ENDOMETRIOSIS: MY NEVER ENDING STORY

Dixie, I had no idea that Endo was a scarlet fever, pardon the pun. I always thought that Drs. Treated it like the legit disease/condition it is. Shows you how much us men know, huh? Verbal vomit, I don't think so. I learned a lot from your post. It seems that you are being treated like my wife is, whenever she tells them that her husband of 24 years has cancer, they chalk her pain up to stress. Even after 3 operations she is patted on the head and sent to her, and mine too, psychologist. She is stressed out over her pain! I know this because I've seen her on her good days, she is so happy, she goes into her workroom and makes some fine piece of jewelry and plays with Zhenya, our rat. Then she comes into our room where I spend almost all of my time and helps me out if I need it and then goes out and takes care of errands that she has put off because of pain. I still have cancer but she gets to act like a normal woman for a while. It's wonderful. So I sure get your point on that super-doc and his no treatment routine. He's one of those that won't take on the tough cases lest it spoil his perfect record, the jerk.

Oh, opioid naive means that you are not physically accustomed to taking opioids. It's a little warning to start your doses low because your system is not accustomed to them yet. A week on 5 mgs of Oxy will change that naive part and then they should start upping your doses.
Best wishes and the least of pain . . . Q

Yep, got your message and gave you my story. It was an easy day, c and I had a nice afternoon and I got more ice cream. I'm not fat so I get to indulge when I want to which isn't all that often which is why I'm not fat, blah de blah. Nah, I do have to watch my weight a bit due to the cancer meds. I've got a nice flabby chest . . . Boobs . . . That will never go away but I try to keep a trim middle a little bit. Well get caught up on our posts to each other now . . . Q

Thanks, Susie...Admittedly, I am unaware of many things

Yes, I just checked back in on my thread and I could not decipher it.  I think maybe when I cut and paste from my journal entry, I did something WRONG.  Apparently my error(s) came to fruition when NTS needed to edit some graphic language I had overlooked.  My bad.  I tried just now to go back in and shorten my post and rid it of whatever technical glitches had occurred, to make it more readable.  I think maybe now I've lost it in translation.

I have resisted ALL opiates since an initial trial for PM in 2005-06, which did not work out for me.  I was administered several series of injections and prescribed a plethora of pain meds, nerve meds, etc.  I was scolded by my "then" PM doctors for resisting these medications due to side effects.  They were the "best of the best" in pain management in the entire Southeast.  Nothing against them...I was overwhelmed by that level of medication all at once and could not tolerate it.  I withdrew in every sense of the word and managed to push through my pain without PM since 2006.

It was only after my attempts last Fall, seeing 8 specialists in 3 states, including GYN, ONC/GYN, UROs, ORTHOs, and NEUROs that I was told that PM was my only hope.  They each told me that further surgery would make "it" worse. I reluctantly enrolled in PM in January of this year.  I am currently taking Oxycodone 15 mg x 4 daily.  My doctor would not prescribe the 4 pills per day (I guess because of the DEA regulations you stated).  He did, however, change his demeanor towards me (in August) when my husband was sitting beside me.  He prescribed 30 mg x 2 per day, instructing me to break in half and take every 4 hours. 

I think if you could have read my novella of a post without the computer-induced scramble "gibberish" that is no one's fault, you would have had a much clearer view of my situation.  Perhaps you would have understood that it's my PM doctor's demeanor and not his prescribing ethics that are so much the problem.

Truly sorry for all of the confusion I've caused.

HUGS~~Dixie

Yes, Dixie pain mgt has changed significantly since you tried it in the past. If you don't care for this PM dr keep looking until you find one that you are comfortable with. That is is all anyone can do when they are not happy with any dr.. Vitals is an excellent place to look.

Good luck.

Thanks y'all...I'm sure I goofed somewhere. Hope everyone has a reasonably restful night=)

TTYT~~Dixie

Vickie, sounds like you saw what I saw too, so good, now I know I had not lost all of my marbles, lol. Well, maybe one or two but who sweats the small stuff, right?

Quincy, no I have not heard of that group before but that is not saying much on my part either. I am pretty much one of these people that will look on the net for whatever I need, find it, then I am done. I am not one to spend a whole lot of time searching stuff on the net, lol. A lot of my stuff comes from friends that will pass something on to me too.

Unfortunately in today's environment those type of drs are few & far in between. With so much media hype over drugs in general it has created nothing but a huge mess for people that really need help. To compound the problem the drs have taken a negative approach too. Some drs believe in people needing quality life & some just do not care. It is a very lucrative business & I have seen many of them trying to cash in on the rewards, lol.

I have been fortunate in finding decent pain mgt drs but having a pump limits my access to drs severely. I have a new dr as of Jan of this year since my prior dr decided to retire. She was also tired of the government telling her how to practice medicine. My new dr is young & really up to date on pumps which is all I am interested in.

I see PM getting even more controlled & restricted as time goes. Unless you are a cancer patient the care is going to be even harder to get.

Dixie,
I read this before and after the edit-missed the crazy way it looked to some of you. Your original post here now does not include the point that endo can still be a problem after a hysterectomy.

A family member suffered with that for years, had several surgeries, had a hysterectomy and still has undiagnosed pain. Sounds familiar, doesn't it?

Thanks for sharing your life. I know it has already helped others.

Habitualized Pain???
That's a new Dr. Dodge for me. Did he explain what he meant? Who would make pain a habit? As you can see all I can do is ask questions here as I truly am wordless on this guy. My oncologist asks me every month whether I think my pain control is adequate, that way the subject is brought up in a non-adversarial way.i guess you could try telling this Bozo that your pain control is inadequate but that probably wouldn't get you any where. Best of luck . . . Q

Dixie,
Was that the same one you sent a little while back that got cyber-chewed? Unless I'm having déjà-vu I got to read it before it was chewed up. It is indeed a scarlet letter E disease. My English friend was equally driven to despair by this "wandering womb". I will have to admit that there was a good point in what that one person said about concentrating on your skeletal dysfunctions as they have no tinge of the Scarlet about them. My wife, C, has been to one surgeon that behaved like a spoiled child when she informed him that his arthroscopic surgeries on her rt. shoulder rotator cuff were failed procedures. Some Drs. Cannot handle criticism. But rather a spoiled brat than a Psycho-Dr.

I'm not in your area so there's little I can do to help but iam willing to listen and advise wherever I can. I forgot if I'd asked you if you've tried breaking your 15s in half and taking them every 3-4 hours. I do that with my 30s when the pains not too bad and the delivery keeps my serum level A-OK. Best of luck and the least of pain, you poor thing. We are over here in the high desert wishing you the best . . . Q

JESS...Have you read this documentary of my recent search for answers to pain of residual endometriosis and/or adhesions binding my organs? I know you're going through some similar issues. Perhaps my story will help you to avoid some of the pitfalls (waste of time, energy and money).

HUGS~~Dixie