affects people at night, and it makes it very difficult for them to lay down and sleep, and also sitting at a table or riding in a car for any length of time, is very difficult for them. My ex would often pace the floor at night or shake her legs, it was as if she just could not keep them still she would complain that it was just a miserable feeling. Mirapex helped her allot as it did most of the members of her family.

White Beard

Hi Lynnster. I wanted to from your thighs to your feet do they burn tingle and cramp. My arms and wrist tingle to and my hands cramp some times. I use a hot water bottle to take the pain away. When I finally relax and kept warm it goes away. As soon as I get up it starts all over again. Does this sound like Restless leg syndrome to you? Do you have these symtoms? Misty

Hi linds Does your body shake with Restless leg syndrome? I shake and can't keep still I am very nervous. I have to walk around around a lot. I have no appetite at all. Does a hot water bottle help your symtoms. I go to sleep at night with a hot water bottle and it seems to calm everything down. When I sit in the chair and put a hot water bottle on my legs it helps me. But as soon as I get up everything starts all over again. I am allways cold and get the chills. Do you have any of these symtoms? I all so have anxiety. I can't sleep. Misty.

Misty,

No, my body doesn't shake... Its exactly how its name sounds... My legs won't rest. They feel like they have creepy crawlies in them and they have to move. Then the muscle starts to feel like it has to do something or it jerks. It sticks to my legs. Heat didn't help, moving was the only non-medical way to make it feel better but then I wasn't sleeping so that was no good. Have you ever been sitting down and all of a sudden your arm just jerks for no reason? Thats how my legs felt but in a hundred different spots at once. Based on what you've described, I am not sure you have RLS at all. That's just my nonmedical opinion, of course. But both myself and my grandma have RLS and I've never heard of the symptoms you described. Do a Google search and put in your symptoms and I'm sure RLS will not be one of the suspected diagnosis. I'm sorry :-(

Misty,

You said you went to the doctors just the other day, right? What did he have to say to you? What did he think was causing you your symptoms?



M.

Hmm, that's really unusual.

You're right in that RLS usually presents at night when you're trying to go to sleep and your legs just keep moving like crazy. For me, I used to bang my legs against the side of the bed, and I'd swish them back and forth so much that sometimes my Husband would have to leave the bed.

If it only happens when you're standing, that is, weight-bearing,...have you been to a neurologist to have your low back looked at? Perhaps something is being compressed in those nerves, and when you're standing (or sitting), that's when the most pressure is put on them.

I would check out a neuro, and definitely get a second opinion, even a third. You shouldn't have to suffer with this.



M.

Hi Merrida. I Went to see a neuroligist and he tested the large nerves and my muscles and he said he never seen nerves and as mine. All so my muscles are very good. He wants me to come back and do a small nerve test, I did not know there were large and small.nerves. I am going back next thursday the 13th at 1 o clock. I will let you know the results. I all so went to a psychiaritrist and she told me I have POST TRAMATIC DISTRESS ORDER. Misty

Misty,

Don't let docs minimize what you're feeling. The definition of a specialist is you have what he treats. Keep looking for the cause of the problem.

One thing to consider: I get "restless legs" symptoms from some of the meds I have tried. It's painful, currently wakes me up about 3 AM after taking nortriptyline, which I'm trying for pain.

Second thought: There's nothing wrong with my nerves in my arms and legs, but I had C3-4 fusion from crushing 6 vertebrae and discectomy because of a burst disc after falling on my head. The numbness and tingling and burning and pins and needles feelings I call my "not-real", "all-in-my-head pain." The cause is that the messages from my extremities (and everywhere else below my shoulders) is being scrambled when it gets to the level of the damaged area of the spinal cord. I have fair sensitivity for "real" pain as well as touch in most places, like the impingement in my shoulder. Cold though, is excruciating. It is not necessary to have had such a severe accident as I had, and this problem (central cord syndrome) can occur months or even years after a spinal injury or stroke.

Get copies of all test results, disks of all imaging, and keep a journal of all your symptoms. If you are trying various medicines, put that in your journal too. For instance: I know that my med is causing my leg cramping/twitching because it always occurs the same time after taking it.

Misty,

I sympathize with the PTSD. I had that for a few years after breast cancer. It's pretty common. Finding a group where you can talk helps a lot. Many hospitals support these groups. After the disease is gone and we feel better, we stay on to help the newly diagnosed. It's always free, way cheaper than a psychologist, if that's any help. Actually being there is more helpful than just online, although forums and chat groups are good.

For my drug-induced leg spasms I take the smallest dose of Valium available, 2 mg. If the cramping and pain isn't horrible even half a tablet will do the job and I can sleep. Valium (diazepam) is the best muscle relaxant I know of, also few side effects, works fast. It can make you a little sleepy, so best taken at night.