Feel like giving up?

Hi, I'm new here, posted an introduction, but I wanted to ask a question.

For those of us who are still searching for a definitive diagnosis, do you get fed up with the cycle? Going to different specialists and leaving the office disappointed each time because they can't find what's wrong? I have had multiple doctor's appointments every week for the last six months and I just feel so DONE with it. So done. I don't want to see one more doctor just to have them tell me they can't figure out what's wrong, why don't you go see a ___________- specialist? My latest is that I need to go get a colonoscopy I'm only 38! Was hoping to put that one off for another 12 years ...

The only doc who helps me is my PM doc, who is absolutely amazing. Right now I just started Butrans 10 mcg/hour (which I love because I don't feel high, just NORMAL) have dilaudid 4 mg for flare ups, and am also using medicinal marijuana (I'm legal and certified) before bed and if I have down time during the day when I don't have to be anywhere or drive, etc. This combination is working really well and allowing me to return SOMEWHAT to my normal life. I actually took my kids to the movies this weekend! It was magical.

So I want to take a short break (a month or two) from trying to get a diagnosis, but my family and friends don't think that's a good idea. I just feel like they don't understand what happens to me emotionally every time I go in to a new specialist, wait for test results, etc. After reading this forum I see that people here understand. Have you felt like this? Just giving up? Especially if you find a combination of pain treatments that make you feel like you can get through your day? Thanks in advance for any thoughts you have to offer.

I replied to the other thread and certainly feel you! The easiest way around family is schedule a good appointment with a teaching hospital and specialist, schedule that colonoscopy as your in that age group where earlier detection is safer, and do both for say 1st of November! Giving yourself a small window to relax and break but still on the agenda! Family gets told the best Drs are there and booked up but well worth the wait!! No lies as it may well take all of that time!

Good luck!

I have had a number of primary care doctors. The general feeling I get is that most of the docs just don't care, hand you a script, a piece of paper and just want to get rid of you.

KEEP TRUCKING, DON'T LET THOSE TURKEYS GET YOU DOWN.

Thanks all. I'm going to call the big university hospital tomorrow and see if they have pain management centers connected with a network of specialists and PCPs.

Thanks, Quincy. You shouldn't feel bad for me! I still have hope that my condition is benign.

I just joined too and read your post I know how you feel and I thought maybe reading my post might help maybe. I know people have it way worse then I do.







Hello, my name is Sage, I joined here to seek help from others that have gone through SI joint, hip, and lower back,and knee pain. How did your pain come to be? And how did you overcome wanting to feel healthy and normal again?? I am twenty years old, and have become very depressed and hopeless feeling since my car and snowboarding accidents.

Last July the interstate auto collision occurred. The retirement bus didn't check his blind spot when he tried changing lanes into my car. All the impact went straight to my knee, in known as dash boarding. That was the beginning of my chronic pain. On March 10th, earlier this year on my birthday, I was struck by an out of control snowboarder while on my snowboard looking forward. I have a small 5''5 110 pound frame. The weight of a full grown man, his heavy board, and the momentum was completely stopped by my SI joint. At the time I thought the impact was to my hip. I should have went to the hospital that day but even though it was the most excruciating pain I have ever felt in my life, I decided to wait a month to even see a chiropractor.

After months of being in chronic pain I went to an orthopedic surgeon with my hip and knee X- rays. He told me there was nothing to do for my knee, except take prescriptions drugs for the rest of my life which is devastating. He also informed me that my hip looked fine on the x-ray and that the pain I described in my low back and hip were being caused by my SI joint. I spent months ignoring my real problem and in the end I am stuck with a life changing accident that wasn't even my fault.

Now I am seeing an osteopathic manipulative medicine doctor. The damage caused my SI joint to move 1 cm which also caused my hip to move 1 cm. I feel off balance and broken all the time. I am so young and now I can not do anything physical that I loved doing. Thank you for anyone that has read this and anyone that responds. I feel like hearing other peoples stories will really help a lot!